Sickle Cell Thalassemia Patients Network

Sickle Cell Thalassemia Patients Network Sickle Cell Thalassemia Patients Network (SCTPN) by adults living with sickle cell disease, thalassemia, and other hemoglobin disorders.

Sickle Cell Thalassemia Patients Network (SCTPN) was incorporated in 1992 as a volunteer, community-based organization (CBO). Their desire was tto serve the larger community by providing a face and a voice for these under represented health issues. SCTPN provides scholarships to young adults with SCD to assist them with college expenses. We also provide public education programs to help increase awareness and knowledge of hemoglobin disorders. We serve as advocates/liaisons for families and healthcare professionals at hospitals, throughout the New York Tri-State area, that provide comprehensive care for sickle cell disease and coordinate referrals to needed services. SCTPN is committed to helping diminish the negative social, psychological, and economic impact of these debilitative disorders on our community.

So glad to kick off the SCTPN Annual Central Park Walk! 🖤🌿✨️ Our first registrants brought beautiful weather with them! ...
09/19/2026

So glad to kick off the SCTPN Annual Central Park Walk! 🖤🌿✨️ Our first registrants brought beautiful weather with them! 💪🩸✨️

🎉 TGIF! We’re ONE DAY AWAY! ❤️Friday is here, which means we are officially ONE (1) DAY away from our Annual Sickle Cell...
09/18/2026

🎉 TGIF! We’re ONE DAY AWAY! ❤️
Friday is here, which means we are officially ONE (1) DAY away from our Annual Sickle Cell Awareness & Education Fundraising Walk!
📅 Tomorrow — Saturday, September 19
⏰ 9:00 AM
📍 Central Park

Come out and walk with us for awareness, education, community, and a cause that matters! Every step we take helps shine a light on sickle cell disease and supports efforts to educate, empower, and make a difference in the lives of those affected.

❤️ Sickle cell warriors, families, friends, supporters, and the entire SCTPN team will be there—and we’re waiting for YOU!

Whether you’re walking, fundraising, donating, or simply showing your support, your presence matters. Together, we can raise awareness, build community, and make an impact—one step at a time!

📲 Need directions or additional details? Send us a DM right here on Instagram. We’re happy to help!

Lace up, bring your family and friends, and COME WALK WITH US! ❤️

SC Thal Patients — Hello, Amazing SCTPN Community! ❤️Quick quiz for you all—let’s hear those “YAYs!” 🙌🏾🎉How many of you ...
09/17/2026

SC Thal Patients — Hello, Amazing SCTPN Community! ❤️
Quick quiz for you all—let’s hear those “YAYs!” 🙌🏾🎉

How many of you are excited to join the SCTPN team, alongside sickle cell warriors, their parents and families, colleagues, elected officials, communication leaders, and advocates, as we walk together in Central Park this Saturday, September 19, at 9:00 AM?

YES?! 🙌🏾❤️

September is Sickle Cell Awareness Month—a time to shine an even brighter light on the lives, strength, resilience, and everyday experiences of people living with sickle cell disease and their families.

Every single day, CBOs, sickle cell warriors and their loved ones work hard to live fulfilling lives while advocating for greater awareness, resources, support, education, and understanding. That work takes commitment, compassion, professionalism, patience, and a whole lot of heart. ❤️

So this Saturday, come show them the love and support you’ve shown for years! Let’s stand together, walk together, and make our voices heard. Let’s walk for sickle cell awareness and education!

❤️ Let’s walk for families.
❤️ Let’s walk for hope, understanding, and support.
❤️ Let’s walk together as a community!

Tell a friend. Bring a colleague. Bring your family. Bring your YAY! 🎉🙌🏾

We can’t wait to see you there! ❤️

SickleCellCommunity SCTPN WalkForAwareness

SC Thal Patients — On Thursday, September 10, our President, Dr. Teresa Ginger Davis, had the honor and privilege of ser...
09/17/2026

SC Thal Patients — On Thursday, September 10, our President, Dr. Teresa Ginger Davis, had the honor and privilege of serving as a panelist at the Sickle Cell Disease Symposium held at the Schwartz Lecture Hall E. at NYU.

Her panel, titled Nutrition, Inflammation, and Energy Balance,” brought together medical and nutrition professionals for an important conversation surrounding sickle cell disease and thalassemia. Drawing from years of firsthand experience, academic study, research, and the stories of countless individuals living with these conditions, Dr. Davis shared valuable insights and raised important concerns that deserve to be heard.

We are happy to share a few short videos from this impactful and well-organized symposium.

We would also like to extend our sincere congratulations to the organizers, panelists, speakers, and all participants for a successful and meaningful event. Thank you for creating a space for education, awareness, dialogue, and collaboration.

Please enjoy the videos, and reach out to us with any questions or for more information. We look forward to continuing the conversation and supporting greater awareness around sickle cell disease and thalassemia.

All Sickle Cell Community-Based Organizations (CBO), were founded by parent/caregivers or individuals living with sickle...
09/14/2026

All Sickle Cell Community-Based Organizations (CBO), were founded by parent/caregivers or individuals living with sickle cell disease. Raising to fulfill the needs of the community and give sickle cell trait and disease a stronger voice.

The relationship between the community and CBOs need to be symbiotic.

Support your local sickle cell CBO
Raising Hope International Friends - RHIF

Support SCTPN's annual fundraiser to support Academic & Vocational Scholarships, Public Outreach & Education Services, a...
09/14/2026

Support SCTPN's annual fundraiser to support Academic & Vocational Scholarships, Public Outreach & Education Services, and Direct Family Support.
Register Now: 4agc.com/landing/sctpnwalk26

09/09/2026

SEPTEMBER SICKLE CELL DISEASE AWARENESS MONTH
Pain is a signal that something is wrong. It is hard for people who are healthy and have not experienced severe pain with any rate or regularity.
Here is a hashtag the next time you have a severe headache or migraine, don't take any medication for it. Instead bear with the pain as you go about your day. After the pain is gone, recount the experience. How long did you bear the pain before you took the pain reliever? Could you think clearly? What were you able to accomplish or did yohu stay in bed?

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