Wednesday Wynn

18/05/2025

Tonight, solid organ recipients are leaving a light on to remember those who have given the gift of life through organ and tissue donation

Tonight celebrates, honours and commemorates organ donors. We are so grateful for their acts of generosity that have changed and saved the lives of countless others.

Take part tonight by lighting a candle or leaving your porch light on in their memory





In loving tribute to my donor hero, WednesdayWynn, her family and my support team: the family, friends, and medical team who have ensured my survival despite the s**t show. ❤️

02/12/2024

After all the testing over the last 3 months, the winner is Constrictive Pericarditis! Therefore, I am to have a Pericardiectomy. This involves open heart surgery. I am therefore going to have a sternotomy, again.
St Vincent's has not performed this surgery in over 3 years. Apparently only 3000 have been performed world wide. A surgeon told me it's a leap of faith. They have not had a successful pericardiectomy performed on a heart transplant recipient in over 10 years. I'm so grateful to have the opportunity to undergo this surgery rather than the alternative.
Feeling blessed, win lose or draw.
X
Wednesday

Recovery after open heart surgery or a sternotomy involves safe movement and precautions. Learn about the "move within the tube" approach.

24/11/2024

I gained 8 followers, created 12 posts and received 109 reactions in the past 90 days!
It's early days yet. With a long way to go.
Thank you all for your continued support.
I could not have done it without you. 🙏🤗🎉

19/11/2024

Explore whether a heart transplant changes your personality or thinking. Understand the science, patient experiences, and myths behind this fascinating topic.

Explore the complex interplay of physical, emotional, psychological and personality changes post-heart transplant.

11/11/2024

Drinking water is a basic human right. It is life saving. We grow up being told to “drink water”, or “stay hydrated”. Depriving ourselves of fluid goes against our natural instincts. Adhering to a fluid restriction is a mental and physical struggle.

Learn effective strategies to manage fluid restrictions. Discover tips on limiting fluids, reducing thirst, and healthier dietary choices.

04/11/2024

Fluid retention is a real pain point for many people. Some women experience fluid retention during times of hormone imbalances or shifts. However, it can also be a symptom of an underlying medical illness affecting the heart or kidneys.

Fluid retention, discover the causes, symptoms, management strategies and treatments to manage water retention for optimal health.

28/10/2024

Donating an organ is a confronting topic. Actually donating an organ while you are living may not be for you personally. That is OK! Perhaps consider registering as an organ donor if you pass away. You might consider donating blood regularly.

Living organ donation is an act of selflessness making it a unique and extraordinary gift. Let's unpack the altruism of living organ donors.

24/10/2024

Including the additional $25,000 in TPD cover, I came out $85,000 better off by learning about TPD and early access to Super Funds. I did not pay any legal fees or costs. Read on to save time and money.

Link In Bio

Learn how to claim Total and Permanent Disability (TPD) insurance and early access to superannuation without paying legal costs.

24/10/2024

A Lumbar Puncture sounds terrible. I admit it, I was nervous when I was told I was having one. To be honest it was quick and not too painful. Here is one survivor's guide about what it is really like to have a lumbar puncture.

Link In Bio

A Lumbar Puncture helps diagnose neurological, infectious or autoimmune conditions. Find out more about its uses, and potential risks.

28/09/2024

Today is Day 10 in St Vincent's Private Hospital and I hope to be discharged today.

I've had an internal jugular doppler, Cardiac MRI, CT Venous, Barriun swallow, ECHO, Brain MRI and a Lumbar Punch.

On Wednesday I had a hot date with a Gastroenterologist and some plastic tubing.

I feel like I have had my tonsils out as they deliberately tore my throat to repair a narrowing in the oesophagus and cut away some muscle at the top of the oesophagus.

I had a left right heart catheters to measure pressures in heart chambers and lungs, Venous blood gas study, heart biopsies and screening for cardiomyopathy or pericarditis.

I came into hospital on Thursday 19th for an Infusion for immunoglobulin and I was admitted that afternoon instead of going home as planned.

I've been in here long enough to need a small van or removalists to pack up everything I have collected.

Now I wait for all the results to come back and hopefully the transplant team will make a decision about the next step...

Do I have the heart lining removed or start the work up for another heart transplant.

Forever Grateful to Wednesday for bridging me to this point. My family and friends who love and support me.

Every day we wake up is a good day even if it's a hot mess.

Due to the hospital admission I missed the Tuesday deadline to get my post up. I apologise for the delay, however i know you will forgive me.

This next post is about claiming TPD insurance and early release of your super without paying a cent on legal advice. I saved 10K on legal fees and 50K on tax by reading the small print.

The following post will unpack having a Lumbar Puncture.

As always, love and light,

Wednesday

###

27/09/2024

Today is Day 10 in St Vincent's Private Hospital and I hope to be discharged today.

I've had an internal jugular doppler, Cardiac MRI, CT Venous, Barriun swallow, ECHO, Brain MRI and a Lumbar Punch.

On Wednesday I had a hot date with a Gastroenterologist and some plastic tubing.

I feel like I have had my tonsils out as they deliberately tore my throat to repair a narrowing in the oesophagus and cut away some muscle at the top of the oesophagus
I had a left right heart catheters to measure pressures in heart chambers and lungs, Venous blood gas study, heart biopsies and screening for cardiomyopathy or pericarditis.

I came into hospital on Thursday 19th for an Infusion for imunoglobulin and I was admitted that afternoon instead of going home as planned.

I've been in here long enough to need a small van or a removalist to pack up everything I have collected.

Now I wait for all the results to come back and hopefully the transplant team will make a decision about the next step...

Do I have the heart lining removed or start the work up for another heart transplant.

Forever Grateful to Wednesday for bridging me to this point. My family and friends who love and support me.

Every day we wake up is a good day even if it's a hot mess.

Due to the hospital admission I missed the Tuesday deadline to get my post up. I apologise for the delay, however i know you will forgive me.

This next post is about claiming TPD insurance and early release of your super without paying a cent on legal advice. I saved 10K on legal fees and 50K on tax by reading the small print.

The following post will unpack having a Lumber Punch.

As always, love and light,

Wednesday

###