End of life Nursing education consortium ELNEC INDIA

Elnec Mangalagiri July 4-6 2024
Raipur AIIMS in 2017 was our first Elnec outside of DELHI and Rajasthan. Dr. Samarjit did everything possible to make it memorable. Six years later another mile stone training at Aiims Mangalagiri with huge support from the administration and the ever so relaxed and easy-going, but extremely efficient team of Dr. Samarjit. It was a rejuvenating Palliative Care learning of 2 1/2 days with 53 participants. This session was conducted by Sisters Sangeetha, Nileema and Hanife. We also visited their impressive Palliative Care department, which we hope will continue to grow and benefit many. Interacting with the nursing faculty was humbling.. We thank Dr. Samarjit and all the nurses and doctors in his team who make hard work seem so effortless and their Director Prof. Madhavananda Kar, who makes things happen wherever we are lucky enough to meet him. We also thank Dean Academics- Prof. Shreemanta Kr Dash and Medical Superintendent Dr. Nataraj for all the support. We will keep working with them all in Mangalagiri and be a tiny part of yet another center of excellence for Palliative Care and an effective, well planned Palliative care Curriculum at the nursing college.

ELNEC UDAIPUR June 27-28 2024
Our 77th training was at Rabindranath Tagore Medical College in Udaipur. We had 50 well selected participants from different departments. It was an interactive, lively two days of learning from each other. This training was conducted by Arvind Kumar Sharma, Ramswaroop from Aiims jodhpur and Sister Hanife. We thank Dr. Lalit, and the wonderful team of nurses, Dr. Vipin Mathur- principal, and superintendent Dr. RL Suman. We truly hope the administrative support will continue and grow and we wish Palliative Care Team all the best as they work towards creating a very comprehensive, Palliative Care in Udaipur also increasing awareness and knowledge in the communities. Looking forward to working with them all.

Abstract submissions open for the 31st Annual International Conference of the Indian Association of Palliative Care (IAPCON 2024).
The conference organisers invites researchers to submit abstracts of their work in palliative care for presentation to the global palliative care fraternity, before Thursday, 30th November, 2023.
The 2.5 day in-person conference themed ‘Revisiting the domains of Palliative Care’ will be held at the Auditorium, Gujarat Cancer and Research Institute, Ahmedabad, Gujarat, between Friday, 9th February 2024, and Sunday, 11th February 2024. The Pre-conference workshops are slated for Thursday, 8th February, 2024.
Please visit the conference website for further information:
https://www.iapcon2024.com

She came, she saw, she learnt and she shared…. Sister Hanife – a petite lady with a big heart and so much to give.

Sister Hanife visited Hospis Malaysia this week, and shared her experiences as a palliative care nurse in India with our clinical team. And this is what she had to say about the work of our nurses as she spent time with them visiting patients in their homes: “They open their hearts to the patients and with that they are able to treat with compassion and with this they are then able to teach”.

For more about Sister Hanife, check out https://ehospice.com/india_posts/palliative-care-nursing-a-choice-i-never-doubted-sr-hanife-macgamwell/

The Supreme Court of India eases the process for Advance Medical Directives (Living Will) and withdrawal of life support treatment!

A Constitutional Bench of the Supreme Court headed by Justice K M Joseph has passed orders to making suitable amendments to the previous procedure regarding making an advance medical directive and withholding and withdrawing of life support treatment. This landmark judgement is set to be a game changer in the practice of End of Life care in India.

Key amendments:
1. An advance medical directive may now be made in front of a Notary or a Gazetted Officer. There is no need for it to be countersigned by a magistrate.

2. For withdrawing life support, two committees need to be constituted by the hospital where the patient is admitted. There is no need for a District collector to be involved henceforth.

The judges of the Supreme Court of India also go on to share, "The said directive, we think, will dispel many a doubt at the relevant time of need during the course of treatment of the patient. That apart, it will strengthen the mind of the treating doctors as they will be in a position to ensure, after being satisfied, that they are acting in a lawful manner".

