National Research Center for Parents with Disabilities

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National Research Center for Parents with Disabilities The National Research Center for Parents with Disabilities is a collaborative research and advocacy project that aims to support parents with disabilities.

We are housed at the Lurie Institute for Disability Policy at Brandeis University and collaborate with other institutions, including Northeastern University and Dartmouth University. We combine research expertise and first-hand experience to create a comprehensive resource for a variety of stakeholders, including parents, family members, clinicians, policymakers and disabled parents.

The recording of the National Research Center for Parents with Disabilities’ State of the Science webinar ‘Trainings for...
10/14/2026

The recording of the National Research Center for Parents with Disabilities’ State of the Science webinar ‘Trainings for Professionals & Next Steps’ is now on YouTube!
Dr. Linda Long-Bellil and Dr. Liz Lightfoot share findings on whether training changes how attorneys, social workers, and child welfare workers support parents with disabilities.

Watch the recording: https://youtu.be/E9DXyV1z66c
Access presentation:https://heller.brandeis.edu/parents-with-disabilities/resources/webinars/index.html -2
Watch the Keeping Families Together training referenced in this webinar: https://www.youtube.com/watch?v=rSCkxfHNCK0

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Image description: Quote from presenter Dr. Liz Lightfoot that says “Social workers and child protection workers have very little disability knowledge. They don’t receive training on disability and they hold biases. And these biases can affect how disabled parents get treated if they do get involved in the child protection system.” Icons for ASL and closed captioning are visible, indicating they are available with the recording.

The recording of the National Research Center for Parents with Disabilities' State of the Science webinar 'Policy Overvi...
09/29/2026

The recording of the National Research Center for Parents with Disabilities' State of the Science webinar 'Policy Overview & Next Steps' is now on YouTube!

Watch the recording: https://zurl.co/dskcM
Access presentation: https://zurl.co/sORbl

Image description: Quote from presenter Dr. Robyn Powell that says We know from research that parents with disabilities have 22x higher odds of having their parental rights terminated than nondisabled parents. Icons for ASL and closed captioning are visible, indicating they are available with the recording.

What happens when a parent's disability becomes grounds for losing ...

09/22/2026
Tracking laws that affect parents with disabilities across the US ⚖July 2026 Disability Data Dashboard Map UpdatesBackgr...
09/15/2026

Tracking laws that affect parents with disabilities across the US ⚖
July 2026 Disability Data Dashboard Map Updates

Background 💬
The government is more likely to take children away from disabled parents compared to nondisabled parents. Courts do not always let parents with disabilities live with their children or even visit them. Parents with disabilities are sometimes told they cannot adopt children or be foster parents. Laws affecting parents with disabilities usually come from states. The laws are sometimes different depending on the disability. Laws that take away parental rights are called termination of parental rights (TPR) laws. National laws like Section 504 of the Rehabilitation Act of 1973 and the Americans with Disabilities Act (1990) protect disabled parents. Courts were not enforcing these laws, so advocates fought for new state laws that would protect disabled parents. Some states have passed them. Our maps show if these laws have been introduced, pending, or passed in the 50 states plus the District of Columbia.

Findings & Trends 📈
- Since we last reviewed these laws, Minnesota added a law supporting disabled parents. New Jersey got rid of its discriminatory TPR law that applied to disabled parents.
- It is important to pay attention to both national changes and state-level changes! The number of states with no laws supporting disabled parents stayed the same. But when we examine certain states, we see good and bad progress. One state that had no supporting law before introduced a law. At the same time, another state that introduced a law failed to pass it.
- When you look at the national data, there is a pattern in TPR laws. There are three common disabilities that courts terminate disabled parents' parental rights over. They are intellectual and psychiatric disabilities as well as substance use disorder. Over half of states can take away parental rights because of these disability types. Many states (about one-third) take away parental rights based on these three disability types and no other types.

