04/07/2026
The Plan Special Needs Introductory Survey of Families with Special Needs is one of the first initiatives in India to examine how well families are prepared for the lifelong care of a child with disabilities. Covering areas such as financial planning, legal and estate planning, guardianship, child development, communication, and family preparedness, the survey highlights the significant planning gaps that many families continue to face. Its findings serve as an important benchmark for understanding the challenges, priorities, and support needs of special needs families, while providing valuable insights to help parents, professionals, policymakers, and service providers develop better long-term solutions for securing the future, dignity, and well-being of individuals with disabilities.
Key Findings from the Survey
76% of parents are not confident about their child's lifetime financial security.
90% of families have not prepared a Letter of Intent to guide future caregivers.
3 out of 4 families have not identified a future guardian for their child.
More than 80% of families remain committed to therapy and developmental interventions, reflecting strong parental dedication despite planning challenges.
The survey emphasizes the need for early financial planning, legal documentation, trusts, insurance review, and structured caregiving plans to ensure continuity of care throughout the child's lifetime.
This combination of insights demonstrates that while Indian families show exceptional commitment to their children's day-to-day development, long-term planning for financial security, guardianship, and future care remains an area requiring urgent attention. The survey provides a foundation for creating greater awareness and encouraging families to begin planning well before a crisis arises.
INTRODUCTORY SURVEY OF FAMILIES WITH SPECIAL NEEDS Plan Special Needs is a dedicated resource organization that supports families of children with special needs by providing guidance, information, and practical tools to help them navigate the challenges and opportunities associated with caring fo...