Gout isn't just "bad toe pain." It's a type of inflammatory arthritis caused by uric acid crystals that build up in your joints. And when a flare hits, it can stop you in your tracks for days or even weeks.
Some people say the pain gets so bad that even a bedsheet touching the joint is unbearable.
Here's the good news. There are treatments that can lower uric acid and calm the inflammation down. Researchers are working on better options too. They just need patients to help.
If you're living with gout, you might be eligible for a clinical study near you. π https://www.patientwing.com/conditions/gout
PatientWing
Learn more about the importance of clinical research and education for the rare disease community. PatientWing helps you find and enroll in clinical trials.
At 21, Rebecca Uhl discovered she had a congenital chest wall condition called pectus excavatum. Her heart was running out of room β and she had no idea.
What followed was surgery at Mayo Clinic, a recovery that tested her, and a mentor who believed in her before she believed in herself. Thirteen years later, Rebecca is a Patient Marketing Executive at PatientWing, spending her days building resources, connecting patients to research, and reminding anyone who will listen that they do not have to figure it out alone.
Her patient experience became her expertise. Read her full story at the link below.
https://www.patientwing.com/stories/from-patient-to-purpose-how-one-diagnosis-shaped-a-career-in-patient-advocacy
Today is Wear Purple Day π and the PatientWing team is showing up for the epilepsy community.
50 million people worldwide live with epilepsy. Many of them are still searching for answers, better treatments, and access to research that could change their lives. That's exactly why we do what we do.
Happy Wear Purple Day to every patient, caregiver, and advocate out there. We see you. π
03/19/2026
In April 2024, Kathy Goebel woke up one morning and noticed her eyes had turned yellow. Within hours, her skin had changed color and she could barely move. "It felt like my body was shutting down," she said.
What followed was weeks of hospitalization, multiple procedures, and a diagnosis she never saw coming: severe sudden-onset autoimmune hepatitis, with advanced liver damage already present.
Kathy's recovery has been a long road, but she has stayed proactive, keeping up with her bloodwork every three months and staying connected to the AIH community. And through all of it, her perspective has stayed grounded: "You don't have to look far to find people facing even greater challenges. That gives you perspective."
Read Kathy's full story here: https://www.patientwing.com/stories/when-everything-changed-overnight-kathy-goebels-sudden-onset-of-autoimmune-hepatitis
This International Women's Day, we asked the women of PatientWing three questions. What does this work mean to you? What advice would you give to a woman earlier in her career? And what does March 8th really mean?
The answers were honest, thoughtful, and worth reading in full. Head to our blog to meet the women behind the mission.
π www.patientwing.com/blog/the-women-of-patientwing-what-international-womens-day-means-to-us
February 28th is Rare Disease Day β a global moment to stand with the 300 million people worldwide living with a rare disease. Many are still searching for a diagnosis, a treatment, or just someone who understands.
At PatientWing, connecting those patients to clinical research is at the heart of everything we do.
Happy Rare Disease Day from our whole team. π
02/27/2026
PatientWing was honored to join Rare Disease Day at the National Institutes of Health (NIH) DC campus alongside patients, advocates, and researchers. It was inspiring to be a part of the meaningful conversations and especially amazing to reconnect with Lindsay Guentzel, whose voice continues to empower many in the rare disease community
Events like these reinforce an important truth: progress in healthcare starts by listening to patients and weβre committed to turning innovation into meaningful impact for the people it is meant to serve.
02/25/2026
With Rare Disease Day just around the corner (February 28), we're proud to spotlight Ruchi Ambike, a patient whose diagnosis became the foundation for something so much bigger.
Ruchi was diagnosed with IgA nephropathy, a rare autoimmune kidney disease, back in 2001. For years, she didn't know enough to ask the right questions. She felt fine, life moved forward, and her disease stayed in the background. Until it couldn't anymore.
After two pregnancies complicated by preeclampsia, a COVID-related decline into stage four kidney disease, and an emotional breaking point in her nephrologist's office, Ruchi found something that changed everything: a room full of people who understood.
Now she's Canada's first IgA Nephropathy Foundation patient ambassador, a national advocate pushing for treatment access and equity, and a powerful reminder that patients deserve more than just a diagnosis name.
Read Ruchi's full story here β https://www.patientwing.com/stories/from-quiet-symptoms-to-collective-strength-how-iga-nephropathy-shaped-ruchi-ambikes-path-to-advocacy
This week's health research highlights:
ποΈ The NIH quietly changed the definition of "clinical trial" β meaning some studies involving humans no longer have to be listed in the public database where patients search for research opportunities π
Researchers just launched a trial for a once-a-week nasal spray designed to protect against multiple respiratory viruses at the same time π¬ 2026 is shaping up to be a big year β major results expected for Alzheimer's, heart disease, a rare kidney disease, and a new eye treatment
Read the full blog here: https://www.patientwing.com/blog/weekly-wing-nih-policy-change-2026-trials
β¨ The Weekly Wing is here! β¨
This week in health research:
π΄ Poor sleep may be linked to 1 in 8 dementia cases π©Ί Personalized breast cancer screening cuts false alarms by up to 23% π§ Exercise, diet, and music therapy may help people living with Alzheimer's 𦴠A bone-building hormone could treat back pain at its source
Read the full blog: patientwing.com/blog/weekly-wing-sleep-dementia-back-pain-research
β¨ The Weekly Wing is here! β¨
New science you may have missed this week:
π§ Scientists found the brain network behind Parkinson's disease. Targeting it could lead to better treatments.
π A study of 100,000+ adults linked ultra-processed foods to a 41% higher risk of lung cancer.
π A new daily pill cut "bad" cholesterol by 60% in people who need more help beyond statins.
ποΈ Nearly 40% of cancer cases worldwide are linked to preventable causes like smoking, infections, and alcohol.
Science keeps moving forward, one discovery at a time. π
Read the full blog β https://www.patientwing.com/blog/the-weekly-wing-parkinsons-brain-network-ultra-processed-foods-cancer-cholesterol-pill
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