Read this one-pager online: https://heller.brandeis.edu/parents-with-disabilities/resources/publications/maps/tracking-laws-that-affect-parents-w-disabilities-across-us.html

Explore the maps 🔍
Map of Current State Legislation Supporting Parents with Disabilities: https://heller.brandeis.edu/parents-with-disabilities/map/index.html
Map of State Termination of Parental Rights Laws that Include Parental Disability: https://heller.brandeis.edu/parents-with-disabilities/map-tpr/index.html

To learn more about this topic, attend our webinar this Wednesday with Robyn Powell about the Center's policy work in this area: https://events.zoom.us/ev/ArN3fOQ2e6ALlJPKV02dqGe8WXnMxlS3ZDqrGgLi7Wsh-kQZq1Fn~AjyPrys5moBlbYiWDosc_V01AcSaPCY68_WvoU6Jas2FRNQMFpTe1Rxf5Q

Explore our research on child welfare, family law, and the rights of parents with disabilities: https://heller.brandeis.edu/parents-with-disabilities/resources/publications/child-welfare-family-law-rights/index.html
Utilize our toolkit for advocates and legislators wanting to change these laws: https://heller.brandeis.edu/parents-with-disabilities/resources/toolkits-legislators-and-advocates.html

Image description:
One-pager with information from caption. Two maps are featured in the center of the one-pager. Map one is titled 'Map of State Termination of Parental Rights (TPR) Laws that Include Parental Disability.' A map of the United States showing states with laws that terminate parental rights T P R based on disability. Nine states have no T P R laws based on a parent's disability. This is marked on the map in green. There are 41 states that have T P R laws based on a parent's disability. This is marked on the map in blue. Then, map two is titled 'Map of Current State Legislation Supporting Parents with Disabilities'. A map of the United States showing states with laws that support disabled parents. 23 states have none, this is shown in white. One state has a passed or pending law, this is shown in yellow. Two states have pending laws, this is shown in blue. There are 24 states that have passed a law or laws supporting disabled parents. This is shown in green.

The Heller School for Social Policy and Management at Brandeis University

Seguimiento de las leyes que afectan a las madres y los padres con discapacidades en Estados Unidos ⚖️Actualizaciones de...
09/15/2026

Seguimiento de las leyes que afectan a las madres y los padres con discapacidades en Estados Unidos ⚖️
Actualizaciones del mapa de panel de datos sobre discapacidad de julio de 2026

Información 💬
El gobierno tiene más probabilidades de retirarles la patria potestad a las madres y los padres con discapacidades que a sus pares sin discapacidades. Las cortes no siempre permiten que las madres y los padres con discapacidades vivan con sus hijos o incluso que los visiten. A veces, no se les permite que adopten niños ni que sean madres o padres de crianza temporal. Las leyes que afectan a las madres y los padres con discapacidades suelen proceder de los estados. A veces, las leyes varían dependiendo de la discapacidad. Las leyes que privan a las madres y los padres de sus derechos se denominan leyes de suspensión de la patria potestad (Termination of Parental Rights o TPR). Hay leyes nacionales, como la Sección 504 de la Ley de Rehabilitación de 1973 y la Ley sobre Estadounidenses con Discapacidades de 1990, que protegen a las madres y los padres con discapacidades. Como las cortes no hacían cumplir estas leyes, las organizaciones de defensa lucharon por la aprobación de nuevas leyes estatales que protegieran a las madres y los padres discapacitados. Algunos estados las han aprobado. Nuestros mapas muestran si estas leyes se han presentado, están pendientes o se han aprobado en los 50 estados y el Distrito de Columbia.

Conclusiones y tendencias 📈
- Desde la última vez que revisamos estas leyes, Minnesota ha agregado una ley de apoyo a las madres y los padres discapacitados. Nueva Jersey ha derogado su ley discriminatoria de suspensión de la patria potestad que se aplicaba a las madres y los padres discapacitados.
- Es importante prestar atención los cambios tanto a nivel nacional como regional. El número de estados que no tienen leyes de apoyo a las madres y los padres con discapacidades se ha mantenido sin cambios. Sin embargo, al analizar ciertos estados, observamos avances tanto positivos como negativos. Un estado que antes carecía de legislación de apoyo ha presentado una ley. Al mismo tiempo, otro estado que presentó un proyecto de ley no logró su aprobación.
- Si se analizan los datos a nivel nacional, se observa una tendencia en las leyes de suspensión de la patria potestad. Hay tres discapacidades comunes que las cortes citan como causa para suspenderles la patria potestad a las madres y los padres discapacitados. Son las discapacidades intelectuales y psiquiátricas y los trastornos por uso de sustancias. Más de la mitad de los estados pueden retirar la patria potestad por estos tipos de discapacidad. Muchos estados (alrededor de un tercio) retiran la patria potestad basándose solo en estos tres tipos de discapacidad y en ningún otro.

