Barbara Karnes, RN

Barbara Karnes, RN Award-winning hospice pioneer Barbara Karnes, RN, educates families and professionals on dying, grief, and caregiving—changing how the world sees end of life.

Birth and death are the only two universal experiences in the human condition. Most cultures have known and embraced this for centuries. Right now, however, Western thought too often views death as a failure. We are a culture of problem solvers and we tend to think of death as a moment when health failed or doctors failed or the body failed. Real death is an experience that’s hidden from the young, or glossed over with euphemisms that only serve to confuse or frighten children more. Death is not talked about nearly enough in our society. Consequently, most of us are woefully unprepared when a loved one dies. From the emotions to the logistics to the recognition of the signposts of the process, we could all use some instruction. Barbara Karnes is a Registered Nurse and author who noticed, after her experience at the bedside of hundreds of people before they died, that each death she witnessed was following an almost identical script. Each person was going through the same thing. And most families had the same questions. It was after these realizations that Barbara sat down and wrote the Little Blue Book that changed an industry. Gone From My Sight, which takes its name from the poem to which it alludes, has been in print continuously since 1985 and has sold over 40 million copies. It has been co-opted and copied and imitated even as Barbara Karnes continues to publish and travel the world giving lectures. It is the original source. Barbara Karnes has dedicated the last 40 years of her life to the education, care and comforting of dying people and their loved ones, and the most useful things she’s learned along the way have been distilled into her books.

When someone you love stops eating and drinking at the end of life, one of the first questions is often:How much longer ...
09/29/2026

When someone you love stops eating and drinking at the end of life, one of the first questions is often:

How much longer do we have?

There is no exact answer. Every body and every dying process is different.

Understanding what is happening can help us spend less time fearing what comes next and more time simply being present.

Here's more: 16 Days Without Food or Water
https://bkbooks.com/blogs/something-to-think-about/16-days-without-food-or-water?_pos=1&_psq=16+days&_psid=5414f6e74&_ss=e

What happens after a physician tells you that you have a life threatening illness?There are questions to ask, decisions ...
09/23/2026

What happens after a physician tells you that you have a life threatening illness?
There are questions to ask, decisions to make, and conversations to have. Understanding what treatment can and cannot do is part of making informed choices about how you want to live the time you have.
In this week’s blog, I share some of the things I believe are important to consider after receiving a life threatening diagnosis... (Link in comments)

I was at our local farmers market with my family recently, wearing my “People don’t die like they do in the movies” t-sh...
08/31/2026

I was at our local farmers market with my family recently, wearing my “People don’t die like they do in the movies” t-shirt.

I wear it because it starts conversations.

People read it and ask me what the quote means, which gives me an opportunity to talk about dying and what it really looks like.

Sometimes something else happens – people see the booklets pictured on the back of the shirt and recognize them.

“Our family used that booklet when our mom was dying” or “Hospice gave us that little blue book.”

Suddenly we’re talking about a very important time in their life and I get to listen.
We don’t talk about dying enough. Maybe a T-shirt can help change that.

For four days, our T-shirts are 35% off

Sunday, August 30 through Wednesday,
September 2.
Link in caption 🔗
socialworker

Eating...Getting out of bed...Being with other people...These are things we associate with living.But when dementia is a...
08/24/2026

Eating...
Getting out of bed...
Being with other people...
These are things we associate with living.
But when dementia is advanced, our idea of a “good day” may not be the same as theirs.
Maybe a good day is staying in bed with someone quietly sitting beside them.
More thoughts in my blog: Caring for the Alzheimer's Patient (link in comments)

Many of us assume that if treatment is offered, it will lead to a cure. Unfortunately, that isn't always the case.When f...
07/24/2026

Many of us assume that if treatment is offered, it will lead to a cure. Unfortunately, that isn't always the case.

When facing a serious illness, it's important to understand the goal of each treatment being offered. Is it intended to cure the disease, prolong life, or improve comfort and quality of life?

There is no right or wrong choice. The right choice is the one that reflects your values and how you want to live the time you have.

Read this week's blog: Three Choices at the End of Life: Cure, Life-Sustaining, or Comfort Care

When someone you love no longer responds, it can feel frightening. Let me show you the simple, comforting care that stil...
07/15/2026

When someone you love no longer responds, it can feel frightening. Let me show you the simple, comforting care that still matters in the final days before death...
🦋 Blog link in first comment below

Most people are never taught what to do in the final hours before death.Can you touch them?Can you cry?Can children be i...
05/28/2026

Most people are never taught what to do in the final hours before death.

Can you touch them?
Can you cry?
Can children be in the room?
Can music play?
Can the dog lay on the bed?

Yes.

This new blog, I share gentle guidance for creating a meaningful goodbye at the bedside. ❤️

https://bkbooks.com/blogs/something-to-think-about/what-families-need-to-know-in-the-final-hours-before-death

When someone is dying, families often don’t know what to do in the final hours. Barbara Karnes, RN shares gentle guidance for creating a meaningful, sacred goodbye at the bedside.

TOMORROW! TOMORROW! And I can't wait!May 23 at 3pm PT / 6pm ET, I'll be joining director Johanna J. Lunn for a live conv...
05/22/2026

TOMORROW! TOMORROW! And I can't wait!
May 23 at 3pm PT / 6pm ET, I'll be joining director Johanna J. Lunn for a live conversation. We'll reflect on the film, share what we've seen in our own work, and answer your questions directly. Whether you're a caregiver, a clinician, or simply someone who wants to understand what the end of life actually looks like — there's a place for you in this conversation.
Reserve your spot here: https://watch.showandtell.film/watch/aod-may
Your ticket includes:
Access to the film until May 31st
Live conversation with Johanna and me on May 23
Recording of the conversation if you can't join live
Additional interview footage
A special 30% discount on my “End of Life Family Support Bundle”
Ask any questions you have live during the event, or send them in advance to Chelsea at [email protected]. I'll answer as honestly as I know how. When You Die
Reserve your spot here: https://watch.showandtell.film/watch/aod-may

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