06/24/2026
Registration is open the webinar on "Autoimmunity in Wiskott-Aldrich Syndrome: The Latest on Autoimmunity and New Management Guidelines."
As part of our 2026 monthly webinar series, the Wiskott-Aldrich Foundation continues to bring leading experts to speak directly with our global community of patients and families. Autoimmune complications affect a significant proportion of individuals with Wiskott-Aldrich Syndrome (WAS) and can have a major impact on quality of life and long-term health outcomes. This webinar will provide an important opportunity to learn about the latest advances in understanding and managing these conditions.
Topic: Autoimmunity in Wiskott-Aldrich Syndrome: The Latest on Autoimmunity and New Management Guidelines.
When: July 25th, 11:00AM-12:00PM EDT via Zoom
Speaker: Prof. Fabio Candotti is Professor of Medicine at the University of Lausanne and Head Physician in Immunology and Allergy at Lausanne University Hospital, Switzerland. An internationally recognized expert in primary immunodeficiencies, his work has focused on Wiskott-Aldrich syndrome, ADA deficiency, immune dysregulation, and gene therapy. He has contributed extensively to understanding the clinical manifestations and management of WAS and has played a key role in the development of the new international management guidelines.
Webinar Focus: Autoimmunity is one of the most common and challenging complications of Wiskott-Aldrich Syndrome. In this session, Prof. Candotti will review the spectrum of autoimmune manifestations seen in WAS, discuss current approaches to diagnosis and treatment, and provide an update on emerging research in the field. The webinar will also highlight key recommendations from the forthcoming international management guidelines and what they may mean for patients, families, and healthcare providers. Attendees will gain a better understanding of how autoimmunity develops in WAS and how evolving treatment strategies may improve outcomes.
To register, please go to: https://forms.gle/DCRTP92FJhvozRnv8 You will receive the Zoom link a few days before the session.
We encourage patients, caregivers, and family members to join this informative session and ask questions. We look forward to seeing many of you there.
05/27/2026
https://www.youtube.com/watch?v=aN4ldCwBnFI
In this episode of Immune Matters (a podcast by Primary Immune Deficiency Treatment Consortium - PIDTC), hosts Jack McDonnell and Elie Haddad speak with Dr. Simon Tabchi, a physician, transplant survivor, and advocate living with a history of Wiskott-Aldrich Syndrome (WAS). Simon shares his childhood diagnosis, bone marrow transplant journey, and how surviving a rare primary immunodeficiency inspired his career in medicine and patient advocacy.
The discussion explores the patient perspective of transplantation, including prolonged isolation, recovery, family impact, and the importance of early treatment. Simon also reflects on how newer options such as gene therapy are expanding hope for families facing WAS today.
The episode concludes with a conversation about survivorship, mentorship, and the value of connecting newly diagnosed families with those who have already walked the path. Simon explains how advocacy can help patients navigate both treatment and life after transplant.
https://www.youtube.com/watch?v=aN4ldCwBnFI
, , , ,
05/15/2026
REMINDER TO REGISTER!
https://forms.gle/jAEB4FjieyPsfDNHA
Management of Wiskott-Aldrich Syndrome is Changing: Understanding Today's Global Guidelines
Date: Saturday, May 23, 2026
Time: 11:00 AM – 12:00 PM EDT
Webinar focus:
In this session, Dr. Albert will provide an overview of how the approach to WAS is evolving, including:
A new classification system for WAS that better reflects disease variability
Updated HSCT guidelines for all patients, including both mild and severe forms of the disease
Management of the untransplanted patient with WAS
New recommendations on which patients should be considered for gene therapy
For the first time, the inclusion of mental health and psychosocial care guidelines as part of comprehensive WAS management
This webinar will help families understand what these changes mean in practice and how they may influence care decisions moving forward.
To register, please go to: https://forms.gle/jAEB4FjieyPsfDNHA
You will receive the Zoom link a few days before the session.
Speaker:
Michael Albert, M.D.: Dr. Albert brings decades of experience in hematopoietic stem cell transplantation and caring for patients with primary immunodeficiencies. He previously served as Head of the Stem Cell Transplant Program in the Department of Pediatric Hematology/Oncology at Dr. von Haunersches Children’s Hospital, where he led clinical and research efforts in Wiskott-Aldrich Syndrome (WAS) and related disorders.
His work has contributed to several influential publications that have shaped the current understanding and treatment approaches for WAS. More recently, Dr. Albert transitioned to DKMS, as Pediatric Stem Cell Transplantation Expert where he is applying his extensive clinical and scientific expertise to support and expand transplant programs globally, with the goal of improving access to curative therapies for patients worldwide.
Moderator:
Prof. Fabio Candotti, Professor of Medicine at the University of Lausanne and Head Physician in Immunology and Allergy at Lausanne University Hospital, Switzerland. An internationally recognized expert in primary immunodeficiencies, his work has focused on Wiskott-Aldrich Syndrome, ADA deficiency, and gene therapy. Dr. Candotti is the Chairman of the Scientific Advisory Board of the Wiskott-Aldrich Foundation and has advised the foundation in all scientific matters for the past 17 years.
We encourage patients, caregivers, and family members to join us for this informative session and the opportunity to ask questions.
Who can attend:
This webinar is designed for and open only to patients, parents, and family members with Wiskott-Aldrich Syndrome and their families (participants should be over 18 years of age).
We hope you will be able to join us for this meaningful conversation.
How Does Registration Work?
