08/04/2026
We are delighted to invite you to the next webinar in the Wiskott-Aldrich Foundation Education Series for Families:
Life After HSCT or Gene Therapy: Why Long-Term Follow-Up Matters
Speaker: Dr. Susan Prockop
Moderator: Prof. Fabio Candotti
Date: Saturday, August 22, 2026
Time: 11:00 a.m. EDT
Registration: https://forms.gle/gd16ravC5qEHDLoP7
As more children with Wiskott-Aldrich Syndrome undergo hematopoietic stem cell transplantation (HSCT) or gene therapy (GT), we are fortunate to see an increasing number grow into healthy, active adolescents and adults. Although these treatments can be life-changing and curative, lifelong medical follow-up remains an essential part of maintaining good health.
This webinar is designed especially for adolescents ages 16 and older, young adults, and adults who have undergone HSCT or gene therapy. We strongly encourage patients themselves to attend, learn more about their long-term health, and become active participants in their own care.
Parents, caregivers, and other family members are, of course, warmly welcome to join us.
During the webinar, we will discuss:
✨Why lifelong follow-up is important, even when you feel healthy
✨What health concerns may develop years—or even decades—after HSCT or gene therapy
✨What tests and evaluations patients should expect over time
✨How often patients should be seen and which specialists should be involved
✨Whether patients should continue to be followed at a transplant center
✨How adolescents and young adults can successfully transition from pediatric to adult healthcare
✨How patients can become informed and active partners in managing their long-term health
About Our Speaker
Dr. Susan Prockop is Program Director of Clinical and Translational Research, Outpatient Clinic Director of the Hematopoietic Stem Cell Transplant Program, and an Attending Physician at the Dana-Farber/Boston Children’s Cancer and Blood Disorders Center.
She is an internationally recognized leader in hematopoietic stem cell transplantation and cellular therapies for children with inherited disorders, including primary immunodeficiencies such as Wiskott-Aldrich Syndrome. Dr. Prockop has dedicated her career not only to improving transplant outcomes, but also to understanding and managing the long-term health of transplant survivors. Her expertise makes her uniquely qualified to discuss the lifelong care needed after HSCT and gene therapy.
About Our Moderator
Prof. Fabio Candotti is Head of the Service of Immunology and Allergy at Lausanne University Hospital (CHUV) and the University of Lausanne in Switzerland.
An internationally recognized physician-scientist, Prof. Candotti has devoted his career to caring for patients with primary immunodeficiencies, particularly Wiskott-Aldrich Syndrome. His pioneering research has advanced our understanding of WAS and contributed to improvements in both hematopoietic stem cell transplantation and gene therapy. He also serves as Chair of the Wiskott-Aldrich Foundation Medical Advisory Board and has been a trusted advisor to our Foundation and families for many years.
The webinar will be approximately one hour in length, including a live question-and-answer session. During registration, participants will have an opportunity to submit questions in advance for Dr. Prockop and Prof. Candotti.
Whether you are a teenager preparing to take a more active role in your healthcare, an adult who underwent HSCT or gene therapy years ago, or a parent supporting your child through this transition, we hope you will join us for this important and empowering discussion.
We look forward to seeing you online!
Register here: https://forms.gle/gd16ravC5qEHDLoP7
