Light.Up.Epilepsy

Light.Up.Epilepsy

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Shining a light on epilepsy awareness and those who work to spread understanding of seizure disorders Light Up Epilepsy is sponsored by UCB.

Adverse events and product quality complaints related to a UCB product may be reported via email to [email protected] or by phone to +1-844-599-2273.

05/18/2026

When it comes to epilepsy, support can take many forms–sometimes it even comes with paws. Programs like Canine Assistants show how trained service dogs can offer practical support and added peace of mind for some people living with epilepsy. 🐾

Learn more about this program: https://www.lightupepilepsy.com/ResourcesandSupport/

05/13/2026

Miles shares an inside look at the pre-production journey of Under the Lights and the care it took to shape a story about epilepsy rooted in listening, research, and lived experience. 🎬

Learn more: https://www.lightupepilepsy.com/ArtsandInspiration/

04/30/2026

Where do you find connection? Through local events, a support group, an online community, or a friend who just gets it? 💌 No matter where it starts, connection can help people feel supported, understood, and less alone.

Sign up for updates on upcoming community opportunities and events: https://www.lightupepilepsy.com/Events/

04/27/2026

Families of those living with Dravet syndrome navigate more than seizures–they manage daily routines, advocate for support, and face challenges that often go unseen. 💜 Find resources built to support caregivers every step of the way.

https://www.lightupepilepsy.com/ResourcesandSupport/

04/22/2026

In this behind-the-scenes moment, Miles shares why storytelling is a form of advocacy, helping turn lived experiences into understanding, empathy, and real momentum for change.

Hear from Miles and others who are using their voices to break down stigma and raise awareness of epilepsy. https://www.lightupepilepsy.com/ChangeMakers/

04/17/2026
02/12/2026

Ben–an Emmy Award winner, epilepsy caregiver, and advocate–is using his creative voice to shine a light on epilepsy. Inspired by his family’s journey, his musical “It's All Your Fault, Tyler Price!” celebrates resilience and raises awareness across the epilepsy community.

Meet more inspiring Change Makers here: https://www.lightupepilepsy.com/SignUp/

02/09/2026

When we raise awareness, we create hope. Programs like and AJ’s Law show the power of community and compassion. Let’s keep pushing for progress—because together, so much is possible.

Discover more resources: https://www.lightupepilepsy.com/SignUp

01/28/2026

1 in 26 people will be diagnosed with epilepsy in their lifetime–and every one of their stories matter. We stand with the epilepsy community to raise awareness, break down stigma, and drive change.

Join the movement: https://www.lightupepilepsy.com/SignUp

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