NFXF Fragile X of Minnesota Chapter

03/13/2024

The 19th International Conference will be magical!
Scholarship applications close on Friday. The MN chapter is sponsoring scholarship money for this years conference!

The 19th International Fragile X Conference (2024) is happening July 25-28, 2024 at Renaissance Sea World in Orlando.

12/29/2023

Minnesota families - what summer camps do you know that you would recommend other families look into? If you know the camp's website, please place it in the comments.

08/11/2023

Join us as we host Marcia Braden, PhD, Tracy Stackhouse, MA, OTR, and Jeanine Coleman, PhD, for a discussion on educational strategies for success!

11/20/2022

The 2022 challenge is happening! A generous donor has offered to match up to $25,000 for this year's challenge. Please consider making a donation by clicking here:

Your gift today will support the family that learns their child has FXS tomorrow.

07/27/2022

Hey Minnesota! Who's striding for XStrides 2022?
Reminder to post pictures of family and friends striding.

Want to continue helping MN families? Click the link below to make a donation:

XStrides 2022 is here!

06/19/2022

06/12/2022

XStrides 2022 is here! Join the Minnesota Team and let the striding begin!!

XStrides 2022 is here!

04/19/2022

04/13/2022

The FMR1 gene has officially been renamed!

FMR1 now stands for fragile X messenger ribonucleoprotein 1, removing the reference to “mental retardation” which has long been outdated in common vernacular.

At the time of discovery, “mental retardation” was an accepted term for what we now call “intellectual disability”. We know that individuals with Fragile X are more than an intellectual disability, and we are pleased that the new name of the FMR1 gene reflects this.

FMR1 fragile X messenger ribonucleoprotein 1 [Homo sapiens (human)] - Gene - NCBI https://hubs.ly/Q017YY4T0

03/22/2022

NFXF Conference scholarship applications are now open!

Thanks to the generosity of the NFXF Community Support Network chapters, community partners, and private donors, conference scholarships have been made available to assist individuals, families, self-advocates, or siblings who might not otherwise be able to attend the conference due to limited financial resources.

Learn about the different scholarships and apply now at https://hubs.ly/Q015V8Yc0

01/05/2022

Estate planning question: Recommendations needed for fellow Minnesotan families regarding special needs trusts