EpilepsyAdvocate is sponsored by UCB, The Epilepsy Company.
Visit us at http://www.epilepsyadvocate.com
Adverse events and product quality complaints related to a UCB product may be reported via e-mail to [email protected] or by phone to +1-844-599-2273. Adverse events and product quality complaints related to a UCB product may be reported via e-mail to [email protected] or by phone to +1-844-599-2273.
12/08/2025
Join us in celebrating AJ, one of our Light Up Epilepsy Change Makers.
From launching AJ’s Law in Georgia - an initiative that ensures seizure action plans and staff training are in place at schools - to raising awareness on a grand scale, AJ is helping create a more informed, inclusive future for the epilepsy community.
Sign up here to explore more educational resources: https://www.lightupepilepsy.com/
11/21/2025
Epilepsy Advocate is now Light Up Epilepsy! Join our Light Up community and stay connected by following the page below.
Welcome to Light Up Epilepsy. We’re on a mission to break stigma, build connection, and celebrate the achievements of those living with epilepsy.
Through our channels and website, we will be sharing stories, sparking conversations, and shining a light on voices across the epilepsy community.
Join us and sign up for resources: https://www.lightupepilepsy.com/
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08/15/2025
Join us at 8am on Saturday, August 16 to support the epilepsy community at the 41st Anniversary of the Magnolia Run and Walk for Epilepsy!
4 Concourse Parkway, Atlanta, GA 30328
05/14/2025
The STARS Study is looking for people with focal or generalized epilepsy (or a combination of the two) with seizures regularly lasting 3 minutes or more. To find out the eligibility criteria, contact a Patient Navigator at +1 470-523-2502, or visit www.starsepilepsystudy.com.
Patient Navigators are healthcare professionals who can help you better understand this clinical study and decide if it may be right for you.
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02/12/2025
Having a seizure action plan is essential to keeping your child safe at school while giving their teachers and school staff the tools they need to respond confidently during a seizure. Not sure where to start? Explore various examples and download helpful templates at www.seizureactionplans.org/sap-examples/. Take steps today to prepare and ensure your child’s safety in the classroom.
02/10/2025
February 10-17 marks Seizure Action Plan Awareness Week, an initiative led by the Seizure Action Plan Coalition in partnership with Epilepsy Alliance America. Did you know that only 30% of individuals living with epilepsy have a seizure action plan in place? Having one ensures better preparedness and empowers both patients and caregivers with clear, consistent guidance on seizure management. Take action today—learn more about creating a plan here: https://seizureactionplans.org/resources/
It’s our favorite time of the year—the 2025 UCB Family Epilepsy Scholarship Program is officially open! 🎉 For over 20 years, UCB has been dedicated to supporting students living with epilepsy or rare epilepsy syndromes, as well as their caregivers, in achieving their educational dreams. Applications are open until March 15, 2025! Apply, explore FAQs, and see past winners at www.ucbepilepsyscholarship.com.
11/13/2024
Last week in honor of , Atlanta’s iconic King and Queen towers shined bright in purple, symbolizing hope and support for everyone affected by . 💜 This powerful display raises awareness and serves as a beacon for a brighter future. Let’s come together to make a difference, increase understanding, and show solidarity with the epilepsy community. Together, we can help create a world where those living with epilepsy feel seen, supported, and empowered.
Join us in supporting the epilepsy community—learn more, get involved, and find resources at www.epilepsyadvocate.com.
Photo Credit: TP
11/11/2024
Congratulations to Julia, one of our Epilepsy Leadership winners for the 2024 UCB Family Epilepsy Scholarship! 🎉
Diagnosed with epilepsy at age 7, along with psychogenic nonepileptic seizures (PNES) and cerebral palsy, this inspiring individual has shown remarkable resilience and dedication. Julia is an aspiring lawyer currently attending the University of Southern California and a powerful advocate for epilepsy and disability rights. From founding "Purple Out" and leading DREAM (Disability Rights Education Activism and Mentoring) to working on the Marriage Equity for Disabled Individuals campaign, she’s been a force for change. A T37 para-athlete, actor, and volunteer, she embodies the message of finding “ability within the disability.” Congratulations, Julia! 🌟
11/04/2024
🎉 Join us this in celebrating Mariah! She is the incredible winner of this year’s $10,000 UCB Family Epilepsy Scholarship, marking the 20th anniversary of this impactful program! 🌟
After her sister’s diagnosis with Lafora disease in 2016, followed by her brother’s diagnosis two years later, Mariah took on a caregiving role at just 16. Her journey has been one of resilience, dedication, and compassion, inspiring her path toward becoming a doctor of osteopathic medicine at Western University of Health Sciences.
Mariah's epilepsy advocacy includes founding a sibling support group, authoring an ICD-10 proposal for Lafora disease, participating in the Lafora Disease Science Symposium, and sharing her family’s story in documentaries and podcasts. She also works with Chelsea’s Hope Lafora Children Research Fund.
Congratulations on this well-deserved award, Mariah! Applications for the 2025 UCB Family Epilepsy Scholarship open early next year, so stay tuned to our upcoming page announcement for your chance to join this legacy.