CHES Foundation, Inc.

09/25/2026

A fantastic production being viewed and re-visited by Girls Bleed Too. Followed by interaction with Isabelle and Kim, two of the films featured contributors - join them and GBT for a critical conversation happening in the women's space. 💜♀

On October 8, we're screening Dismissed.

It's a documentary about women and girls with bleeding disorders and what it takes to be believed. If you've ever been told your bleeding was normal and weren't sure it was, you'll recognize a lot of it.

After the film, Isabelle Capsel and Kim Hernandez — two of the women featured in it — join us live for a conversation and open Q&A. You'll be able to ask them anything.

Wednesday, October 8 · 8 PM ET · Free Online
Can't make it live? Register anyway and we'll send you the replay.

Your camera and mic stay off the whole time, so you can watch privately.

Reserve your spot: https://girlsbleedtoo.org/events

09/22/2026

We have had the honor and privilege to be working with GutMonkey since 2015 when the Leverage program was first pioneered for adults affected by an inhibitor. Over ten years later their unwavering support of our programs couldn't be more appreciated 💜 We look forward to the next program together with them and the next InhibitCon!

09/21/2026

🎶 𝙏𝙝𝙚 𝙢𝙪𝙨𝙞𝙘 𝙞𝙨 𝙨𝙩𝙞𝙡𝙡 𝙥𝙡𝙖𝙮𝙞𝙣𝙜 𝙞𝙣 𝙤𝙪𝙧 𝙝𝙚𝙖𝙙𝙨 𝙖 𝙬𝙚𝙚𝙠 𝙡𝙖𝙩𝙚𝙧! 🎷

A weekend filled with everything you could imagine! Amazing speakers, enlightening educational content, engaging activities and the BEST attendees that rock the inhibitor community!

Without our 𝗣𝗹𝗮𝘁𝗶𝗻𝘂𝗺 𝗦𝗽𝗼𝗻𝘀𝗼𝗿 Biologics, this annual national inhibitor conference would not be possible nor exist. We thank them profusely for being the shining light in the inhibitor community!

Diamond Sponsor: Sanofi
Gold Sponsor: Novo Nordisk
Silver Sponsors: Genentech & Pfizer

09/18/2026

𝗜𝗻𝗵𝗶𝗯𝗶𝘁𝗖𝗼𝗻 𝟮𝟬𝟮𝟲 𝘄𝗮𝘀 𝗮 𝘄𝗶𝗹𝗱 𝗿𝗶𝗱𝗲! 🎢 It may be over for this year but it certainly is leaving a lifelong impression on ALL of us! We're swinging our focus now to One Drop in Tampa, November 13-15 for the Ultra-Rare Community!

We have added additional spots to One Drop for adults to bring a caregiver, spouse, significant other or immediate family member. If you have an Ultra-Rare bleeding disorder and haven't signed up yet, get to it! Acceptance phase begins next week!

Find more in this Digital Digest and how to signup for One Drop Here ➡️ https://ches.education/newsblog/2026/bdnews9-18-pillars-onedrop-f7study

09/18/2026

09/15/2026

A medical education session you don't want to miss!

"A Lifetime of Bleeding: Inherited Platelet Disorders in Women.” This important conversation will shine a light on the unique challenges women face with inherited platelet disorders and the importance of recognition, support, and informed care throughout every stage of life. Together, we can help raise awareness and ensure women with bleeding disorders feel seen, heard, and supported.

There's still time to register! Join RUNX1 and FWGBD this Thursday (9/17) at 2:00 PM ET for a special Webinar - A Lifetime of Bleeding: Inherited Platelet Disorders in Women. Learn more and register for this no-cost CME program here: https://us02web.zoom.us/webinar/register/7117841356201/WN_cEzFFndGQ0-Nz43Wg96B5w?blm_aid=0 #/registration

09/05/2026

𝙄𝙨 𝙞𝙩 𝙉'𝘼𝙬𝙡𝙞𝙣𝙨 𝙤𝙧 𝙉'𝙚𝙧𝙡𝙞𝙣𝙨? 𝙒𝙚𝙡𝙡 𝙩𝙝𝙖𝙩'𝙨 𝙬𝙝𝙚𝙧𝙚 𝙬𝙚'𝙧𝙚 𝙝𝙚𝙖𝙙𝙚𝙙 𝙣𝙚𝙭𝙩 𝙬𝙚𝙚𝙠!

