Endometriosis New Zealand

Endometriosis New Zealand ENZ aims to improve the lives of those with endometriosis and has supported people living with the disease for over 30 years.

Endometriosis New Zealand (ENZ) is Aotearoa’s national endometriosis organisation, providing support, advocacy, research, information, education and awareness on endometriosis.

☕ Raise a cup, raise funds and help create change for the 120,000 affected by endometriosis in Aotearoa New Zealand. 🌸Th...
23/09/2026

☕ Raise a cup, raise funds and help create change for the 120,000 affected by endometriosis in Aotearoa New Zealand. 🌸

This Spring, why not gather your favourite people for a High Tea fundraiser supporting Endometriosis New Zealand?

You choose the guest list, venue and style of your event, and we’ll help you get started with fundraising resources and ideas. Whether it’s an elegant afternoon tea, a backyard gathering or something completely your own, your event can help raise vital funds for awareness, advocacy, support and education.

✨ A special thank you to our generous sponsor, , who have provided a limited number of beautiful gift packs for High Tea fundraisers who sign up by 31 October.

So, put the kettle on, invite your people and make your gathering count.

Ready to host your High Tea? Sign up below or send us a line at [email protected] to discuss your ideas with a member of our team 💛https://endometriosis-new-zealand-fundraising.raiselysite.com/challenge-bake

Help bring lived experience into the Endometriosis Guideline process.Health New Zealand is beginning the process of adap...
17/09/2026

Help bring lived experience into the Endometriosis Guideline process.

Health New Zealand is beginning the process of adapting the RANZCOG Australian Living Evidence Guideline: Endometriosis for use in the New Zealand health system.

This work is being supported by an Advisory Group that includes Endometriosis New Zealand, RANZCOG, The Royal New Zealand College of General Practitioners, the ANZCA Faculty of Pain Medicine, Radiology New Zealand and Physiotherapy New Zealand.

As part of this process, we’re looking to establish a Living Evidence Forum — a small group of people living with endometriosis who are willing to share their experiences, perspectives and insights with members of the Guideline Advisory Group.

The Forum will provide an important opportunity for patient voices and lived experience to be reflected throughout the guideline adaptation process.

Interested in being involved? 📧 Email [email protected]

Read our latest Endometriosis Guidelines Update on the ENZ News Blog to learn more: https://nzendo.org.nz/endo-news/endometriosis-guidelines-update/

Could your symptoms be linked to endometriosis?Endometriosis can present in different ways, and symptoms can vary from p...
16/09/2026

Could your symptoms be linked to endometriosis?

Endometriosis can present in different ways, and symptoms can vary from person to person.

If you experience one or more symptoms associated with endometriosis, it may be worth talking with your healthcare professional about what you’re experiencing.

Common symptoms can include:
• Severe painful periods
• Pain with s*x, during or after in*******se
• Infertility
• Pelvic pain
• Heavy menstrual bleeding

Other symptoms may include:
• Bowel symptoms, including constipation, diarrhea or pain with bowel movements
• Severe tiredness
• Back pain
• Sleep difficulties
• Headaches
• Allergies

Having these symptoms does not necessarily mean you have endometriosis, and not everyone with endometriosis experiences the same symptoms.

📚 Source: RANZCOG, Summary of Diagnosis and Management of Endometriosis.

If you’re concerned about your symptoms, speak with your healthcare professional about your options for assessment and management.

💛 Have questions about endometriosis, fertility or IVF? Ask an Expert.We’ve recently added new fertility and IVF questio...
08/09/2026

💛 Have questions about endometriosis, fertility or IVF? Ask an Expert.

We’ve recently added new fertility and IVF questions to our Ask an Expert page, with answers from our clinical experts to help you better understand your options.

One of the new questions asks:

“I have endometriosis and adenomyosis. How long should I try to conceive before seeing a fertility specialist?”

While fertility assistance is generally recommended after 12 months of trying to conceive, our experts explain why people with endometriosis and/or adenomyosis may benefit from seeking specialist advice sooner — and why age can also be an important consideration.

You can explore this question, along with other expert answers about fertility, IVF and endometriosis, on our Ask an Expert page. 🔗 https://nzendo.org.nz/ask-an-expert/

This information is general in nature and is not a substitute for personalised medical advice.

Explore the link between endometriosis and fertility from both medical and psychological perspectives with Fertility Spe...
02/09/2026

Explore the link between endometriosis and fertility from both medical and psychological perspectives with Fertility Specialist and Laparoscopic Surgeon, Dr Simon McDowell, and Health Psychologist, Andy Leggat.

Learn about the emotional challenges of navigating fertility, as well as diagnosis, treatment options and fertility management for people living with endometriosis.

Join us for one of four upcoming sessions:

📅 Thursday, 3 September | 7PM NZST
📅 Saturday, 5 September | 12PM NZST
📅 Monday, 7 September | 7PM NZST
📅 Wednesday, 9 September | 12PM NZST

Register here: https://nzendo.org.nz/nzendo-events/
We look forward to seeing you there 💛

💛 New resource: Endometriosis and FertilityNavigating endometriosis and fertility can bring uncertainty, fear, frustrati...
01/09/2026

💛 New resource: Endometriosis and Fertility

Navigating endometriosis and fertility can bring uncertainty, fear, frustration, hope and pressure.

