WVU Mountain State Cystic Fibrosis Center

08/06/2026

WVU Mountain State CF Center is currently hiring for positions of Registered Dietitian & Clinical Nurse Coordinator for the outpatient clinic setting. Please see WVU Medicine Careers site for more information.

07/17/2026

Important information regarding the air quality levels!

Smoke from the Canadian wildfires is affecting air quality in many communities. Even though the fires are hundreds of miles away, the smoke can make it harder for children with asthma and other lung conditions to breathe.

If your child has asthma, cystic fibrosis, chronic lung disease, or another respiratory condition, here are a few ways to help protect them:

🌫️ Check your local Air Quality Index (AQI) each day and avoid outdoor activities when air quality is unhealthy.
💙 Continue giving daily controller medications as prescribed, and always keep rescue inhalers nearby.
🏠 Keep windows and doors closed when smoke levels are high. If available, use a HEPA air purifier to help improve indoor air quality.
😷 If older children must be outside for an extended period during heavy smoke, a well-fitting N95 or KN95 mask may help reduce smoke exposure. Cloth masks do not effectively filter wildfire smoke particles.
⚠️ Contact your child's healthcare provider if they have a persistent cough, wheezing, trouble breathing, or need their rescue medication more often than outlined in their asthma action plan.

Stay informed, be prepared, and take action when air quality is poor.

07/02/2026

Please remember to hydrate and increase your salt intake! 💜

05/13/2026

Have you taken, or are you currently taking, a cystic fibrosis modulator like Kalydeco, Orkambi, Symdeko, Trikafta, or Alyftrek? Join the next CF Circle, a virtual small-group discussion, on May 19 at 7 p.m. ET to talk openly about physical and mental health changes that may have come with modulators.

CF Circles are a space to share, support each other, and hear from people who understand what you’re going through. This session is open to adults with cystic fibrosis.

Save your seat: https://on.cff.org/CF-Circles-May-2026

05/12/2026

What an incredible day for the cystic fibrosis community. This past weekend we celebrated the Great Strides walk!! Thank you to every single person who attended, donated, volunteered, supported, shared, laughed, and showed up for our Great Strides walk! Your generosity, kindness, and support mean more than words can say. Because of you, we are helping bring hope, awareness, and support to those affected by Cystic Fibrosis.

05/02/2026

Just ONE WEEK away from our Erie & Morgantown Great Strides walks!

Erie Great Strides
Saturday, May 9 | Presque Isle - Beach
🔗Register: fundraise.cff.org/Erie2026

Morgantown Great Strides
Saturday, May 9 | Hazel Ruby McQuain Park
🔗Register: fundraise.cff.org/Morgantown2026

Great Strides brings our community together to support people living with cystic fibrosis and help move us closer to a cure. Whether you’re joining for the first time or coming back again, now’s the moment to start making an impact!

03/06/2026

Joining a clinical trial takes time and effort, but your participation makes a difference for everyone with cystic fibrosis. Thanks to clinical trial volunteers, we’ve achieved incredible breakthroughs in CF treatment.

Use the CF Clinical Trial Finder to explore enrolling clinical trials today.

02/24/2026

All apparel for this fundraiser is custom made by Dee’s Craft Barn, LLC in Bruceton Mills, WV. Styles are available in heather gray (sport gray/ash) or black depending on garment type. T-Shirts (Adult): Gildan Softstyle — Black (100% cotton) or Sport Gray (90/10 cotton/poly). T-Shirts (Youth): G...

02/13/2026

MERCH ORDER FORM IS LIVE! ALL PROCEEDS BENEFIT THE CF FOUNDATION!💜

*all items will be available for pick up at the Great Strides Walk on May 9; or you can contact our center to arrange other pick up options!

All apparel for this fundraiser is custom made by Dee’s Craft Barn, LLC in Bruceton Mills, WV. Styles are available in heather gray (sport gray/ash) or black depending on garment type. T-Shirts (Adult): Gildan Softstyle — Black (100% cotton) or Sport Gray (90/10 cotton/poly). T-Shirts (Youth): G...