Lee este documento de una página en línea: https://heller.brandeis.edu/spanish/parents-with-disabilities/resources/publications/maps/tracking-laws-that-affect-parents-w-disabilities-across-us.html

Explora los mapas 🔍
Mapa de la legislación estatal actual que apoya a los padres con discapacidades: https://heller.brandeis.edu/spanish/parents-with-disabilities/map/index.html
Mapa de leyes estatales de suspensión de la patria potestad por motivos que incluyen la discapacidad parental: https://heller.brandeis.edu/spanish/parents-with-disabilities/map-tpr/index.html

Para obtener más información sobre este tema, asiste este miércoles a nuestro seminario web con Robyn Powell, quien hablará sobre el trabajo del Centro en materia de políticas relacionadas con este tema: https://events.zoom.us/ev/ArN3fOQ2e6ALlJPKV02dqGe8WXnMxlS3ZDqrGgLi7Wsh-kQZq1Fn~AjyPrys5moBlbYiWDosc_V01AcSaPCY68_WvoU6Jas2FRNQMFpTe1Rxf5Q

Explora nuestra investigación sobre bienestar infantil, derecho familiar y derechos de las madres y los padres con discapacidades: https://heller.brandeis.edu/spanish/parents-with-disabilities/research/publications/child-welfare-family-law-rights/index.html
y utilice nuestro kit de herramientas para organizaciones de apoyo y defensa y legisladores interesados en cambiar estas leyes: https://heller.brandeis.edu/spanish/parents-with-disabilities/publications/toolkits-legislators-and-advocates.html

Descripciones de las imágenes:
Ficha informativa de una página con la información del pie de foto. En el centro de la ficha aparecen dos mapas. El primer mapa se titula 'Mapa de leyes estatales de suspensión de la patria potestad por motivos que incluyen la discapacidad parental.' Mapa de Estados Unidos que muestra los estados con leyes que les retiran la patria potestad a las madres y los padres por motivos de discapacidad. Hay nueve estados que no tienen leyes de suspensión de la patria potestad por motivos de discapacidad parental. Esto está marcado en verde en el mapa. Hay 41 estados que tienen leyes sobre suspensión de la patria potestad por motivos de discapacidad parental. Esto aparece marcado en azul en el mapa. El segundo mapa se titula 'Mapa de la legislación estatal actual que apoya a los padres con discapacidades.' Mapa de Estados Unidos que muestra los estados que tienen leyes de apoyo a las madres y los padres discapacitados. Hay 23 estados que no tienen ninguna; esto se muestra en blanco. Si un estado tiene una ley aprobada o en trámite, esto se muestra en amarillo. Dos estados tienen proyectos de ley pendientes; esto se muestra en azul. Hay 24 estados que han aprobado una o varias leyes de apoyo a las madres y los padres con discapacidades; esto se muestra en verde.

The Heller School for Social Policy and Management at Brandeis University

The National Research Center for Parents with Disabilities' State of the Science webinar series starts next week! The pr...
09/10/2026

The National Research Center for Parents with Disabilities' State of the Science webinar series starts next week! The presentations will feature our findings from our work over the past five years.

Learn more and register on Zoom: TinyURL.com/StateOfScience2026

About the sessions 💬
Webinar 1: Policy Overview and Next Steps
Dr. Robyn Powell has analyzed the termination of parental rights laws of the fifty states and the District of Columbia, and she has conducted research with parent attorneys to explore the impact of these laws on parents with disabilities. She will share the findings from this research and discuss implications for future research and advocacy efforts. She will then be joined by researcher Nicole Lomerson, Dr. Linda Long-Bellil, and Heather Watkins, an Advisory Board member for the National Research Center for Parents with Disabilities, for a discussion and Q&A session.

Webinar 2: Trainings for Professionals and Next Steps
Drs. Linda Long-Bellil and Liz Lightfoot have developed, implemented, and tested training programs for legal professionals that represent disabled parents in child welfare cases, and social workers that serve disabled parents in child welfare settings, respectively. They will share findings from their research, including future directions for professional training development, implementation, and research. They will then be joined by researcher Nicole Lomerson for a discussion and Q&A session.