Registered participants will receive an email several days before the meeting containing information about joining the meeting. The email will include a link on how to join the meeting and will include phone numbers where you can join by telephone.
Please RSVP by May 22, 2026. If you have specific questions for the doctors, please enter them below. There is no cost to attend.
Register here: https://forms.gle/jAEB4FjieyPsfDNHA
05/07/2026
As part of our 2026 monthly webinar series, the Wiskott-Aldrich Foundation continues to bring leading experts to speak directly with our global community of patients and families. For the May session, we are pleased to host Dr. Michael Albert who has kindly agreed to conduct the webinar on:
Management of Wiskott-Aldrich Syndrome is Changing: Understanding Today's Global Guidelines
This session is especially timely, as there are new global consensus guidelines for Wiskott-Aldrich Syndrome (WAS). These recommendations reflect a significant shift in how WAS is understood and managed—and we are committed to sharing this information early with our community.
Date: Saturday, May 23, 2026
Time: 11:00 AM – 12:00 PM EDT
Webinar focus:
The management of Wiskott-Aldrich Syndrome is undergoing important changes based on global consensus recommendations. Historically, treatment decisions were often guided by a narrower classification of disease severity, with clearer pathways primarily for the most severe cases. Today, a more nuanced understanding of WAS is shaping a broader, more individualized approach to care across the full disease spectrum.
In this session, Dr. Albert will provide an overview of how the approach to WAS is evolving, including:
* A new classification system for WAS that better reflects disease variability
* Updated HSCT guidelines for all patients, including both mild and severe forms of the disease
* Management of the untransplanted patient with WAS
New recommendations on which patients should be considered for gene therapy
* For the first time, the inclusion of mental health and psychosocial care guidelines as part of comprehensive WAS management
This webinar will help families understand what these changes mean in practice and how they may influence care decisions moving forward.
To register, please go to: https://forms.gle/UeycW6EvNbBxsq2ZA
You will receive the Zoom link a few days before the session.
Speaker:
Michael Albert, M.D.: Dr. Albert brings decades of experience in hematopoietic stem cell transplantation and caring for patients with primary immunodeficiencies. He previously served as Head of the Stem Cell Transplant Program in the Department of Pediatric Hematology/Oncology at Dr. von Haunersches Children’s Hospital, where he led clinical and research efforts in Wiskott-Aldrich Syndrome (WAS) and related disorders.
His work has contributed to several influential publications that have shaped the current understanding and treatment approaches for WAS. More recently, Dr. Albert transitioned to DKMS, as Pediatric Stem Cell Transplantation Expert where he is applying his extensive clinical and scientific expertise to support and expand transplant programs globally, with the goal of improving access to curative therapies for patients worldwide.
Moderator:
Prof. Fabio Candotti, Professor of Medicine at the University of Lausanne and Head Physician in Immunology and Allergy at Lausanne University Hospital, Switzerland. An internationally recognized expert in primary immunodeficiencies, his work has focused on Wiskott-Aldrich Syndrome, ADA deficiency, and gene therapy. Dr. Candotti is the Chairman of the Scientific Advisory Board of the Wiskott-Aldrich Foundation and has advised the foundation in all scientific matters for the past 17 years.
We encourage patients, caregivers, and family members to join us for this informative session and the opportunity to ask questions.
Who can attend:
This webinar is designed for and open only to patients, parents, and family members with Wiskott-Aldrich Syndrome and their families (participants should be over 18 years of age).
We hope you will be able to join us for this meaningful conversation.
How Does Registration Work?
Registered participants will receive an email several days before the meeting containing information about joining the meeting. The email will include a link on how to join the meeting and will include phone numbers where you can join by telephone.
Please RSVP by May 20 , 2026. If you have specific questions for the doctors, please enter them on the registration form.
There is no cost to attend.
REGISTER HERE: https://forms.gle/UeycW6EvNbBxsq2ZA
03/28/2026
1 MORE HOUR BEFORE THE WEBINAR BEGINS. FAMILIES, REGISTER NOW AND WE WILL EMAIL THE ZOOM LINK TO YOU.
We are pleased to share that Dr. Lauri Burroughs has kindly agreed to present an educational session on hematopoietic stem cell transplantation (HSCT) for individuals affected by Wiskott-Aldrich Syndrome and their families.
Topic: Hematopoietic Stem Cell Transplantation for Wiskott–Aldrich Syndrome: Current Practice, Recent Advances, and Long-Term Outcomes
Join us for a focused presentation by Dr. Burroughs, moderated by Dr. Fabio Candotti, providing an overview of HSCT as a curative treatment option for Wiskott-Aldrich Syndrome (WAS).
This session will comprehensively discuss when HSCT is considered, how transplant decisions are made, and what patients and families can expect before, during, and after transplant. Drawing on extensive multicenter experience, including work through the Primary Immune Deficiency Treatment Consortium (PIDTC), Dr. Burroughs will review current practices and long-term outcomes for patients with WAS undergoing transplantation.
When: Saturday, March 28th. 11:00 AM- 12:00 PM (EDT)
Speaker: Lauri Burroughs, M.D.
Moderator: Fabio Candotti, M.D.
Who can attend:
Patients with Wiskott-Aldrich syndrome and their families (participants should be over 18 years of age)
Where:
Virtual Zoom
⭐REGISTRATION⭐
Please go to https://forms.gle/M7Nwq5nowHg1rS9R6
There is no cost to attend. You will receive a Zoom link before the meeting.
