Autism Support Group of St. Croix Valley

Come meet other people who “get it”.

Make new friends & share resources in a safe, JUDGEMENT-FREE zone!

Hope to see you!

Reminder we have our NR Area support group tomorrow 6:30-8PM at Mitchell’s Cocktail Company!

Yay for May!

Have questions about support groups?
Comment below if you want us to reach out 🙂

It’s not “labeling” - it’s giving an answer to a question of “why”. Having an autism assessment can help people understand themselves better. An autism diagnosis can provide a person with clarity and access to support. It’s also important for accessing help with school resources.

Here’s a helpful article by Dr. Liz Angoff that provides tips for talking to your child about their autism diagnosis.

How to Explain Autism to Kids How to explain autism to kids

Regression and burnout are real challenges autistic adults face when they are stretched too thin. Here are some signs to watch for from The Neurodivergent Poet.
This month we are sharing content from various pages we recommend you follow!

autistic regression and burnout in adults can look like⬇️

◾️ Being unable to go places by yourself

◾️ Being unable to drive

◾️experiencing perimenopause or menopause •editing to add• these can make autism hard to mask, it makes autistic traits prominent.

◾️Slowly becoming unable to cook full balanced meals, starting to rely on ready made or easy to make meals because of this loss of skill

◾️All signs of depression, anxiety, paranoia can become increasingly prominent during autistic regression and burnout.

◾️You might have children that are diagnosed with Autism. Many parents experience self discovery of their diagnosis through relating to a lot of what their children experience and some clinicians even tell you that it’s genetic in the education given at the time of diagnosis.

◾️Forgetting to eat, or being unable to eat from overstimulation.

◾️An increased need for sameness that becomes pervasive and pathological in nature

◾️Feeling the need to use accommodating devices like headphones or sunglasses - especially while grocery shopping. Forgetting can make you feel physically ill or even in a full blown panic attack by the time the activity or task is done.

◾️Emotional outbursts that stem directly from overstimulation from lights, sounds, too many people, food not tasting or feeling good, being touched too much, overwhelming smells.

◾️Depending on fast food, food delivery services, spending extra for services that allow you to avoid doing the task or have the least minimal social interaction to get the task done - (cleaning services, laundry services, etc)
Even if it’s at an unreasonable price.

◾️Cleaning and organizing become tasks that seem unimaginable to tackle. With children, the need for it is constant and your body starts struggling to keep up with this demand with no support.

◾️Never wearing uncomfortable clothes no matter how Adam Sandler you look

◾️Change in speech - (I cannot speak like I used to. I stutter a lot now.)

◾️Talking a lot less, or even having verbal shutdowns where you can’t speak at all (especially during periods of overstimulation) unless it’s to communicate or play with your children.

◾️Depending more on your partner to help complete tasks for the family

◾️Withdrawing from family / friend gatherings early - or ceasing to attend at all.

◾️Slowly starting to neglect your own hygiene - while focusing all of your energy on maintaining your children’s

◾️Slowly becoming less and less tolerant, and getting overstimulated more easily when it comes to the “normal sounds” of adulthood/motherhood.

◾️Stimming more frequently out of intense need for regulation

◾️Extracurricular activities become harder and harder to get through without having a meltdown or panic attack

Late in life Autism diagnosis for adults are starting to become common because of increased awareness, research and acceptance.

Autistic regression and burnout in an adult looks different, especially if you also have autistic children with unique needs too.

If you’ve read all of these and can relate - you may also feel intense shame regarding your loss of skill.

People around you may have started criticizing you.

The reality is there are little to no resources for autistic parents or adults in regression. (I will post any sources i do have below and if you can add to it please do!)

Regression and burnout can last for years if changes aren’t put in place to accommodate the disabled person.

Many who are unsupported lose their livelihoods, and their families, and may turn to substance use to cope resulting inevitably in even more severe issues

Many of them do not know they are autistic due to the lack of awareness and knowledge during their childhood, or told they “grew out” of their diagnosis so they never felt a need to prepare them in any other way.

You are always enough, just as you are.

You are not broken.

You just need someone to see you and understand where you need help and how to help you.

Autistic regressions can happen at any age - and having the knowledge of what is happening to your body vs receiving aimless shame will result in less severe mental health crisis incidents.

The blame belongs on the world and this insidious system. Not you.

Hang in there 🫂 im going through this too and so many others are. You aren’t alone

**disclaimer**

these are my personal experiences, i was diagnosed at 31 with level 1 autism and combined type ADHD - I just wanted to share my raw experiences that started affecting me way before my official diagnosis. I’m still working on climbing out of this rut too 💔💔💔

Registration is free!

Join us to explore PDA (Pathological Demand Avoidance) and its impact on children's everyday lives.
Registration: https://tinyurl.com/2wkvfrpc
April 29, 2026 | 12-1 PM

Amen!

Three little birds hit the nail on the head with this one!

We will be there tomorrow! 5:30PM - 7PM

Our friend Gene will be giving a free presentation on ABLE accounts!

Join us for a Transition Fair!

We’re hosting a free resource fair to support families of high school students with disabilities as they prepare for life after high school Open to all families in St. Croix and Pierce Counties.

When: Tuesday, April 21
Time: 5–7 pm (drop in anytime)
Optional parent mixer: 5–5:30 pm
Where: River Falls High School Library Media Center
818 Cemetery Road, River Falls

Connect with local organizations that support students and adults with disabilities, including:
• Project SEARCH
• Aging and Disability Resource Center
• Vocational Rehabilitation (DVR)
…and more!

Guest Speaker: Gene LaRock (Special Needs Planning)

No registration required.

Questions? Contact [email protected]

Autism is a spectrum. A big spectrum. Some people with autism go on to live VERY independently, but we should always remember that about 30% of people on the spectrum cannot.

Autism Awareness & Acceptance Month holds a lot of different emotions for the parents and caregivers.

I am in awe of all of the amazing acts of advocacy I get to witness on a daily basis from BOTH autistic individuals AND caregivers!

Self-advocacy is a privilege that people with profound autism don’t have.

My son can’t go to Washington and meet with legislators.

My son can’t make TikTok videos about how autism affects his life.

My son can’t write a blog or create a page about profound autism.

My son can’t argue in the comment sections about symbols or labels or whether autism is an identity trend or a disability.

My son can’t do a TED talk praising autism as a superpower.

My teenage son depends on me completely for all aspects of his life. To keep him safe from danger, like running into traffic and touching a hot stove. To bathe, dress him and prepare his meals. And that doesn’t end at 18. All of that will continue when he becomes an adult. Guardianship will be required to allow me to make all of his medical and financial decisions for him, because he will be unable to do that for himself.

He also depends on me to advocate for him. Because his autism matters too. He’s part of the 27% of the autism population who will need 24/7 care for life, and it’s important to me that I bring awareness to this portion of the spectrum because he cannot.

If you’re able to advocate for yourself, it’s something to truly value—because not everyone has that ability.

Autism Awareness Month - Profound Autism