02/04/2026
💜 In Loving Memory of Lulu 💜
For those who may not know, Luella ‘Lulu’ Oudshoorn, sister to Tom from the Kookaburra room, sadly passed away on 27th January 2026, aged just 6.
Lulu lived with rare and severe forms of epilepsy—Infantile Spasms and Lennox-Gastaut Syndrome—which meant she experienced multiple, uncontrolled seizures every single day. She also lived with complex disabilities and required 24-hour care.
Despite these challenges, Lulu was a cherished part of our Wombat room from 2023–2024. She brought so much light to our centre and loved spending time with her friends. We feel incredibly grateful to have been part of her journey and to have shared in moments that brought her joy.
In honour of Lulu, her mum Erin runs events each year to raise awareness and funds for epilepsy. Over the past 4 years, she has raised almost $600,000 for Epilepsy Action Australia, supporting the 266,000 Australians living with epilepsy. This year, she will continue that mission by running the New York Marathon in November. 🏃♀️
March is recognised globally as “Make March Purple,” with Purple Day on March 26th—a time to come together, raise awareness, and support those impacted by epilepsy.
At our centre, we honoured Lulu throughout the week by wearing purple, creating “Lulu’s Garden,” and sharing messages of kindness together as a community 💜
This year holds even deeper meaning as we honour Lulu’s life and legacy. Epilepsy Action Australia receives minimal government funding, with around 80% of support coming from the generosity of the community.
If you are able, we kindly ask you to consider making a donation via the link below to support this important cause.
https://epilepsy-action-australia.grassrootz.com/epilepsy-action-australia-nyc-marathon-2026/erin-oudshoorn?tab=donations
Let’s come together for Lulu, for Tom, and for their family Erin & Dave 💜
