02/06/2026
【演講側記｜曾柏嘉 × 感受疾病，感受研究】
4月16 日我們邀請到國立清華大學社會學研究所助理教授曾柏嘉，於雙和校區與醫文所同學們分享他以情感為核心的 HIV 照護研究，帶我們重新思考醫療中「感受」的位置。以下是三位同學的課後心得，歡迎一起閱讀 👇
📝 Lima Mash Liberty Gumilanggeng（碩一學生）
This week’s guest lecture, Dr. Po-Chia Tseng offered a powerful rethinking of HIV care in Taiwan by showing that healthcare is not only biomedical but also emotional. Dr. Tseng traced how, in the 1980s and 1990s HIV was shaped by fear, shame and disgust in media and public discourse. These emotions did not simply reflect personal attitudes, they helped construct HIV positive individuals as social outsiders and many patients became missing from care.
What changed over time was not only treatment but the emotional environment of care. Through affective labor, healthcare providers and case managers built trust, empathy and connection with patients. Counseling, regular contact, and even the design of HIV related service spaces helped patients feel safer and more willing to remain in care. In this way, emotions became part of governance not just private experience.
I had never really thought about healthcare spaces in this way before. The lecture made me realize that trust and emotional connection can be just as important as medicine itself. It made me think that public health is not only about medicine or policy but also about how people are made to feel fear, safety, stigma or belonging.
📝 陳如頤（健康網站編輯/碩二學生）
曾柏嘉博士的演講以Sara Ahmed的「情感經濟」理論為核心，解析情感如何在流動中形塑主客體的界線。在「感受疾病」方面，醫療人員透過傾聽與同理的「情感勞動」，在病患確診的關鍵時刻接住他們，消解了愛滋病患的恐懼，幫助他們重建信任與生命尊嚴。
同時，「感受研究」則強調，研究者自身的情緒與脆弱性並非阻礙，認知源於關懷與脆弱性，這也是深刻認識他者、產生真誠關懷的重要途徑。
這深刻啟發了我對失智症病人善終的反思。失智長者常因記憶退化而深陷恐懼，若照護者能投入情感勞動，以「感受研究」的同理心去接住他們的脆弱，便能溫柔轉化長者「感受疾病」的痛苦體驗。
善終不僅是維持肉體安適，更是透過正向的情感流動重建長者的安全感，讓生命在愛與尊嚴中圓滿告別。
#情感經濟 #感受疾病 #感受研究 #失智症善終
📝 陳品叡（準精神科住院醫師/碩二學生）
曾柏嘉教授的分享「Feeling Disease, Feeling Research」一方面將情感作為分析物與方法介入醫療照護的研究，另一方面則反思自己在研究或倡議的過程中所產生的情緒，其反映了研究主題中存有的污名與權力結構。
曾教授引用Sara Ahmed的情感經濟概念，認為情感並非不證自明而存在，而是在流通中生產；而情感如何被生產、使用、動態地主體化與客體化、「我們」與「他者」如何在流通的過程中浮現，同時也受到權力的部署所影響。
因此他回顧了早期對於HIV的報導與公共論述，到後期的形象呈現與空間營造，可以觀察到從排除到納入治理所採用不同的情感呈現，尤其是醫療照顧的工作者所提供的情感勞動，吸引人們前往、創立長久的連結，其中含有的去客體化與解構的潛力是比知識的授予更能處理人們對於HIV的恐懼。
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