Down with the Winkleman's

10/30/2023

Had a wonderful time at my cousins baby shower today celebrating her little boo!!!! We brought home this adorable cake pop that my other cousin, made! Gracie tried to eat this about 20x while taking this photo🤣

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10/24/2023

Grace got her cape!! We absolutely love it! Thank you to everyone who donated and thank you to Tiny Super Heroes for making these amazing capes for our littlest super heroes.


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10/17/2023

🎉🎉🎉She's officially crawling🎉🎉🎉

Huge shout out to our amazing PT and DI team who work this girl out each week and support Grace so wonderfully❤


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08/11/2023

Hi! Grace was just nominated to join the TinySuperheroes Squad and receive their Official Cape! We are sharing our Cape Campaign to see how many Capes we can sponsor for other kids! If you can pitch in or share the link, that would be awesome! Thank you!

06/26/2023

A little late posting....our sweet girl turned 7 months old a few days ago!!!! She's a rock star at all her doctors appointments and therapy sessions. She's almost sitting on her own and literally wants to just stand up and run. She's total light in all our lives. We couldn't be happier and more thankful for our precious gift from God❤

06/13/2023

This is incredible when you consider how vocal our girl is ❤

**COPIED**
Did you know?
The average person uses 72.52 microvolts of energy to initiate voice production, but individuals with Down syndrome need to use 131.57 microvolts - it takes almost twice as much effort for a person living with Down syndrome to obtain the same result as it does for us. {study link at the bottom of this post}

Think how difficult vocal interaction may prove to be when speaking with someone who does not have the same difficulty.

A person who struggles in this way will often times be dismissed, even if they have something relevant to say.

As they are overlooked time & time again, this may cause the individual to become shy & insecure in conversation.

Now, put yourself in their place.

I believe that you would over time become discouraged from ever trying to contribute your own thoughts & ideas.

Staying quiet & just listening would seem much easier, wouldn’t it?

We as a society can change this!

When conversing with a person living with Down syndrome remember, be patient, allow the individual to process what is being said & give ample time to answer.

Don’t answer for them or dismiss them thinking they have nothing relevant to add.

https://library.down-syndrome.org/en-us/research-practice/02/3/voice-people-down-syndrome-emg-biofeedback/?fbclid=IwAR3BJCZmyLUfCsw5Uv38Ns2ILAogsZ-PyBIG-nLohPzvxVoaBy7E44TvAxA

04/25/2023

Check out this extra cool rocking an extra chromosome!!! Thank you Barbie for this beautiful doll 💙💛

Barbie Fashionistas Doll # 208, Doll with Down Syndrome Wearing Floral Dress, Created in Partnership with The National Down Syndrome Society https://a.co/d/6qLGDRD

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Barbie Fashionistas celebrate diversity and offer endless possibilities for storytelling and fashion exploration. With this inclusive range of dolls, kids can see how fun it is to express personality through style! They're an ideal gift for fashion-loving kids everywhere. Each sold separately, su...

04/19/2023

We have a verdict....Grace loves solids more than formula. I knew she was a hungry girl 😋

04/12/2023

UPDATE ON GRACE:

We received a phone call late last week from Grace's neurologist....they wanted to give us the news before the weekend.
Grace's EEG and Head Ultrasound were both NORMAL!!!!! 🙌🏻Praise Jesus🙌🏻
Thank you all so much for the prayers. We are so thankful for this amazing news❤

03/30/2023

Baby girl is ready for her 2 hour EEG. She's got on her comfiest outfit, her favorite lovie and some soft cozy blankets to make sure she is prepared for the most important nap of her life so far. If we don't have a good EEG today then our only other option would be a 3-5 day stay in the children's hospital for observation.

We're praying that if there's anything to see that it's seen today. We're praying that the odd jerking movements and arching she's doing is done during this EEG so the doctor can tell if it's a seizure caused by Infantile Spasms (which her older sister suffered from as a baby) or if it's Sandifer Syndrome caused by GERD. We pray it's the latter.

We trust God. We believe in prayer.

Hear my prayer, O Lord, Give ear to my supplications! Answer me in Your faithfulness, in Your righteousness!
Psalms 143:1