Arise Initiative

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Arise Initiative

ARISE is a project enhancing SCD research and care via staff exchange and is funded from the EU’s H2020 R&I programme under the MSCA GA No 824021

01/10/2024

September was a month of awareness and action for Sickle Cell Disease. As the month concludes, one of our partner institutions in Nigeria, Kaduna State University Library held a roundtable discussion on how to better support students living with SCD.

The event was led by Dr. Esther Gani, Head of the Community Service Department and a secondee at the ARISE staff exchange.

The discussion emphasised the need for a university policy on SCD, increasing awareness, and advocating for special health attention and support for affected students.

02/09/2024

🩸 September is Sickle Cell Awareness Month! 🩸

At ARISE, we are committed to raising awareness and supporting those affected by Sickle Cell Disease. This month, let’s unite in spreading knowledge, advocating for better care, and celebrating the strength and resilience of those living with SCD.

Join us in our mission to make a difference—share your stories, educate others, and help us bring hope to the Sickle Cell community. Together, we can ARISE above the challenges! 💪🏽❤️

02/09/2024

ARISE is devoted to amplifying the voices of those living with sickle cell disease (SCD) as we begin Sickle Cell Awareness Month. This month, we encourage everyone to join us in raising awareness, advocating for improved care, and supporting the Sickle Cell community.

SCD is a lifelong journey filled with challenges, but we can make a meaningful difference with awareness, education, and collective action. Let's work together to empower those living with SCD, foster understanding, and drive progress in treatment and care.

Join us in our mission this September—together, we can ARISE for Sickle Cell Disease.

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29/08/2024

September is Sickle Cell Awareness Month! Let us unite and ARISE for those affected by this challenging disease. This month, we’re focusing on

Awareness,
Resilience,
Innovation,
Support, and
Empowerment.

Together, we can make a difference by spreading knowledge, advocating for better care, and supporting research for a cure. Join us in this mission! 💪🏾

29/08/2024

September is Sickle Cell Awareness Month! This month, let's ARISE together to bring light to this important cause. By raising

Awareness, fostering
Resilience, driving
Innovation, providing
Support, and
Empowering those affected,

we can make a lasting impact.
Share, educate, and stand with us as we push for a cure! 💪🏾❤️

27/08/2024

Sickle Cell Awareness month is here in a bit!!

This September, let’s stand together to raise awareness and improve care for those impacted by sickle cell disease.
Every step forward is a step closer to a brighter future.

19/08/2024

These numbers are more than statistics—they represent lives. In Europe and the USA, over 90% of children with sickle cell disease (SCD) survive into adulthood. In Africa, up to 90% of children with SCD die before their fifth birthday. This is due mainly to three largely preventable causes: invasive pneumococcal infection, acute malaria,and acute splenic sequestration. All of this can be prevented by early diagnosis.

This is a healthcare crisis that demands our attention. We must push for better healthcare access, education, and resources worldwide. Together, we can make a difference. 🌍❤️ ”

07/08/2024

the Gap in Newborn Screening for Sickle Cell Disease in Sub-Saharan Africa

Did you know? It's been 49 years since the development of newborn screening for sickle cell disease. Despite this milestone, many countries in Sub-Saharan Africa, which have some of the highest rates of sickle cell disease, still lack standard newborn screening policies. This gap means that countless opportunities for early detection and intervention are missed, leading to severe health complications and reduced life expectancy for many children.

There is an urgent need for international support and policy implementation to establish comprehensive newborn screening programs in these regions. By doing so, we can ensure early diagnosis and improve health outcomes for affected children.

How do you think advancements in technology have impacted newborn screening for sickle cell disease? Let us know your opinions!

07/08/2024

The Gap in Newborn Screening for Sickle Cell Disease in Sub-Saharan Africa.

Did you know? It’s been 49 years since the development of newborn screening for sickle cell disease. Despite this milestone, many countries in Sub-Saharan Africa, which have some of the highest rates of sickle cell disease, still lack standard newborn screening policies. This gap means that countless opportunities for early detection and intervention are missed, leading to severe health complications and reduced life expectancy for many children.

There is an urgent need for international support and policy implementation to establish comprehensive newborn screening programs in these regions. By doing so, we can ensure early diagnosis and improve health outcomes for affected children.

How do you think advancements in technology have impacted newborn screening for sickle cell disease? Let us know your opinions!**

Indirizzo

Sede Operativa: Via Giulio Petroni, 91
Bari
70124

Sito Web

https://www.ariseinitiative.org/

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