05/24/2026
There’s a kind of fear that sits underneath special needs parenting.
Not always loud.
Not always spoken about.
But always there.
It’s there when you’re filling out forms.
It’s there when you’re fighting for funding, support, inclusion, safety, understanding.
It’s there when you’re explaining your child for the hundredth time to someone who still doesn’t quite get it.
And then late at night, when the house is finally quiet, the bigger fear creeps in.
What happens when I’m not here to do this anymore?
Who will fight this hard?
Who will know what they need?
Who will protect them?
Who will see the beautiful parts underneath the behaviours, communication differences, support needs and overwhelm?
This is the weight so many special needs parents carry.
Not because we’re dramatic.
Because we’re thinking 10, 20, 50 years ahead.
And if you’ve never had to think about that…
please don’t pity us.
Be thankful. 🤍
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Who else lies awake thinking about the future no one else wants to talk about?
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