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Denver, CO
Follow Fearne

Diagnosed with a neurodevelopmental disorder caused by a variation to gene GABBR2.

08/30/2026

Getting back in her stander after a few days off when she’s just not been herself. We aim for Fearne to her daily targeted training practice but it’s easy for life to get on the way. Fearne seemed to have been a little unwell earlier this week so we just worked on keeping her happy and comfortable with time standing taking a back seat. Happy Fearne, happy house

08/28/2026

Stick 'n' Step ✨ We are so pleased with all the progress Fearne has made this year. Being comfortable and pain free has allowed her to develop physically and socially as well, interacting more with the children and grown-ups around her and keeping her body still for longer periods, whether in lying, sitting or standing. 😊

We have continued practising a variety of positions on the Galileo and Fearne is now able to sit independently for longer periods. She is also able to maintain high-kneeling as well as standing with a bit of support at the hips. During the last few sessions of the year we have also started practising taking steps with 2 persons’ support, one from the back and one from the front, and this is something we will be building on next year. 💪

Well done Fearne! 👏❤️

08/22/2026

Fearne has not been herself today, unsettled periods and a few naps. Her sleep hasn’t been great these last few days so she could just be catching up but now she’s finally in bed, I’m too tense to sleep

08/18/2026

Searching for newts and toads. We’ve never been lucky enough to spot anything but we visit throughout the year and remain hopeful

08/17/2026

Working so hard on her standing and reaching and not complaining at all. If she’s not interested in the toy she quickly drops it to keep us on our toes

08/16/2026

We were in our local supermarket a few days ago, Fearne who’s been suffering with her recurrent stomach issues was uncomfortable in her buggy and struggling with dystonic limb spasms and was writhing a bit. She often enjoys being in a supermarkets, something about the environment calms her down. In this instance she wasn’t relaxing so we’d separated from Big Sis to speed things up. As we were making our way round, two girls of a similar age to Fearne’s sister, so 10ish, noticed Fearne and started sharing glances and smirking at Fearne’s appearance. I was equally angry and upset, the only saving grace was that Big Sis didn’t witness it. I’m used to her being stared at and have perfected a big smile or a stare right back but this just seemed so mean. They were just kids but where does the lack of acceptance come from? The world can feel so cruel

08/14/2026

Fearne loved going out for tea tonight and then getting a swing with Big Sis. We rarely go out on an evening and I was anxious because Fearne hadn’t been great today (we even considered ordering everything separately in case she didn’t cope and we needed to leave) but we all had a lovely time and can’t wait to do it again

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Denver, CO
80202-4214

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