SSC Rare Diseases

How can we shorten the path to diagnosing a rare disease? That and other questions will be discussed on the 30th of April!

We invite you to participate in the Undiagnosed Day 2026 – Where Diagnosis Becomes Hope: The Power of Collaboration and Technology in Rare Diseases conference, which will take place on April 30, 2026, at the Prof. Zdzisław Kieturakis Auditorium in the Invasive Medicine Center of the University Clinical Center.

The conference is organized by the Wilhelm Foundation, ERDERA, and the Rare Diseases Center at the Medical University of Gdańsk and the University Clinical Center.

🔹 Event website:
https://erdera.org/event/undiagnosed-day-2026/

🔹 Mandatory registration:
https://forms.office.com/pages/responsepage.aspx?id=p8acuKdXN0GCJGnn6gscVcxOj66Q6ThOhxqPVeOBfaxUOUtTQ1hWUDNTNVNQUUJORENSSUdETEdSMiQlQCN0PWcu&route=shorturl

📌 Conference language: English

Circle Meeting Alert 🚨🧬

The circle meeting will take place on the 23rd of March at 2.30pm. We will have four case presentations!

Location: seminar room in building nr 12 (the building with butterflies). Join us to get to know and learn about rare diseases! 🩷💚🩵💜

And that concludes the Rare Disease Month!

Thank you for joining our countdown leading to Rare Disease Day, and we hope you will stay with us to learn even more 🩷🩵💚💜

Introducing: The European Rare Diseases Research Alliance (ERDERA)
Their website: https://erdera.org/

Join us in supporting people living with rare diseases with us 🧬

Meet today's organization: Stowarzyszenie Myotonic Dystrophy Type 1 Hope Poland
Their website: https://www.dm1hope.org/

Stay with us to learn about organizations supporting people living with rare diseases with us 🧬

Meet: Stowarzyszenie Chorych na ASMD i Ich Rodzin
Their website: http://www.asmdchoroba.pl/

Stay with us toearn about organizations supporting people living with rare diseases with us 🧬

Introducing: Fundacja StopDuchenne
Their website: https://stopduchenne.pl/

Learn about organizations supporting people living with rare diseases with us 🧬

Meet: Fundacja Parent Project Muscular Dystrophy
Their website: https://parentproject.org.pl/

Join us in supporting people living with rare diseases 🧬

Next up!: AGO Alliance Poland
Their website: https://www.agoresearch.org/

Join us in learning about organizations that support people living with rare diseases 🧬

Time to introduce: CureMFM13
Their website: http://curemfm13.org/

Stay with us to learn about organizations that support people living with rare diseases 🧬

Meet our next organization: Fundacja PACS2 Research Foundation
Their website: www.pacs2research.org

Keep up with us to learn about organizations that support people living with rare diseases 🧬