MIT Center for Gynepathology Research

https://cgr.mit.edu/2022/03/21/wbur-segment-discusses-life-with-endometriosis-and-need-for-research/

A recent segment on WBUR’s Radio Boston, called “Two women share what it’s like living with endometriosis,” opens with Boston University student Yaël Krinsky and her father Alvin describing Yaël’s yearslong journey with endometriosis and the toll it has taken on her and their family.

The segment continues with host Tiziana Dearing interviewing CGR Director Linda Griffith about research she and others are doing to learn more and treat this disease. Dr. Griffith explains how millions of people live with the severe pain of endometriosis, but most wait years for a diagnosis. She shares personal stories, including how she (like Krinsky) lived with endometriosis, undiagnosed then inaccurately treated, for years. Dr. Griffith tells listeners why that happens, and the status of research that is helping improve the odds for better diagnosis and treatments of endometriosis in the future.
Listen Here: https://www.wbur.org/radioboston/2022/03/17/living-with-endometriosis
This segment aired on March 17, 2022.

WBUR segment discusses ‘life with endometriosis’ and need for research • The MIT Center for Gynepathology Research EndometriosisNews & Events A recent segment on WBUR’s Radio Boston, called “Two women share what it’s like living with endometriosis,” opens with Boston University student Yaël Krinsky and her father Alvin describing Yaël’s yearslong journey with endometriosis and the toll it has taken o...

S**X and Immunity Event Raises Crucial Questions for Society

Follow the link for a recap of our terrific S**X and Immunity inaugural event at MIT. Experts discussed important questions,
such as “Why are females more likely to survive COVID-19 but at greater risk of developing chronic disease?” and “Historically, why have women and nonbinary people typically been excluded from clinical trials?” and lots more.

S**X and Immunity Event Raises Crucial Questions for Society • The MIT Center for Gynepathology Research News & Events Why are females more likely to survive COVID-19 but at greater risk of developing chronic disease? Historically, why have women and nonbinary people typically been excluded from clinical trials? How do we understand how s*x differences affect everyone? What is the interplay between s*x...

https://cgr.mit.edu/2022/01/07/march-2-is-new-date-for-launch-of-s*xx-and-immunity-series/

March 2 is New Date for Launch of “S**X and Immunity” Series • The MIT Center for Gynepathology Research News & Events It’s Time to Address a Knowledge Gap The X chromosome does more than determine s*x! When we treat biological s*x (XX versus XY chromosomes) as a variable in immunity and diseases, it can lead to a new understanding of the underpinnings of disease. The COVID-19 pandemic helped amplify...

Unexplainable podcast discusses “the mysteries of endometriosis”

The August 18, 2021, episode of Vox Media’s Unexplainable podcast is called “The Mystery of Endometriosis” and features the voices of 14 people discussing their experience with the disease. They share their earliest memories of the condition, the difficulties they had being diagnosed, their frustration when they realized that there was no cure (and, for some, no good treatment options), and the need for more research and funding.
CGR Director Linda Griffith is one of the voices in the podcast. The second half of the episode features a spotlight on Dr. Griffith’s work and the importance of having someone like her – with both personal and academic experience with the disease – in a position to research it. It cites her work to change the definition of endometriosis from “benign” to “common and morbid” as just one example of the ways she can use her breadth of experience to affect change.
Listen Here [link to https://www.vox.com/unexplainable] or wherever you get your podcasts.

Unexplainable Unexplainable is a science podcast from Vox and Vox Media Podcast Network about everything we don’t know. Host Noam Hassenfeld is joined by an array of experts and Vox reporters each week to look at the most fascinating unanswered questions in science and the mind-bending ways scientists are tryin...

https://cgr.mit.edu/2021/06/25/the-conversation-on-representation-in-womens-health/

Too few women inventors is a problem for women’s health • The MIT Center for Gynepathology Research EndometriosisEngineeringNews & Events PHOTO: Inequality has cost women the benefits of thousands of “lost” medical inventions. Ron Levine/Stone via Getty Images CGR Director Linda Griffith is featured in this recent blog by Rem Koning of Harvard Business School. He discusses a recent study showi...

Register for "The Science of Endometriosis" Virtual Event, July 11

Please join MIT's Center for Gynepathology Research (CGR) on Sunday, July 11, 2021, 4 to 5 p.m. (ET), to kick off the virtual series, “The Science of Endometriosis.” MIT’s Linda Griffith and Michigan State University’s Stacey Missmer will lead a lively discussion titled Endometriosis 101 – Clinical Studies. They'll answer questions including, "Why aren’t there more clinical studies, and why don’t we know more about endometriosis?" They’ll also answer selected questions sent by registered attendees.
Details and registration here:
https://lnkd.in/d-iiayD

Join Us for “The Science of Endometriosis” Virtual Event • The MIT Center for Gynepathology Research EndometriosisNews & Events Please join us on Sunday, July 11, 2021, from 4 to 5 p.m. (ET), as we kick off the virtual series, “The Science of Endometriosis.” MIT’s Linda Griffith and Michigan State University’s Stacey Missmer will lead a lively discussion titled Endometriosis 101 – Clinica...

“Griffith’s research and inventions have the potential to improve women’s health dramatically. The problem for women is that she stands out for another reason: She’s female. In 2020, only 12.8% of U.S. inventors receiving patents were women, and historically male researchers have ignored conditions like endometriosis.”

Too few women get to invent – that's a problem for women's health Boosting the number of female inventors isn't just a matter of fairness. Inventions by men are more likely to ignore women's needs.

"I've had a fabulous career in science. It's an amazing career for women." Prof Linda Griffith to Terry Gross, host of NPR's Fresh Air.

Find the full interview wherever you get your podcasts, or by clicking here: http://ow.ly/ruTR50EMgGy

"So I'm a member of several Facebook patient-support groups, and I monitor what people are posting about. So there are comorbidities that you get with endometriosis, and one of them is called Ehlers-Danlos syndrome...
So we're actually studying this in the lab, and it's because people were posting on Facebook groups. And I didn't know what it was, and their posts led me to look into it." Professor Linda Griffith on NPR's Fresh Air.
For full interview, click below or here:

Painful Endometriosis Could Hold Clues To Tissue Regeneration, Scientist Says MIT bioengineer Linda Griffith spent years in debilitating pain before she was diagnosed with a condition often neglected in research. Her focus on the basic biology could lead to better treatments.

NPR’s “Fresh Air” show features interview with CGR Director Linda Griffith

The May 13, 2021 edition of NPR’s Fresh Air show features Terry Gross interviewing CGR Director Linda Griffith. They discuss endometriosis, the important work CGR researchers are doing to understand and address this widespread disease, and how it could hold clues to tissue regeneration.

Listen here (also available as a podcast):

Painful Endometriosis Could Hold Clues To Tissue Regeneration, Scientist Says MIT bioengineer Linda Griffith spent years in debilitating pain before she was diagnosed with a condition often neglected in research. Her focus on the basic biology could lead to better treatments.