Baby Remy Strong

Today seems to be a little bit better for Remy. He still has his moment of uncomfortable crying but not as bad. He still isn't sleeping well, and naps are still bare minimum. He is eating more today so that is fantastic. He goes back to Duke on Tuesday. He will be semi put to sleep for brain scans, simply because he doesn't lay still anymore and holding him down is no longer an option. We fear of hurting him if we do. He is a strong little dude. Then he will go to his immune testing shortly after that appointment! I will keep everyone updated as time goes on.

Today is a good day for our Remy boo! He is actually working really hard on some of his therapy session. He has learned to get on his knees to sit. That is his favorite position to sit now! He is all smiles and laughs. He is doing his way of talking. Today his word is MAMA!!!! And I'm in love with his voice. He goes back in a week for his routine therapy session, where we will try to learn more and work in what he already has been working on. He now can blow kisses and clap his hands when he wants!!! Go little rock star!

Remy wasn't a happy as we would had wanted for his session today, but he sure worked for his snacks 🤣 He will be seen every week for 8 weeks, then it's up in the air. Go little rock star !!!

PT went okay for Remy. He wasn't very happy today but managed to push on for his session. He can't really put weight on his legs like they would want. If he does, he locks his knees before falling, and we're worried that will end up hurting him if he falls the wrong way. He still can not move his head to the left like he should be doing. When he tries to use his left side he has to hold one hand on the floor to balance. That has to change before his gets to the point he cant use his left side anymore. He will continue weekly PT for another 8 weeks since there was not much change. We will see if he has improved or not. Depending on the out come, that will determine the course of his sessions. He is a very strong little man though! I know he will make MORE miracles along his journey. ❤️❤️