Heidi-CRNA SN-Momof3

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Heidi-CRNA SN-Momof3 CRNA and mom to a girl and twin boys with Down Syndrome.

10/21/2026

What is trisomy 18 and what does it look like? Trisomy 18 (Edwards syndrome) is often talked about in statistics—but behind every diagnosis is a child and a family. This video breaks down what it is, what causes it, what it looks like, and what life expectancy really means—with honesty and compassion. Education matters. Language matters. People matter. 🤍

10/20/2026

Regression is not a typical part of Down syndrome—and dismissing it costs families time and kids skills. Awareness saves outcomes. 💙

10/20/2026

I didn’t know if this moment would ever come for him. And today… it did. They didn’t just ask Nicholas to prom. They showed up for him. They made him feel seen, wanted, and included. This is why representation matters. This is why kindness matters. This is why how we raise our kids matters. If this made your heart stop for a second too… please share it. 💙 **video posted with permission**

10/20/2026

“You look tired.” Well, I AM. 😂 Special needs parenting comes with an invisible workload that most people never see. The appointments, the advocacy, the paperwork, the constant vigilance, the sleepless nights, and the worry about a future we can’t always control. We love our children beyond words. But love doesn’t magically eliminate exhaustion. And sometimes we don’t need another compliment about how strong we are. We need support, understanding, and a BREAK. ❤️ Special needs parents, what part of the mental load is hardest for you?

10/20/2026

My mom heart is so happy. One of those things you wonder will ever happen. These girls showed up for him and show true kindness!! My heart is full!!

10/19/2026

Many kids with Down syndrome can feel cold — but they may not sense it or communicate it the same way. If your child never says “I’m cold,” you’re not imagining things. Save this guide and trust your instincts. 💙 Cold Sensitivity & Down Syndrome A Parent■Friendly Guide Can children with Down syndrome feel cold? Yes — children with Down syndrome can feel cold. However, many experience differences in how their body recognizes, processes, or responds to temperature changes. This means they may not notice they are cold right away or may not communicate it clearly. Why this can happen Many children with Down syndrome have sensory processing differences. Low muscle tone and circulation differences can also affect how the body produces and maintains warmth. Together, these factors can cause a child to become cold faster while reacting later. What parents often notice ● Playing outside in cold weather without complaining ● Cold hands, feet, or ears ● Not asking for a coat or jacket ● Fatigue, irritability, or quiet behavior instead of saying “I’m cold” Parent Guide: What helps ● Dress proactively using layers, even if your child says they feel fine ● Always protect hands, feet, and ears in cooler temperatures ● Check skin temperature instead of waiting for verbal cues ● Use routines, such as putting a coat on before going outside ● Watch behavior changes, not just words Remember: If your child doesn’t say they’re cold, it doesn’t mean they’re comfortable. Trust your instincts — # # # # #

10/19/2026

Living with a rare kidney disease can feel isolating—but we know we’re not alone. We’re sharing our journey with IgA nephropathy in hopes of finding others who understand, learning from this community, and opening the door to connection, support, and awareness. Thank you for being here and holding space for our family. 💙

10/19/2026

Disability rights don’t disappear overnight — they erode quietly. Funding, services, and protections are being debated right now, and families deserve to know what’s at stake. Follow for clear, parent-friendly disability news 🤍

10/18/2026

“We JUST sat on the potty!” 😩 If you’ve said this while cleaning up an accident, you’re not alone. Potty training with Down syndrome or autism can involve body signals, sensory needs, muscle tone, communication, and constipation. Every child has a different combination of challenges—and understanding theirs helps us support them. You can be exhausted and still be a wonderful parent. Your child’s progress doesn’t have an expiration date. 💛 What’s hardest in your house: sitting, pooping, or knowing when to go? Save this and share with someone who needs a little understanding.

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Floyds K***s, IN
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