Jeavons Syndrome

11/14/2024

This is a new PSA for Jeavons. It is very informational, concise and has the right call to action. Check it out here -

Epilepsy with eyelid myoclonia (EEM), formerly known as Jeavons syndrome, is a type of rare absence epilepsy characterized by a brief but intense and repeate...

09/29/2024

Check out this article recently written about Jeavons -

Lea R. Consensus recommendations on navigating epilepsy with eyelid myoclonia (Jeavons syndrome). Epigraph 2024; 26(4): 9-13.

07/24/2024

Stay tuned for a new paper from Rachel Lea from the International League Against Epilepsy. She is authoring a paper that talks about Jeavons studies and results. It should be out the end of August 2024. Samantha was interviewed for the paper.

The world's preeminent association of health care professionals and scientists working toward a world where no person's life is limited by epilepsy

02/29/2020

Samantha checked into the Cleveland Clinic in Weston, Florida. She is being EEG video monitored for several days to get info about her seizures, meds and if she is a surgery candidate.

10/10/2019

Does anyone with Jeavons’s drive?

11/06/2018

https://www.facebook.com/18586198555/posts/10156854911918556/

DID YOU KNOW...Epilepsy is more common than Parkinson's disease, Multiple Sclerosis, Cerebral Palsy and Autism combined.

10/29/2018

Does anyone have experience with the drug Onfi?

10/13/2018

Does anyone have experience with either a seizure dog or seizure watch?

09/21/2018

Erica Nicole Pegues asked if anyone has a daughter that is around age 13 dealing with Jeavons. Sadly, her daughter is being bullied at school for her eye flutter and would like to talk to some other parents that are maybe dealing with this issue.