Webinar 3: Peer Support Interventions for Disabled Parents
Drs. Kara Ayers and Mike McKee have developed, implemented, and tested peer support interventions for parents with intellectual and developmental disabilities, and parents who are Deaf. The presenters will describe the interventions and provide recommendations for future research and programs related to peer support. They will then be joined by researcher Nicole Lomerson and Dr. Morénike Giwa Onaiwu, an Advisory Board member for the National Research Center for Parents with Disabilities, for a discussion and Q&A session.

Webinar Accessibility ♿
Each webinar will have simultaneous American Sign Language interpretation and English closed captioning. For any other accommodations, please email [email protected] as soon as possible. The webinars will be recorded and made available after the webinar on our website and YouTube channel.

From WBUR 90.9 FM (Boston’s NPR News Station) 📻 A center for people with disabilities is closing. What does that mean fo...
09/01/2026

From WBUR 90.9 FM (Boston’s NPR News Station) 📻 A center for people with disabilities is closing. What does that mean for the people it serves?

“I think people think that these things exist within a silo. One decision that has been made has these consequences. Similar to when you throw out a pebble over a pond. They have far reaching ramifications. So, if I’m not supported as a disabled individual, then it’s hard for me to show up for my family, and then that spirals out and impacts my advocacy work. So, it’s not just those individuals being harmed, it’s an entire community.” - Heather Watkins, Advisory Board member for the National Research Center for Parents with Disabilities

Listen to the recording: https://zurl.co/qQ5QD
📢 Join us in taking action. Spread this information and use our toolkit to talk to your representatives on this issue: https://zurl.co/XTOzc

***
Image descriptions:
1: Logo for WBUR, 90.9 Boston’s NPR News Station. Quote by Heather Watkins, a Black disabled mom with muscular dystrophy, reads: I think people think that these things exist within a silo. One decision that has been made has these consequences. Similar to when you throw out a pebble over a pond. They have far reaching ramifications. So, if I’m not supported as a disabled individual, then it’s hard for me to show up for my family, and then that spirals out and impacts my advocacy work. So, it’s not just those individuals being harmed, it’s an entire community.
2: Text reads: “Take action: Share this post. Use our toolkit to contact your representatives. Donate using the link below. Use our pre-made graphics and alt text to spread the word. Tiny U R L for com forward slash Parenting Center Funding”

NEW Research at a Glance 🔍Disabled parents can face unequal treatment in the child welfare system, with ableism, racism,...
09/01/2026

NEW Research at a Glance 🔍

Disabled parents can face unequal treatment in the child welfare system, with ableism, racism, sexism, and poverty compounding the barriers they experience.

Our latest research brief draws on interviews with 23 child welfare attorneys across the United States to examine how these forms of oppression intersect in child welfare cases.

The findings show how systemic barriers and unequal access to resources can increase scrutiny of disabled parents and contribute to higher rates of child removal and termination of parental rights.

Learn more: https://zurl.co/JAr0r

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Image Description:
1: Cover slide with a photo of a courtroom gavel and columns in the background. Text reads, “‘The system is stacked against them’: Child Welfare Attorneys on Intersectional Oppression and Disabled Parents.” A “Research Brief” label appears above the title.
2: Titled “Disabled parents face unequal treatment.” Text explains that disabled parents are more likely to experience child welfare involvement, including foster care placement and loss of parental rights, due to ableist assumptions. Icons labeled “Disability,” “Race,” and “Poverty” illustrate how overlapping forms of inequality can increase child welfare involvement.
3: Text reads: What did researchers do? Researchers interviewed 23 child welfare attorneys across the United States about their experiences representing disabled parents. They explored how disability intersects with racism, sexism, and poverty in child welfare cases. Infographics explain attorney demographics. 20 out of the 23 attorneys were female. A majority of the attorneys worked for a state or county. Most were from the Northeast (33%) or West (38%).
4: Text reads: Finding #1. The system itself creates barriers. Bias, lack of training, and unequal access to resources make it harder for many disabled parents to succeed. Quote says. When you get the white upper middle class definition of child safety... you’re going to lose a lot of these families.
5: Titled “Finding #2: Oppression compounds harm” with a quote that reads: "The system is stacked against them." Text explains that parents experiencing multiple forms of oppression may face greater scrutiny and less support, while child welfare involvement can create additional stress and barriers. Second title, “Finding #3: Long-term consequences,” is followed by three bullet points explaining the consequences: higher rates of child removal, a greater risk of termination of parental rights, and lasting emotional trauma. A quote reads: “I have never had a white client be TPR’d or had a TPR filed against them.”
6: Titled “What needs to change?” and “Moving toward a fairer system!!” Text presents recommendations for creating a more equitable child welfare system, including updating child welfare policies, providing intersectional training, centering disabled parents’ lived experiences, and investing in anti-poverty supports and accessible services.
7: Final slide presents cover page of the brief with the title that reads: Read the resource on our website to learn more.

