The Sudanese Neurogenetic Project

منظمة الصحة العالمية بمناسبة مرور 1000 يوم على الحرب: ثلث المرافق الصحية خارج الخدمة يحرم ملايين السودانيين من خدمات صحية أساسية ومنقذة للحياة

Today in the Webinar series organised by the Genetics Genetics Researchers’ SocietyGenetics Researchers’ Society Society (GRS).

Dr. Ashraf Yahia will join you online on the GRS Telegram channel https://t.me/geneticsresearcherssociety at 20:00 Khartoum time.

If you have any questions please post them on the link below.

https://t.me/geneticsresearcherssociety

See you in 135 minutes!

We continue our journey in introducing you to the in this Webinar series organised by our juniors colleagues in the Genetics Researchers’ Society (GRS).

Next on the series is one of the co-founders of Neurogenetics Sudan (NGS) and an NGS alumni.

Dr. Ashraf Yahia Kambalawi will be with you tomorrow to talk about his journey in genetics, from the great river Nile to the Seine and beyond.

live on the GRS telegram channel (link bellow)

Save the date for tomorrow Thursday 17.10.2022 at 8:00 pm Khartoum time.

If you have any questions to Dr. Ashraf send them in this link:

https://t.me/geneticsresearcherssociety





See you on time!

Yes you are right!

He is the one and only Dr. Ashraf Yahia Kambalawi 🔥

To know why we say the one and only check his profile on research gate: https://www.researchgate.net/profile/Ashraf-Yahia-3/research

Dr. Ashraf will tell us about his journey on Thursday 17.10.2022 at 8:00 pm.

If you have any questions to Dr. Ashraf send them in this link:

https://t.me/geneticsresearcherssociety

Happening now!
Join the session on Telegram and get inspired by Dr Liena's journey to put Sudan on the world map of neurogenetics research. 🌟🌟

Have you ever thought of taking a big step and people told you:" just give up! This is impossible!"

Have you ever dreamt of going big then thought: How come! In Sudan !

Neurogentics in Sudan FROM DREAM TO REALITY

Genetic researchers' society is glad to announce a session with Dr. Liena Elbaghir Omer Elsayed to tell us about her journey in genetics and the journey of neurogenetics in Sudan.

The dream, the plan, the challenges, the present and the future!

Follow the project in research Gate:
https://www.researchgate.net/project/The-Sudanese-Neurogenetic-Project

Remember your dream , prepare your questions and get ready for the session today (27. 10) at 7:00 pm

If you have specific questions to Dr. Liena send them to

https://t.me/B9Bot?start=5318470063

See you all at 7:00 pm!

🔹️Telegram :
https://t.me/geneticsresearcherssociety

Join the GRS interview series where they are interviewing Dr Liena Elbagir, the founder of Neurogenetics Sudan. Save the date 👇

Good evening ~

You are right! She is Dr. Liena Elbaghir Omer Elsayed

🔹 Dr. Liena will be with us on Thursday 27. Oct. at 7:00 pm telling us about her genetics journey.

🔹 If you have any questions to Dr. Liena send them using this link:

https://t.me/geneticsresearcherssociety

Thank you for joining us today on " Road To Clinical Genetics Training in UK "

We would love to hear back from you.
Please complete this short feedback form for your certificate.

https://forms.gle/XByigVxC4FA6m7qf6

Follow us on Facebook or visit our website on http://ngsgroup.org/ for more information about our future sessions.

Interesting sessions are coming soon!

Starting today in one hour at 13:00 Khartoum time, 11:00 London time
"Road To Clinical Genetics Training in UK" by Dr Asma Hamad.

☑️Certificates available after the event.
☑️Meeting link bellow.

For further details, please visit The Sudanese Neurogenetic Project page on Facebook.

🔴Join Zoom Meeting
https://us04web.zoom.us/j/71793561145?pwd=eG1uRHY2UUN4Q2V1bXd4OWdyekwxQT09

Meeting ID: 717 9356 1145
Passcode: 12345

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Neurogenetics Sudan is pleased to welcome Dr. Asma Hamad (ST4 in Clinical Genetics- BWH) to present "Road To Clinical Genetics Training in UK".

Topic: Road to clinical genetics training in UK
Time: Dec 12, 2021 01:00 PM Khartoum

🔴Join Zoom Meeting
https://us04web.zoom.us/j/71793561145?pwd=eG1uRHY2UUN4Q2V1bXd4OWdyekwxQT09

Meeting ID: 717 9356 1145
Passcode: 12345

☑️Certificates available after the event.
☑️Save the date! Meeting link bellow.

