Hey family ❤️ I want to clear something up:
A lot of people are saying “sickle cell funding stopped.”
From what’s been officially reported, the main federal sickle cell programs are still funded in 2026 — including support connected to treatment programs, newborn screening follow-up, and data collection.
What is happening is that other broader public health funding has been messy (pauses/reviews/cuts in some areas), and that can make it feel like everything got shut down.
🗣️ What matters for patients in 2026:
• More push for better access to care
• More states working on Medicaid pathways for advanced sickle cell treatments
If you’re a warrior or caregiver:
✅ Ask your hematologist what options you qualify for
✅ If you’re on Medicaid, ask your plan about sickle cell treatment coverage + referrals
We deserve truth, stability, and care — not panic posts. ❤️
Super Moms Fighting Sickle Cell Corp.
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Dedicate advocacy for mothers who carry the sickle cell disease. Non-profit organization for mothers who carry Sickle Cell Disease or trait.
Super Mom's is a community advocacy for women with children and sickle cell disease.
Vamp life..
Because you all play a huge part in this too.. We all have a job in this and you all lack compassion a lot of the time..
I'm not always being mean just truthful and straight forward..
Bypass my colorful words (I do talk like a sailor at times) and just listen to the message..
Over on TikTok it's looking real bad and we all look bad due to it..
If you can dance in the hospital you should be going home...
# sicklecellawareness
Click my link in my bio for the links to the vibration plate and the compression wraps..
I never run straight to the hospital, the hospital is rarely on my list of things to do...
Learn to tolerate SOME levels of pain, do everything you can BEFORE choosing the hospital..
Dear sickle cell...
Because you’ll never understand a chronic illness..
what type of person do you think you would be? Let me know.
Family and friends...
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