06/24/2026
Yesterday, Eagle's Nest Family Camp began. It is such a rare opportunity for parents and children to bond in the ways that only camp can provide. Singing silly songs together, performing a skit, doing a craft, perhaps even jumping in a lake first thing in the morning... Family Camp is special. Family Camp creates memories.
Thank you to all of our families for creating memories with us!
Photo Credit: Brian Sevald
06/22/2026
In 1937, Snow White taught us all that to clean effectively, it helps to "Whistle While You Work." When tackling the enormous job of cleaning and setting up camp, the staff still takes that notion to heart... Only instead of whistling, we sing loudly... And the subject matter may be about a silly moose, his brother, and some butter. . We are almost ready for you, campers!!!
06/19/2026
Calling all Flint-area families in the bleeding disorders community!
HFM Community Nights are making a stop at the Sloan Museum of Discovery for a night of learning, connection, and hands-on fun. Enjoy a shared meal, educational opportunities for all ages, and special after-hours access to the Discovery Hall and Durant Vehicle Gallery.
đź“… Friday, August 28
⏰ 6:00 – 8:00 pm
Save your spot today: https://hfmich.org/august-28-2026community-night-longway.../
06/18/2026
Genentech is hosting a talk for the Spanish speaking community. Please share with anyone that would benefit.
Genentech organiza una charla para la comunidad de habla hispana. Por favor, compártala con cualquier persona a quien pueda resultar útil.
06/17/2026
Your new best friend might be at BDC. Come experience a community that makes every moment memorable. Don’t miss Orlando this August.
Register today: https://events.bleeding.org
06/17/2026
Let's bounce to Belle Isle on Saturday, August 29th!
Community Member, Claude Moore is achieving an incredible feat... a stretch, if you will. He has created the worlds largest Rubber Band Ball!
This labor of love has been growing in a private storage unit, but will be available for public viewing at a celebration event hosted by Claude. Join us in celebrating this massive achievement!
See the poster below for more details!
06/16/2026
Quest has concluded. Our campers are back home, safe and sound. (And we are willing to bet that their own beds have never felt so good!)
Congratulations to everyone that took on what is arguably our most challenging camp experience. You braved the elements, and bugs. You found water sources, created shelter, cooked on the go, and even infused out on the trail. Campers: you can do ANYTHING!
Photo credits: Brian Sevald Thank you for capturing these moments and for hauling your camera, Brian!
06/13/2026
Next Wednesday, June 17th, will be a Dinner Talk featuring Vaughn Ripley.
Vaughn is a Community Member from Maryland and an inspirational speaker who has experienced a triple-H diagnosis.
This talk is sponsored by Novo Nordisk. HFM will reimburse participating households up to $30 for Dinner.
For more information and to register: https://hfmich.org/june-17-2026save-the-date-for-a-dinner-talk-presented-by-novo-nordisk/
06/11/2026
Next week, our Dinner Talk will feature the story of Vaughn Ripley , a triple-H survivor who has taken a challenging health journey and turned it into one of hope and purpose. Recently, .life created this short film about Vaughn. We hope that you enjoy and take this opportunity to learn.
Our Dinner Talks are often attended by adults young and old, but Vaughn asked us to share that parents should not be shy about inviting their teenagers, young adults and anyone that might benefit from an inspirational message. He is eager to share with all!
To register for the Dinner Talk on Wednesday, June 17th, please visit: https://hfmich.org/june-17-2026save-the-date-for-a-dinner-talk-presented-by-novo-nordisk/
https://www.youtube.com/watch?v=iMb6waFd07o
Wheels for the World: A Journey of Inspiration, Hope, and Resilience
Save One Life proudly presents Wheels for the World: A Journey of Inspiration, Hope, and Resilience.This powerful short documentary follows Vaughn Ripley on ...