Xoe’s Extra Love

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Being a mom has consumed my identity, but I'm ready to unearth the person I used to be. I love my kiddos to bits, but I yearn for the day I can reclaim my pre-mom self. When Xoe was born, I thought, 'Goodbye freedom, hello permanent roommate!' But I'm learning to live in the moment and trust that Xoe will spread her wings... eventually. For now I try and enjoy every moment for I know it doesn’t last forever.

Having an extra chromosome may indicate a genetic disorder but it cannot indicate or define one's intellectual capabilities. We mustn't forget that children born with Down Syndrome are much like their peers and possess a wide variety of skills and talents.

Xoe had to go through an evaluation to start preschool and they evaluated her in 3 areas, gross motor, speech, and fine motor. Her strong area was her fine motor and surprisingly we have had very little therapy in that area. All kids no matter their diagnosis excell in different areas.

Crazy kinda sad fact. Less babies are being born with down syndrome due to the advancement of prenatal testing and the ability to terminate. I couldn’t imagine my life without my little girl.

I have been off track for Down syndrome facts. Xoe turned 3 and started preschool!

This mama is overwhelmed.

Fun little fact when I was pregnant with Jaxon blood tests showed a higher than normal (for my age) likelihood that he would have Down syndrome. But during our anatomy scan he had no markers at all. Sometimes I think that was a sign.

There are 3 different forms of Down Syndrome. Do you know what they are?

October is here! It is the first day of Down syndrome awareness month!

I guess I missed it… lol yesterday was Daughter’s day! I am absolutely blessed to have this little lady in my life. I wouldn’t change a thing.

iPhone Users, Tell Siri “Play something I’d love” AND Screen Shot Me What She Plays.

Not a fun start to the Mother’s Day weekend but she is in good hands.

I came across a post on tik tok about a mother who is going through fertility treatment and she had 4 embryos come abnormal and 1 come back positive for Down syndrome and because all were abnormal she didn’t keep them.

I know having a kiddo with Down syndrome isn’t a walk in the park and there are quite a few unknowns but I couldn’t imagine my life without Xoe. But I also know if I was in her situation I probably wouldn’t have kept her either and just that thought is heartbreaking.

Those with kiddos! Check out Kids Bowl FREE! For summer fun! I just signed up my kids. Now to find shoes.

KidsBowlFree.com: All Bowling Centers Sign your children up for 2 free games of bowling all summer long.

Today’s date is super special to us! 3/21 which signifies the uniqueness of the triplication of the 21st chromosome which creates the most amazing babies in the world (Down syndrome)! Ok, maybe I am a little biased. Lol…

When Xoe was born with Down syndrome, we had no clue. At first we were terrified. We knew nobody with Down syndrome. We didn’t know of the possible health concerns. We educated ourselves pretty quick while she was in the hospital. We set up so many appointments with specialists and now after a year and a half we are no longer needing a cardiologist. We still see an endocrinologist, ophthalmologist, and audiologist. But only concerns are her thyroid and for now it is well managed with meds. We definitely aren’t out of the woods yet and honestly we probably never will be, but we take things as they come and enjoy the view while it lasts.

She is the happiest baby and of my 3 she is the easiest! We never could have imagined that we would have gotten so lucky to have such an amazing little lady in our lives but here we are!

Made Xoe a shirt for World Down syndrome day and honestly it looks great and it would work for anyone. I love it! Color is a little off in the picture but you get the idea.

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Today is “National Spread the Word to End the Word day!” THE “R” WORD!!! Look it up, yes it’s a real thing.

This is a word that’s very hard for most to omit from their vocabulary.

You would probably never call this amazing girl re****ed. I sure hope not!!! The word was even banned from medical terminology years ago! It’s not even medically appropriate to call someone mentally re****ed anymore! But when you use the word re****ed, even in a "joking" way or even if you “didn’t mean it like that” or “aren't referring to a person”, it further stigmatizes this girl and countless others, who have the purest of hearts. Not only that, but it’s also used as a synonym for “dumb” or “stupid”. It only reinforces painful stereotypes of people with intellectual disabilities being less valued members of humanity. It is very hurtful to people with intellectual disabilities and those who love someone with an intellectual disability. It hurts because it is exclusive, offensive and derogatory.

So tell me, how did you mean it? If you cannot do anything else for individuals with intellectual or developmental delays, DO THIS: do not use the 'R' word and teach your children to not use it either.

Nails on a chalkboard 🎤🙄

I cannot wait to make these shirts for World Down Syndrome Day!