Sickle Cell 101

Feel like Nigeria should be in the lead since they have the highest sickle cell population 👀. Kenya knocked Canada out of th top 5. Make sure you to support the only global survey to accept responses from patients and caregivers from any country worldwide!!

What if 15 minutes of your time could win you $100 AND rewrite the future of global healthcare? We talk about change, but data is the fuel that actually drives it. Whether you’re a warrior or a caregiver, your voice is the missing piece of the puzzle.

✅ 100% Anonymous
✅ Available in 6 languages
✅ Weekly $100, $50, and $35 prizes

Don’t let our history be written without us. Tap the link in our bio to represent! sc101.link/ourvoice

By us for us!! The only global sickle cell survey to include ALL COUNTRIES 🌍. Nobody is excluded…That’s why we’re providing it in 6 languages. This will something that represents our priorities and Our Voice and we’ll share the data right here!! https://sc101.link/OurVoice (link in bio).

THE SOONER YOU COMPLETE THE SURVEY THE MORE CHANCES YOU HAVE TO WIN!! So don’t forget to opt in for the giveaway when you’ve completed the survey to win gear and gift cards.

New paid study alert! 🚨 Help us find better ways to improve hemoglobin function without leaving your home.

We are looking for individuals ages 28–45 with the HbSS genotype to participate in a one-time, 30-minute blood draw. A mobile phlebotomist comes directly to you.

Reward: $100 electronic gift card (delivered within 24 hours).

Goal: Research to improve hemoglobin function.

🔗 Sign up or learn more at: sc101.link/Sanguine

Sickle Cell 101 (SC101)’s Commitment to Research

Sickle Cell Studies is a patient-friendly research platform created by SC101 to engage with our community about research for sickle cell. SC101 does not endorse or support any specific research study over another.

The goal of our platform, Sickle Cell Studies, is to ensure our community has awareness, access and understanding of all ongoing research for sickle cell and can make an informed decision if they are interested or decide to enroll in a study.

You coming? 👀 This Friday (Feb 13th)
Don’t miss this vital conversation focused on lived experiences with curative therapies for sickle cell disease. We’re moving beyond the clinical data to hear what these journeys actually look like from the people who have walked the path.

Get firsthand perspectives on both transplant and gene therapy, engage in honest dialogue, and bring your questions for the Live Q&A.

Register today! Even if you can’t make it live, register to receive event highlights and resources afterward.

🔗 Link to register: sc101.link/CT101M1Reg (also in bio and stories!)