To spread awareness Ehler's Danlos syndrome, Postural Orthostatic Syncope, and Mast Cell Activation to educate and fight for a cure for the "Zebra" disease.
We work with families on school plans that help our Zebra Children. We are officially approved by the IRS as a 501(c)3 non-for-profit organization. The organization was founded because the founder Clara Lemarr was diagnosed with Ehler's-Danlos Syndrome and she wanted an avenue available to help other people navigate through this disorder. It's a difficult road, and there are not many options. Ther
11/03/2025
Living with hEDS means finding little things that make a big difference 💪 Which of these products helps you the most with your pain or daily symptoms? Share your must-haves below and let’s help each other out 💜
03/28/2025
Congrats William!
We are so proud of you for battling through the battle to make your dreams come true.
C2C DRAFT ALERT I William Lemarr
We are excited to introduce William Lemarr, an elite skating defender playing out of Owatonna, MN from the Minnesota Made Under Armor AA team and the Owatonna Huskies Association team.
Will's advanced skating skills and speed, mixed with his high hockey IQ make him a beast as a defense player protecting his goalie and turning the puck around for his team make him an asset to his team.
Will is 12 years old and shoots left.
His work and dedication over the last few years have raised him to higher levels on and off the ice. When he is not on the ice with his team, he is often found practicing drills in his driveway on rollerblades or working towards crushing the summer shot challenge numbers with an impressive 40,000+ shots. You will never see Will without a hockey stick nearby.
This drive helped him to be one of the top defense scorers for his group for the season on his association team and was the overall top Summer Shot Challenge winner with an impressive 43,000+ practice shots over the summer. He will continue to grow and impress those around him.
Congratulations and welcome aboard, Will!
🔸🔸🔸🔸🔸🔸🔸🔸🔸🔸
Is your player ready to join the next generation of hockey stars?
Explore the elite opportunities Coast 2 Coast has to offer:
🔸Showcase Teams:
Compete in premier tournaments across North America and Europe.
🔸Skill Development & ID Prospect Camps:
Designed for birth years 2009–2017, these camps are the ultimate way to accelerate growth.
🔸Coast 2 Coast International Cup:
Be part of our world-class tournament this June in Kelowna, BC. for birth years 2011-2016.
🔥 Elevate your game.
Accelerate your development.
Click the link in our bio or the links below to apply today, and we’ll be in touch with more details!
Showcase Teams
👉 bit.ly/C2Celiteteams2025
Coast 2 Coast Player Development
👉 www.coast2coastpd.com
12/14/2024
This mysterious disease affects millions – why isn’t the medical profession paying more attention? | CNN Hypermobile Ehlers-Danlos syndrome is a connective tissue disorder. When Sarah Lazarus’ daughter was diagnosed with it, she discovered that the majority of cases are going undiagnosed for decades.
07/13/2024
The trifecta.
01/20/2024
The New Ulm Sleepy Eye Youth Hockey Association Sq**rt B’s Hockey Minnesota Hockey Fights Cancer Day is today!
We start at Sleepy Eye at 12:00pm and then our big ceremony will be held tonight at New Ulm vs Worthington starting 6:00pm.
We are hoping everyone can attend! If you have a loved one you would like to have a poster made for-there is no fee, just message me their name and I’ll make sure one is put up. ❤️
Here is the link to donate if you would like to do so
Support New Ulm Sleepy Eye Sq**rt B - Minnesota Hockey Fights Cancer 2023-2024 We are proud to participate in the 2023-2024 Minnesota Hockey Fights Cancer Campaign! Please support us with a donation. Every dollar counts! Thank you.
Hi everyone, we are looking for POTS specialists in the Twin Cities area that can get an emergent case seen ASAP? Does anyone have any suggestions or can anyone help?
12/06/2023
We are so excited that January 20, 2024 our Sq**rt B will be hosting the Minnesota Hockey Fights Cancer game for New Ulm Sleepy Eye Youth Hockey Association our fundraising goal is $1,000.
https://charity.pledgeit.org/f/7abDhehKPw.
Support New Ulm Sleepy Eye Sq**rt B - Minnesota Hockey Fights Cancer 2023-2024 We are proud to participate in the 2023-2024 Minnesota Hockey Fights Cancer Campaign! Please support us with a donation. Every dollar counts! Thank you.
Hey fellow EDSers-does anyone have a EDS/POTS Dr that they trust in the Boston area? We know of a newly diagnosed individual that’s looking for Drs for help in that area.
Thanks!
Update: Docs are trying to figure out what is happening, but as of now there’s no update. Please pray for this young lady and her family. This is a tough situation to be in, and the illnesses these kids suffer with because of EDS, POTS, MCAS, it just is heart wrenching. Please keep praying.
Please prayer warriors: We just found out that one of our Zebra Camp Alumni suffered a brain injury and is in a coma. Please prayer for her and her family at this time.
07/26/2025