07/28/2019
Hi All- it's been a while!
A classmate, Kris Moysenko's daughter has a VERY RARE condition, called PURA. Read more here: https://www.purasyndrome.org
We have set up a page and are holding a fundraiser on November 9th . We hope you can join us! More details will be here: https://www.facebook.com/jasminespurajourney/
If your company would like to donate services or items to be auctioned off, please email us!
[email protected]
Thank you- WE ARE BG!!
Welcome to the PURA Syndrome Foundation. PURA syndrome is a rare, recently discovered genetic condition, caused through alterations within the PURA gene.