For further details, please visit The Sudanese Neurogenetic Project page on Facebook.

Neurogenetics Sudan is pleased to welcome Dr. Asma Hamad (ST4 in Clinical Genetics- BWH) to present "Road To Clinical Genetics Training in UK".

If you are a medical student or a graduated doctor and would like to find out more about Clinical Genetics, or if you are interested in rare diseases and opportunities in genomic medicine, then you do not want to miss this session tomorrow!

☑️Certificates available after the event.
☑️Save the date! Meeting link bellow.

For further details, please visit The Sudanese Neurogenetic Project page on Facebook.

Topic: Road to clinical genetics training in UK
Time: Dec 12, 2021 01:00 PM Khartoum

🔴Join Zoom Meeting
https://us04web.zoom.us/j/71793561145?pwd=eG1uRHY2UUN4Q2V1bXd4OWdyekwxQT09

Meeting ID: 717 9356 1145
Passcode: 12345

[22/08, 07:44] Dr, Liena Elsayed: https://www.linkedin.com/posts/liena-elbaghir-16a54726_pathogenic-variants-in-abhd16a-cause-a-novel-activity-6835067946713268224-OiC8
[22/08, 07:44] Dr, Liena Elsayed: Dream finally comes true

Now we finally celebrate the crowning of all our efforts in the Sudanese Neurogenetic team and project (NGS) with the publication of our discovery of a new GENE in HSP identified for the first time in two Sudanese families with great potential for treatment discovery and biomarkers identification.

A gene which resulted from hard work during my PhD under the supervision of Prof Giovanni Stevanin and Prof Ammar Eltahir since 2015 in our First cohort then my competent student Ashraf found a supporting family in our Second cohort stressing its importance and confirming its role as a new gene causing HSP.

I hope all the other new genes we identified and pending confirmation through the lengthy functional studies will find their way to finalization and publication soon in shaa Allah

My dream of introducing neurogenetics to my beloved country Sudan seemed impossible to achieve when I graduated 2002 but passion, perseverance, patience, successful collaborations (national and international) and before all faith in Allah and His Almighty support made it possible and I was finally able create the NGS team during my PhD studentship (2013) and later graduate as the first Sudanese neurogeneticist.

I was determined to make the team multigenerational multidisciplinary to train Sudanese junior scientists in different stages (undergraduates, postgraduates, master students and PhD students) to have a continuous flow of Sudanese neurogeneticists and now we managed to find scholarships for five PhD students in prestigious universities in France and Germany with God help (we celebrated the PhD degree awarded to two of them Dr.Ashraf Kambalawy and Dr. Mutaz Amin after discussing their PhD thesis with excellence and three more distinguished students are pending soon the completion of their degree soon)

But the journey was not a solo I had the support of many whom I consider confounders of the NGS: my team members, my clinical collaborators in different disciplines of neuropediatrics, neurology and related fields (biochemistry, neurophysiology, ophthalmology, radiology, psychiatry, ...) and my mentors.

Special thanks to:

My first NGS members and cornerstones: Dr.Ashraf Kambalawy, Miss Rayan Abubaker, Dr.Mahmoud Koko, Dr.Arwa Babai and all generations of the team whose perseverance shaped the NGS.

Our amazing collaborators:
Dr.Inaam Gashey, Dr.Ahlam Hamed, Dr.Maha Elseed, Prof. Alexis Brice, and Prof. Giovanni Stevanin ( who was a cornerstone for the NGS establistment story)

My great mentors:
Prof. Ammar Eltahir, Prof. Muntaser Eltayeb, and Prof.Mustafa Idris

My supporting friends: (Prof.Victor Patterson and Prof. Melanie Newport )

All those who supported the NGS helping it achieve astonishing results highlighting the high novelty and potential of Sudanese neurogenetic studies changing a lot the way neurology is perceived in my country.

We look forwards to more achievements despite all obstacles in shaa Allah

Liena Elbaghir on LinkedIn: Pathogenic Variants in ABHD16A Cause a Novel Psychomotor Developmental Dream finally comes true Now we finally celebrate the crowning of all our efforts in the Sudanese Neurogenetic team and project (NGS) with the publication...

Have you red this month articles !? No you didn’t !!
Join the neurogenetics society website and follow our monthly articles. 🔥
During this month you will be able to know more about the history of genetics 🔥 in an article Written by Roya Mohamed 🔥

History of genetics: When was it born? Genetics is the biology of heredity, which we can consider as an experimental profession that merges various aspects of biology. Enormous strides in technology, biology, and science have allowed geneticists to prove that some genetic differences are due to disease, and the capacity to change genes u...