Raising awareness for POTS

05/06/2026

03/01/2026

01/25/2026

🔥 Just published: A new paper by Dr. Blitshteyn and Dr. Grubb in the Journal of Psychosomatic Research where the authors emphasized, based on their experience and expertise, that distress in patients with POTS are driven predominantly by ineffective healthcare and not patients' attitude. This paper was in response to a UK study that suggested that patients with POTS need to be treated with cognitive-behavioral therapy because they were distressed. As a counterpoint to the study's conclusion, Dr. Blitshteyn and Dr. Grubb argued that there is a great need to treat patients with POTS with medications targeted to reduce autonomic symptoms, which then results in reduced disability and distress.

Read full paper here: 👇
https://t.co/xFnY0QGhPr

10/30/2025

Interesting article about an immune component studied in EDS:

Published in ImmunoHorizons, this additional research provides yet another fresh biological insight into hypermobile Ehlers–Danlos syndrome (hEDS), the most common but least understood form of EDS. HEDS is a multi system condition leading to dozens of comorbid conditions. This study found clear ma...

10/17/2025

10/02/2025

https://www.facebook.com/share/p/175RfNuNZg/?mibextid=wwXIfr

10/01/2025

The mighty Niagara Falls will roar in 💙turquoise💙 tonight to help us kick off , from 10:15pm-10:30pm Eastern.

View the lighting at https://www.niagarafallslive.com/niagara_falls_webcam.htm

Did you know Dysautonomia International launched the first Dysautonomia Awareness Month on the day we launched our organization to the public, 14 years ago today! Today we celebrate all of volunteers and advocates around the world who have worked so hard over these past 14 years to make dysautonomia well-known, to help people get diagnosed faster, and to help others know they are not alone on this journey. While Niagara Falls is impressive, together, we are louder and stronger than the mighty Niagara Falls!

12/14/2024

Many forms of dysautonomia, including POTS, affect kids and teenagers, many of whom are athletic. After being diagnosed with POTS, one of the most difficult things for me to do was start to play sports again. Since exercise can be an effective treatment for dysautonomia symptoms, playing sports may be helpful for dysautonomia patients. Here are some tips for playing sports with dysautonomia! 🩵🩵🩵

12/11/2024

Symptoms of POTS can affect many different systems of the body. This is because the autonomic nervous system controls almost every system of the body in some way. These are just some of the symptoms that can be caused by POTS.

11/15/2024

On TikTok and elsewhere, people with chronic illnesses say their symptoms seem to worsen when falls rolls around. Here's what experts have to say about the 'October Slide.'

10/28/2024

Thank you to everyone who met up at Mayo Clinic Jacksonville to watch the Mayo Clinic sign light up turquoise for Dysautonomia Awareness Month!! 🩵🩵🩵