September is here and the kids are back in school here in New England. It's always a bit wild to us that other parts of the country are already behind a desk by mid-August!

Catch up on our Digital Digest here ➡️ https://ches.education/newsblog/2026/bdnews9-4-nola-inhathn-fx

Heathers back in the drivers seat expanding on my message in the last Digital Digest. We have a line up ⚾️ in this weeks edition including a key ATHN study relating to inhibitors and a special Factor 10 webinar happening on Sept 17!

09/03/2026

🎨 ꜰXᴘʀᴇꜱꜱɪᴏɴꜱ - ꜰᴏʀ ᴏᴜʀ ᴜʟᴛʀᴀ ʀᴀʀᴇ 🔟 ꜰᴀᴄᴛᴏʀ 10'ꜱ! 𝗧𝘄𝗼 𝗪𝗲𝗲𝗸𝘀 𝗔𝘄𝗮𝘆!

Living with Factor X means carrying one of the rarest bleeding disorders largely without a roadmap, and often, without anyone nearby who truly gets it.

All our upcoming webinars are in one place! ↪ https://ches.education/webinars

Join CHES and Bri Beck, LCPC, ATR-BC, for some creative reflection time, and an open group discussion, we'll explore what it means to live with Factor X not just medically, but emotionally, and the quiet power of being truly understood by someone who has lived it too.

08/28/2026

𝗨𝗹𝘁𝗿𝗮-𝗿𝗮𝗿𝗲 𝗱𝗼𝗲𝘀𝗻’𝘁 𝗺𝗲𝗮𝗻 𝘂𝗻𝘀𝗲𝗲𝗻. 𝗜𝘁 𝗺𝗲𝗮𝗻𝘀 𝗲𝘅𝘁𝗿𝗮𝗼𝗿𝗱𝗶𝗻𝗮𝗿𝘆. 💙

https://ches.education/one-drop-registration

One Drop is proud to welcome the incredible community living with ultra-rare factor deficiencies—including FId, FIId, FVd, FVIId, FXd, FXId & FXIII—and ultra-rare platelet deficiencies, including Glanzmann’s Thrombasthenia and Platelet Disorders.

This medical conference is more than a gathering—it’s a chance to connect, learn, be heard, and shine a light on conditions that affect few, yet impact lives so deeply.

Huge shout out to our Diamond Sponsor: Novo Nordisk 💎

Your rarity is your strength. Your voice matters. Your community is here. 🩸✨

One Drop welcomes those living with all ultra-rare factor deficiencies (including FId, FIId, FVd, FVIId, FXd, FXId & FXIII), and ultra-rare platelet deficiencies (including Glanzmann’s Thrombasthenia and Platelet Disorders.)

08/25/2026

🩸Oɴᴇ Dʀᴏᴘ ᴀᴘᴘʟɪᴄᴀᴛɪᴏɴꜱ ᴀʀᴇ ᴏᴘᴇɴɪɴɢ ɪɴ ᴀ ᴄᴏᴜᴘʟᴇ ᴅᴀʏꜱ! 2️⃣7️⃣

Want to know more about all the ULTRA rare factor deficiencies? You may say, wow I've never heard of that one! Odds are that if you are in our community, you probably have 😉 but learning more will always solidify the saying that knowledge is power! 🦾

https://youtu.be/EdQKRxJFwRc 🎥

Dr. Brian Branchford from Versiti covered the factors at this past One Drop. Ultra-rare factor disorders can make diagnosis, care, and treatment feel overwhelming. This educational session helps patients and families build the knowledge and skills they need to better understand their diagnosis, advocate for their care, and support a better quality of life. Watch the video and empower yourself with knowledge.