Our new Endometriosis and Fertility resource provides clear, evidence-informed information to help you understand how endometriosis can affect fertility, what to expect, and the options available to you.

Developed by fertility and endometriosis specialists and peer-reviewed by our Clinical Advisory Committee and people with lived experience.

A resource to help you feel more informed and supported on your journey.

🔗 View our online resource here:https://nzendo.org.nz/wp-content/uploads/2026/08/Endo-and-Fertility_WEB-compressed.pdf ✨

Remembering Dolly Parton. 💛For many people living with endometriosis, Dolly’s story may be remembered for something beyo...
27/08/2026

Remembering Dolly Parton. 💛

For many people living with endometriosis, Dolly’s story may be remembered for something beyond her extraordinary career in music and entertainment.

Dolly spoke openly about her experience with endometriosis at a time when the condition was rarely discussed publicly. She described years of severe pelvic pain and heavy bleeding, alongside the emotional impact of fertility struggles.

For those who have experienced endometriosis, these parts of her story may feel especially familiar. For many years, painful and debilitating symptoms were dismissed as simply part of being a woman, leaving countless people without answers or understanding.

Dolly was willing to talk about something deeply personal, at a time when conversations around women’s health and endometriosis were very different from those we have today.

We remember her with gratitude for sharing her story, and with our thoughts with everyone who loved her.

Rest in peace, Dolly. 🌻

What is endometriosis? 🔍Whether you’re new to our community, have recently started following us, or have simply stopped ...
26/08/2026

What is endometriosis? 🔍

Whether you’re new to our community, have recently started following us, or have simply stopped by wondering “What exactly is endometriosis?” here’s a place to start.

Endometriosis is a chronic inflammatory condition where tissue similar to the lining of the uterus grows outside the uterus, most often in the pelvic region.

For many in our community, these symptoms will be all too familiar. For others, this information may be new, particularly if you’ve recently been diagnosed or are still searching for answers.

Common symptoms can include, but are not limited to:
• Painful periods (dysmenorrhoea), ovulation, and back pain
• Heavy, irregular or abnormal periods
• Fatigue and low energy
• Migraines and premenstrual symptoms (PMS)
• Painful in*******se (dyspareunia)
• Sub-fertility or infertility
• Bladder troubles like interstitial cystitis (IC)
• Bowel problems like bloating, diarrhoea, constipation, pain with bowel movements, painful wind (sometimes diagnosed as irritable bowel syndrome)

Endometriosis affects everyone differently, and symptoms can vary and change over time. There is no single way to experience endometriosis.

If you’re new here, welcome. 💛 We’re here to provide evidence-based information, support, education and advocacy for people affected by endometriosis across Aotearoa New Zealand.

💬 Know someone who might find this helpful? Share it with them.

Nicole's endometriosis journey began at just 12 years old. It took seven years of symptoms, dismissal and repeated hospi...
21/08/2026

Nicole's endometriosis journey began at just 12 years old. It took seven years of symptoms, dismissal and repeated hospital visits before she finally received a diagnosis.

Now 25, Nicole has had two surgeries, with her second confirming stage 3/4 endometriosis.

This week, Nicole spoke with TVNZ about her lived experience and shared her thoughts on updating the national endometriosis guidelines and what earlier diagnosis could mean for others.

“I like it—It allows people to get diagnosed quicker, especially those who are quite young for such an invasive surgery.”

Nicole’s story is a powerful reminder of why earlier recognition, appropriate care and listening to people’s symptoms matter.

Read Nicole’s full story here: https://nzendo.org.nz/endo-news/nicoles-seven-year-journey-to-an-endometriosis-diagnosis/

A big win for people with endometriosis in New Zealand. The Government has announced that Health New Zealand will adapt ...
18/08/2026

A big win for people with endometriosis in New Zealand.

The Government has announced that Health New Zealand will adapt the Royal Aust & NZ College of Obstetricians and Gynaecologists RANZCOG Australian Living Evidence Guideline: Endometriosis for use here.

Endometriosis New Zealand has been calling for this change and we are delighted the Government has listened.

Adoption and effective implementation of the RANZCOG Guideline was one of the two key policy asks in our 2026 Election Manifesto – so seeing the Government commit to it is a major milestone for our advocacy and our community.

The new approach has the potential to make a real difference by supporting:
• Earlier clinical diagnosis without surgery being required to confirm endometriosis
• Better use of diagnostic imaging
• Treatment beginning earlier, once endometriosis is suspected
• Better guidance around pain management, fertility, adolescent care, adenomyosis and ongoing support.

For people currently waiting a median of 10 years for an endometriosis diagnosis, this could mean answers and treatment much earlier.

Importantly, as a living evidence guideline, it can be regularly reviewed and updated as evidence and clinical practice evolve.

The Government has also committed to training and education for primary care and enhanced pain management support.

Endometriosis New Zealand is working with Health New Zealand, RANZCOG and others to help adapt the Guideline for New Zealand and make sure it works effectively in practice.

A huge thank you to our community for supporting our advocacy.

🔗Read our full media statement here: https://nzendo.org.nz/endo-news/government-backing-of-new-guideline-a-breakthrough-for-better-endometriosis-care/

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