To access the complete copy of the Supreme Court judgment:https://main.sci.gov.in/supremecourt/2019/25360/25360_2019_3_504_41295_Order_24-Jan-2023.pdf

We thank and congratulate Dr Dhvani Mehta, who shepherded this through. Our gratitude to Mr Arvind Datar who spent so much time and effort on this matter. And our homage to Mr Girish Gokhale who helped birth this endeavour.

We also thank Dr Raj K Mani, Dr Srinagesh Simha, and Dr Roop Gursahani, members of the End of Life Care in India Task Force (ELiCiT) for pursuing this relentlessly over more than seven years.

Nagesh Simha Roop Gursahani Mani Dhvani Mehta

Greetings from ELNEC INDIA

We had a very interactive ELNEC training at Bagchi-Karunashraya in Bhubaneswar November 24 - 26 2022. There were 53 participants including interested and willing students from Viswass college of nursing, nursing instructors, district nurses , a district doctor, physical therapist, and home care nurses. We are were honored by the active participation during 3 days of Dr. Sumita Mohanty professor and HOD Dep. of anesthesiology, pain and palliative care and a graduate of Cardiff Palliative medicine.We are touched by her humbleness and great feed back.
We thank Dr. Nagesh, Dr. Seema for initiating this training and organizing it along with Sr. Sangeetha, Dr. Satish and Dr. Vjjaval and Dr. Lipika AND amazing Jyana and the team and the home care nurses in Bhubaneshwar. They meticulously attended each and every detail to make this a seamless training.
Team in Bhubaneswar may be a small team for now but they are truly awesome.
Sr. Nileema, Sr. Sangeetha, Sr. Cassandra and Sr. Hanife conducted the training.
We also visited the construction site in full swing for the hospice house. It is quite impressive.
We are looking forward to next trainings to train more health care providers in palliative care and also learn more from this very dedicated team in Bhubaneswar.

Happy Dipawali

Happy World Hospice and Palliative Care Day.(WHPCD)
(October 8, 2022)
World Hospice and Palliative Care Day is an annual unified day of action to celebrate and support hospice and palliative care around the world.
With one voice, we will celebrate the importance of palliative care to quality of life, and advocate for equitable access for all.
The WHPCD theme for 2022: Healing Hearts and Communities.
The experience of grief and the need to heal unites humans worldwide. With more than six million deaths worldwide during the COVID-19 pandemic resulting in tremendous strain on healthcare systems and unprecedented grief and suffering for health workers and caregivers. In addition, several conflicts and wars are taking place around the globe, resulting in millions of families and caregivers grieving the deaths of family and friends, experiencing social isolation and property destruction.

ELNEC CORE training at Sir Ganga Ram Hospital Delhi had 45 participants. ELNEC has a special connection with Sir Ganga Ram Palliative care Department . The two nurse coordinators were in the first batch of ELNEC in INDIA in 2017. They have had further trainings as well. Their remarkable work with Dr. Veronique , and now with Dr. Bimla has been touching many hearts, supporting many families and truly helping the patients and their care givers be able to see the glimpses of light in their lives as they go through their journey with these loving, caring people.
Monica and Sunita were also part of the faculty for this program. Proud moment for SGR and for ELNEC team -for this training it included Sr. Govindi DNS at IRCH. Delhi AIIMS, Sr. Nileema Senior nursing officer IRCH Delhi AIIMS, and Sr. Hanife.
Participants from different departments made good improvement between pre and post test scores as well as in their attitude towards PC patient care.
The Palliative Care team along with Administration worked very hard to make this successful training happen. We thank each and everyone in Administration, the kitchen staff for delicious food and all participants for giving us their time and for cheerfully, timely and enthusiastically participating in this training. We will continue to work with and support the amazing work of Palliative Care Department of SGR.