Life with Butters

Life with Butters Butters was diagnosed with Asperger's Syndrome when he was 3.5 then obstructive hydrocephalus at age Also follow me on twitter

Butters was diagnosed with Asperger's Syndrome when he was 3.5 then obstructive hydrocephalus at age 5. Here I talk about how we deal with his form of Autism and hydrocephalus and the highs and lows that go with it.

1st day of senior year! He's most excited to meet the new freshman on the baseball team and taking intro to law. He only...
09/04/2024

1st day of senior year! He's most excited to meet the new freshman on the baseball team and taking intro to law. He only has one modified class this year which is amazing.

High school. It used to seem so far away but now as a junior he's at the best place for him. In his IEP there was so muc...
03/23/2024

High school. It used to seem so far away but now as a junior he's at the best place for him. In his IEP there was so much progress since last year that I wanted to cry.

Now this. His class ring. Only a year and a half before he walks across the stage to graduate.

11 years. He's come along way and is still showing no signs of his ETV closing up.
04/21/2023

11 years. He's come along way and is still showing no signs of his ETV closing up.

06/18/2022

He said he's retiring from Miracle league after this year and here was his speech.

06/18/2022

Last week of miracle league baseball

When a few months ago the opportunity came opportunity came up to have Alvin act as an assistant manager with the varsit...
05/27/2022

When a few months ago the opportunity came opportunity came up to have Alvin act as an assistant manager with the varsity baseball team we were excited but also very worried. We've been conditioned to hope for the best and expect the worst.

What came of that opportunity was far more than we ever expected. After a week he was traveling to away games with the team.He arrived on site to each game excited and not wanting his parents anywhere around! He talked about his friends which has rarely ever happened.They even went as far as to surprise him on his birthday which was a complete shock.

This morning amongst so much of the chaos getting this email was was one of the best things I've seen. For a kid who wasn't even able to play coach pitch before getting bullied off of the team to now letter with the baseball team in high school is the best thing.

Is this 100% proves that inclusion works!

I still remember that first Miracle League game where he was scared to step on the field. How he held onto his dad and p...
03/16/2022

I still remember that first Miracle League game where he was scared to step on the field. How he held onto his dad and pleaded for us to not make him go out there.

Now you can't get him off of the field. He's learning how to take stats in the dugout. He got his sweatshirt today and I don't think he could be any happier.

03/15/2022

I typically dread getting calls from school about Alvin. After being bullied twice in middle school there's always the concern of what happened and is he OK.

Almost a year into high school and all I'm hearing in phone calls and IEP meetings are good things.

Yesterday's game was rained out and it has now been rescheduled for tomorrow. I just got a call from one of his teachers. She took it upon herself to introduce him to the captain of the baseball team today. He is also one of the main starting pitchers and a senior. She said they talked for a bit and Alvin's conversation with him was amazing. He asked more about his job with the team and was told the team is excited to have him. He doesn't know it yet but they have even gone as far as to get him a baseball sweatshirt to wear it tomorrow's game so that he can be official.

More to come tomorrow.

Last week in his 1st high school IEP meeting i got to talk to the administration about him getting involved with sports...
03/14/2022

Last week in his 1st high school IEP meeting i got to talk to the administration about him getting involved with sports. After some back and forth today is the 1st game he gets to help the baseball team as an assistant manager

He insists on shaving his own head but still needs some help cleaning out up. Luckily his sister is always willing to he...
12/26/2021

He insists on shaving his own head but still needs some help cleaning out up. Luckily his sister is always willing to help. For reference he is now 5'8" tall and she is 5'4". They drive each other crazy but I know for a fact that his sister would do anything to help him.

09/20/2021

I don't know who needed this more today?! Even Madi got into the action and is now in the process of learning to be a buddy.

No more denying it. 9th grade/ high school is about to start. Spent about an hour learning how to navigate between 4 bui...
08/31/2021

No more denying it. 9th grade/ high school is about to start. Spent about an hour learning how to navigate between 4 buildings and met the assistant principal in charge of special education and athletics. He is going to help Alvin get integrated into a couple of the sports teams by going to games and doing statics for the teams. Very scary and overwhelming bit he's pretty excited for high school.

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Everett, WA

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