19/03/2024
My research is out in the world 🩵 If you know any families who have loved a child through brain tumour, I'd be so grateful if you could share this quick survey with them.
https://www.facebook.com/share/p/QtxHSgXzgWSotv37/?mibextid=oFDknk
Queensland University of Technology (QUT) are conducting research into how resources and services can best support parents like YOU. If you are the parent or guardian of someone who has had a brain or central nervous system tumour before their 18th birthday, have a say in how services are developed and delivered by participating in the QUT survey.
https://qsurvey.qut.edu.au/jfe/form/SV_bemuroVQ4isXm1o
The survey is anonymous and will take about 20 minutes to complete. The survey will ask you about your child’s diagnosis, and how you would like to receive support and information. Your answers will be used to inform how we develop programs and services to better support families going through the experience of childhood brain tumours.
To be eligible to participate, you need to:
- Be a parent or caregiver of a person who was diagnosed with a brain or CNS tumour before their 18th birthday
- The tumour can be benign or malignant
- Your child can be at any stage in the treatment, including newly diagnosed, in active treatment, under monitoring only, in palliative care, or you can participate as a bereaved parent/ carer
- Have used a hospital or community service related to the brain tumour in Australia (during treatment or after)
- Be able to use the online survey, written in English
If you are interested in participating, click here https://qsurvey.qut.edu.au/jfe/form/SV_bemuroVQ4isXm1o
The full information sheet is available there for you to consider if you would like to take part.
Image Credit: ”Kintsugi”, by Alison, Mother of Finn
