03/06/2026
Many of you have followed Seanâs journey for years, and so many of you have supported our family in ways we will never forget.
You stood with us as we advocated for therapy coverage, encouraged us through the ups and downs, and even helped make it possible for Sean to have a pool that helps regulate his body. Weâve always felt a lot of love and support for Sean in this space.
Sean will be 18 in September, and as we approach this next stage of life weâre becoming more aware of something many families face. When students leave school or age out of therapy programs (usually between 18â21), families often encounter whatâs called a âservices cliff.â The structured supports that once filled their days begin to disappear. Thankfully Seanâs current clinic is gradually reducing his time over the next 17 months rather than stopping all at once, but it will still be a big transition.
Communication, learning, and meaningful connection shouldnât stop when someone becomes an adult.
Because of that, Kelly and I have been thinking and praying about what the next step could look like. Weâre beginning to develop True North Horizons â a learning community for nonspeaking teens and adults with motor and sensory disabilities who communicate through spelling.
Weâll start small by offering group learning opportunities through our clinic, True North Connect, while exploring partnerships and funding that could help it grow over time.
If Seanâs journey has taught us anything, itâs that meaningful things grow through community. Thank you to everyone who has walked alongside our family over the years. â¤ď¸
đŁIf you know of organizations, partners, or resources that might connect with this vision, we would love to hear from you.