09/22/2026
For a lot of disability parents, the hard days aren’t because of the disability itself. They’re because of the equipment, equipment that changes lives for the better and that we’re genuinely grateful for. But the upkeep is real, and it’s rarely talked about.
It’s the feeding tube alarm with no flow in, no flow out, the sound that strikes fear in the hearts of disability parents everywhere. (Love you, Infinity pump, but can we get together and pick a different sound already?)
It’s the wheelchair upkeep, the AAC mounting options, arm braces, AFOs, safety beds, insurance, adaptive utensils, drinking solutions, therapies, school, IEPs. On and on and on.
Most of us would do this every single day, without question, for our kids. But it wears on you in ways people don’t always see.
If you’re carrying this too, I see you. And school teams, when a family seems stretched thin, the equipment may have already had a rough morning. A little grace goes a long way.
So many tabs open. Be kind to disability parents. We’re tired in a way that’s hard to explain. 💛
What piece of equipment tests your patience the most? 👇