Sonny's Patch

Sonny's Patch

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Lawrence "Sonny" Maniscalco, born with a CHD, now recipient of a donor heart. This is currently the ONLY legitimate donation page. Feel free to share this link.

Thank you to everyone for all your support for Lawrence "Sonny" Maniscalco and the rest of our family. For those who don't know his story, Sonny was born with the Congenital Heart Defect (CHD), Hypo-plastic Right Ventricle, this means his lower right chamber of his heart never grew. In his short life he has had many life saving procedures including but not limited to two open heart surgeries. Desp

11/17/2024
07/31/2023

🌸Have a wonderful Monday! šŸ’—

04/29/2022

We are at R1 status for his Biopsy! This shows that isolation and the increased medications are helping! We are still waiting to hear about his Donor-Specific Antibodies, and if those are also good then we have succeeded.
This doesn’t mean we will be returning to school, or going to large gatherings. It just means it’s getting better! ā¤ļøā€šŸ©¹ This week has been a tough one for him, the Cath was for once, not the hardest thing we’ve gone through. This week he took all of his SOL tests at school, he is completing any missing assignments online from his teacher, he gets help from his evening Google classroom Teacher. And when he isn’t learning there, he gets to spend time with me, helping around the house, playing, chatting about this and that…
We have missed out on a lot because of this. But as I’ve said before, this isolation is granting us the gift of Time.

03/19/2022

We are not where we were expecting to be tonight. His biopsy from his procedure yesterday came back R2 which is a moderate amount of rejection. So we are getting some in-hospital IV treatment for the next few days. Boo.

09/28/2021

He’s waking up, slowly, had some juice. The surgeon said his heart looks great and the pressures in his heart are much improved! Now we wait the final 3 of his mandatory 6 hours.

09/28/2021

An hour early for Cath 2021! Technically it’s the second one of this year. He’s not even complaining about having to put on the anesthesia mask today.

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111 Michigan Ave NW
Washington D.C., DC
20010