The Duchenne Registry

re a common goal to increase the community’s ability to help one another through improved communication, and by doing so, to help the millions of people affected by Duchenne and Becker muscular dystrophy. The information provided on DuchenneConnect has been developed with the review, direction and advice from a group of experts in Duchenne and Becker muscular dystrophy. Advisors contribute to DuchenneConnect in many areas including reviewing educational materials, providing programmatic direction, advising on processes and procedures, and facilitating opportunities for outreach and collaboration. The operations team behind this incredible resource continues to refine and perfect the site so that it evolves to best serve the needs of the entire community. We are open to your suggestions and feedback.