24/10/2025
Health update & current POV
Bed rest continues!
I’m doing fine, alternating exhausted & bored.
Just spoke to my doctor and got a meaningful update 🥳
Short version: Been home 3 weeks, acute intestine inflammation. Treatments continue and thorough examination is ordered, time frame unknown. I keep doing as little as possible until something changes. 🥰
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Long version for those who really want one 😅:
So this is the situation: a
Acute inflammation in my reconstructed lower intestine (most of which was surgically removed due to ulcerative colitis about 25 years ago) The preliminary diagnosis is ”pouchitis”, might be subject to change.
These reconstructed intestines have actually behaved pretty well all these years 🥰 Only 2.5 yrs ago there was a brief period of ulcers/infla
This summer it acted up a bit again & I did 6 weeks of local steroids and also strong antibiotics. Did pretty well.
Just after treatments ended; total stomach crash. Eventually got to emergency care, and back on treatments.
Today marks 3 weeks of mostly bed rest (& toilet breaks 😅) - and numerous phone calls & visits to various doctors to clarify important stuff like:
Who’s in charge of my case?
What treatment are we doing and why?
What tests are we running?
And maybe most important, which body parts do I actually have left since that surgery 25 years ago?
So today finally my local hospital gastro specialist decided that he is in fact in charge 🥳
So yay, I now have a clinic that agrees I belong there.
He’s also now ordering an examination so they can see for themselves what it looks like, which body parts are left and which are gone, and also take new samples et c. 🥳🥳🥳
Meanwhile I’ll do my best to stay in bed or move very gently (today my cosy bed is very reinforcing…), eat tiny portions of super digestible food, and stay hydrated to the best of my abilities.
Hours and hours of endless fun 🤪
So for the foreseeable future, I’ll be home or nearby doing as little as I possibly can. The timeframe is unknown…
to be ctd…
Take care y’all ☺️