02/06/2022
This is why we need to think about where we put our money and activist dollars; Autism Speaks does not help actually autistic people individuals and their families.
This is important for parents of nonspeaking children to read and process. 👇👇👇
This week, I advocated in front of Virginia House of Delegates for my nonspeaking child, his peers, and their teachers. I didn't realize I would be going up agains Autism Speaks and Council of Autism Service Providers - CASP. 🤔
HB 1047 was a MODEST but meaningful bill that would protect nonspeaking students in Virginia by ensuring that -
1) a student's need for AAC (Augmentative and Alternative Communication) wouldn't be used as a reason to segregate that student,
2) school staff would receive training to support their student BEFORE school starts,
3) IQ test results wouldn't be used to deny access to AAC.
These are basic protections already put in place by IDEA, but they don't happen. 💯
This is why the bill was brought forth... because nonspeaking students are segregated at an alarming rate and many aren't even offered AAC.
When I went to speak in favor of this very modest bill, I was joined by several others, including Virginia Education Association, because our teachers WANT training to support their nonspeaking students!
After we spoke, Autism Speaks and CASP (a lobbyist for ABA companies) gave nearly identical testimonies about their "concerns for the bill's language." 🤬 I will put links in the comments.
Anyway, the bill is dead now and won't be voted on this year. 💔
So before you "light it up blue" this April, just remember that Autism Speaks advocated AGAINST protections for my son, his nonspeaking peers, and their teachers in Virginia this week.
And be sure to keep this disgustingly wealthy company in mind as you navigate the IEP process, and as you fight for services and inclusion. 😒
💜 ~ Meghan