NUEVA investigación en breve 🔍 Las madres y padres con discapacidad pueden enfrentar un trato desigual en el sistema de ...
09/01/2026

NUEVA investigación en breve 🔍

Las madres y padres con discapacidad pueden enfrentar un trato desigual en el sistema de bienestar infantil, donde el capacitismo, el racismo, el sexismo y la pobreza pueden agravar las barreras que enfrentan.

Nuestro más reciente informe de investigación se basa en entrevistas con 23 abogados y abogadas especializados en bienestar infantil de todo Estados Unidos para examinar cómo estas formas de opresión se entrecruzan en los casos de bienestar infantil.

Los hallazgos muestran cómo las barreras sistémicas y el acceso desigual a los recursos pueden aumentar el nivel de escrutinio hacia las madres y los padres con discapacidad y contribuir a mayores tasas de separación de sus hijos y a la terminación de sus derechos parentales.

Más información: https://zurl.co/u551y

Descripción de las imágenes:
1: Diapositiva de portada con una foto de un mazo de juez y columnas de un tribunal al fondo. El texto dice: “‘El sistema está en su contra’: Abogados de bienestar infantil hablan sobre la opresión interseccional y las madres y los padres con discapacidad”. Sobre el título aparece la etiqueta “Informe de investigación”.
2: Título: “Las madres y los padres con discapacidad enfrentan un trato desigual”. El texto explica que las madres y los padres con discapacidad tienen una mayor probabilidad de verse involucrados en el servicio de bienestar infantil, lo que puede incluir que sus hijos sean colocados en hogares de acogida y la pérdida de sus derechos parentales, debido a suposiciones capacitistas. Íconos con las etiquetas “Discapacidad”, “Raza” y “Pobreza” ilustran cómo las desigualdades que se superponen pueden aumentar la intervención del servicio de bienestar infantil.
3: El texto dice: “¿Qué hicieron los investigadores?” Los investigadores entrevistaron a 23 abogados y abogadas especializados en bienestar infantil de todo Estados Unidos sobre sus experiencias representando a madres y padres con discapacidad. Examinaron cómo la discapacidad se entrecruza con el racismo, el sexismo y la pobreza en los casos de bienestar infantil. Las infografías presentan información demográfica de los abogados y abogadas. 20 de los 23 abogados eran mujeres. La mayoría trabajaba para el estado o un condado. La mayoría provenía del Noreste (33 %) o del Oeste (38 %).
4: El texto dice: “Hallazgo n.º 1. El propio sistema crea barreras”. Los prejuicios, la falta de capacitación y el acceso desigual a los recursos dificultan que muchas madres y padres con discapacidad tengan resultados favorables. La cita dice: “Cuando se utiliza la definición de seguridad infantil de la población blanca de clase media alta... se va a perder a muchas de estas familias”.
5: Títulos: “Hallazgo n.º 2: La opresión agrava el daño” y “Hallazgo n.º 3: Consecuencias a largo plazo”. El texto explica que las madres y los padres que experimentan múltiples formas de opresión pueden enfrentar un mayor nivel de escrutinio y menos apoyo, mientras que la participación del servicio de bienestar infantil puede generar estrés y barreras adicionales. La diapositiva identifica consecuencias como la separación de los hijos, la terminación de los derechos parentales y el trauma emocional.
6: Títulos: “¿Qué debe cambiar?” y “¡Avanzando hacia un sistema más justo!”. El texto presenta recomendaciones para crear un sistema de bienestar infantil más equitativo, incluyendo actualizar las políticas de bienestar infantil, ofrecer capacitación interseccional, priorizara las experiencias de vida de las madres y los padres con discapacidad e invertir en apoyos contra la pobreza y servicios accesibles.
7: La diapositiva final presenta la portada del informe con el texto: “Acceda al informe completo en nuestro sitio web”.

# BienestarInfantil

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