National Scleroderma Foundation Tri-State Chapter

08/19/2026

🩵Join us September 19th at the Connecticut Walk in memory of Melissa Marquis in New Britain CT

https://events.scleroderma.org/event/somelissamarquisct2026

08/14/2026

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, September 2, 2026

Time: 7:00 pm - 8:30 pm EST

Scan the QR code or Register at

https://us02web.zoom.us/j/83612251422

All are welcome! Join us!

08/13/2026

Rochester NY 🩵FREE to attend! IN PERSON

🔬 Hope in Progress: Understanding the Future of Scleroderma Research 💜

👉 Register today: https://gqr.sh/Ebw2

📅 September 12, 2026
⏰ 1:00–3:30 PM
📍 Gates Public Library
902 Elmgrove Road, Rochester, NY 14624

Join us for an afternoon of education and hope as we hear from researchers and clinical research professionals from the University of Rochester about the future of scleroderma research.

Learn more about the science behind scleroderma, clinical trials, and how patient participation in research can help shape new possibilities for the future.

Hear from:
• Roberta Goncalves Marangoni, MD, PhD
• Gayathri “Gaya” Guru Murthy, PhD Candidate
• Layla Wynn, CCRC

Whether you are living with scleroderma, supporting a loved one, or simply want to learn more about where research is headed, we hope you’ll join us!

👉 Register today: https://gqr.sh/Ebw2

08/11/2026

The Buffalo Scleroderma Support Group Meeting is IN PERSON and invite local members to join us on:

Date : Saturday, September 12, 2026 at 11:00 am to 1:00 pm EST
Place: Clearfield Branch Library, 770 Hopkins Road , Williamsville, NY 14221

Please reach out to the Support Group Facilitator, Paulette Reed at [email protected] with any questions.

We hope to see you!

08/11/2026

🔗: https://ow.ly/X9Ls50ZwcZU

The National Scleroderma Foundation partners with Carebox to make finding scleroderma clinical trials easier.

This free, confidential tool lets patients, caregivers, and healthcare professionals create a profile, search for trials, and decide their next steps.

Carebox keeps your information private and puts you in control. Participation is always optional.

08/08/2026

Reminder — Orange County Support Group meeting is this coming Tuesday! There is still time to join us in person, if you are nearby!

The Orange County Support Group Meeting is IN-PERSON and invite local members to join us on

Date : Tuesday, August 11, 2026 at 1:00 pm EST
Place: Josephine-Louise Public Library, 5 Scofield Street, 2nd Floor Community Room, Walden, NY.

Evamarie Cole, Chair of Advocacy and Awareness of the Chapter Advisory Committee, will be videoing in to share her experience at the recent National Scleroderma Conference in Baltimore, MD.

Please reach out to the Support Group Facilitator, Jodi Lynn at [email protected] with any questions. Hope to see you!

08/08/2026

🩵Rochester, NY Spreading Scleroderma Awareness 🩵

Rochester Scleroderma Support Group members are participating in the Jordan Health 6th Annual Front Porch Festival and Health Fair. 12 noon – 4:00 PM. at Baden Park (near the intersection of Hudson Ave. and Upper Falls Blvd.) Rochester, NY

08/05/2026

Join us for the Stepping Out to Cure Scleroderma – Connecticut Walk, held in memory of Melissa Marquis.

📅 Saturday, September 19, 2026
📍 New Britain, Connecticut

https://events.scleroderma.org/event/somelissamarquisct2026

Together, we’ll honor Melissa’s legacy, celebrate the strength of our scleroderma community, and raise critical funds for research, education, support, and awareness. Every step we take brings us closer to a future without scleroderma.

Whether you’re walking in honor of a loved one, living with scleroderma yourself, or simply want to make a difference, we would love to have you join us.

🩵 Register today using the link below and invite your family and friends to walk alongside you!

https://events.scleroderma.org/event/somelissamarquisct2026/home

08/05/2026

Reminder - tonight!
There is still time to register!

The Metro 5 Scleroderma Support Group meeting for NYC Area, Long Island, Bergen County & Northern New Jersey invite you to our Support Group Meeting on

Date: Wednesday, August 5, 2026

Time: 7:00 pm - 8:30 pm EST

Scan the QR code or Register at

https://us02web.zoom.us/meeting/register/IShsQ80EQCKdw79J12wOxg

All are welcome! Join us!

08/03/2026

🔗: https://ow.ly/zaP650ZurM0

No matter where you live or where you are in your journey, there is a support group for you!

We offer a wide range of local and national support groups, both virtual and in person.

These groups bring together people living with scleroderma, caregivers, and loved ones to share experiences, ask questions, and feel less alone.