Project FIND-OUT

FIND-OUT is enrolling families today! 💙

If your infant shows symptoms such as feeding issues, problems with movement or muscle tone, or missed developmental milestones, they may benefit from genetic testing.

Project FIND-OUT offers genetic counseling and testing for infants between 0-12 months old to help families find answers sooner.

Learn more and see if your baby is eligible at https://projectfindout.org/

🩺 Are you a healthcare provider caring for an infant with unexplained developmental concerns?

Project FIND-OUT accepts referrals from healthcare providers for babies ages 0–12 months who may benefit from early genetic testing.

Infants experiencing symptoms such as:
• Low muscle tone
• Feeding difficulties
• Delayed milestones
• Movement concerns
• Seizures

may qualify for participation in our research study focused on early diagnosis of rare genetic neurodevelopmental conditions. 🧬

By referring eligible patients, you can help families access potential answers, supportive resources, and specialized guidance earlier in their diagnostic journey.

📣 Enrollment is currently OPEN across the United States.

Learn more or submit a referral at:
projectfindout.org

⏳ Early answers can make a difference.

For many families, symptoms can appear long before a diagnosis is found. Project FIND-OUT helps connect eligible babies with early genetic testing that may provide answers sooner.

An earlier diagnosis may help families:
💙 Better understand their child’s needs
🩺 Access supportive care sooner
🤝 Connect with specialists and resources faster
🧬 Learn more about possible genetic causes

Enrollment is OPEN for eligible infants ages 3–12 months at projectfindout.org.

👶 Who may qualify for Project FIND-OUT?

Your baby may be eligible if they are between 0–12 months and experiencing symptoms such as:
• Low muscle tone
• Feeding difficulties
• Delayed milestones
• Movement concerns
• Seizures or unusual movements
• Developmental differences without a clear explanation

Project FIND-OUT is designed to help families find answers through early genetic testing and research. 💙🧬

Enrollment is currently OPEN across the U.S. at projectfindout.org.

🧬 Wondering how Project FIND-OUT works?

Our goal is to help identify genetic neurodevelopmental conditions earlier so families can access answers and care sooner. 💙

Enrollment is OPEN for eligible infants ages 0–12 months in the United States. Learn more at: projectfindout.org

When you enroll in Project FIND-OUT, we will support you through every step 💙🧬

After, with your OK, your doctor gets the results and advice on next steps. Getting answers can help your family:

1. get early support and therapy services
2. know what to expect and how to prepare
3. connect with specialists and other families
4. rule out conditions you have been worried about

Enrollment in the project for babies under 1 is open at projectfindout.org!

💙 “This was the best thing that could have happened for us and our daughter.”

Families in Project FIND-OUT are helping uncover answers through early genetic testing and research participation. For many parents, receiving answers can bring clarity, support, and a path forward.

If your baby has unexplained symptoms or developmental concerns, you may be eligible to participate. Enrollment is currently OPEN at projectfindout.org.

Is your baby feeling unusually floppy or stiff? Changes in muscle tone can sometimes be an early sign of an underlying genetic condition.

Babies with low muscle tone (hypotonia) may feel “floppy,” have trouble holding up their head, or seem weak during feeding and movement. Babies with high muscle tone may appear stiff or rigid.

🧬 Early genetic testing may help provide answers sooner. That’s why Project FIND-OUT is working to identify eligible infants ages 0–12 months who may benefit from testing.

If your baby has concerns related to muscle tone, movement, feeding, or development, you may qualify to participate.

Learn more at projectfindout.org and enrollment today. 💙

Project FIND-OUT helps families find answers when babies show symptoms that may be difficult to explain — including feeding concerns, low muscle tone, developmental delays, movement differences, and more.

Early genetic testing can help families better understand their child’s needs and connect to the right care sooner. 💙

Enrollment is OPEN for babies under 12 months across the United States.

Learn more or see if your family may qualify at: projectfindout.org

If your baby has had one or more unprovoked seizures, there may be an underlying genetic cause. Identifying that cause early can help guide treatment, monitoring, and care decisions. Visit projectfindout.org today to enroll and learn more about receiving genetic testing for your baby through Project FIND-OUT!