Sabrina's World

05/09/2026

It’s been rather quiet in Sabrina’s World lately… 💜

But I’ve been anything but quiet.... 😂

It’s been a VERY busy hot summer, lots has changed, and I’ve gone and become a secondary school girl while you weren’t looking! 😳

So before I tell you about some changes that are coming to Sabrina’s World, I thought it was time for a proper catch-up.

Here’s my summer roundup…

After I finished primary school in July, the holidays were spent having lots of fun with family and friends.

We had a weekend at Centre Parcs where I discovered several important things:

Swimming = brilliant.
The lazy river = even better.
The Pancake House = excellent. 🥞
And Dad cycling up enormous hills while I sat comfortably in a trailer behind him = BEST THING EVER. 😂

I’ve had lots of adventures with Shanay, plenty of trips to the park, bowling with Sarah and Max, and approximately 4,762 hours on the swings, including lots of time playing hide-and-seek with my brother. 💜

I’ve also been working hard every week with Anton at Warhorse Training. 💪

I absolutely LOVE my sessions with Anton. He somehow manages to get me working really hard while I think I’m just having the best time, which is quite a skill! We’ve been making videos together too, and some of my adventures with Anton have even made it onto YouTube. I’m having a little break while I settle into school, but I’ll be back with him in October.

And now for the REALLY big change…

I’M IN YEAR 7! 😳💜

New teacher.
New TAs.
New friends.
New routines.
A whole new world to get used to.

After having the same teacher for five years, that’s a LOT of change for me, but I’m doing it and there have been plenty of smiles along the way.

Health-wise, my team at Bristol Children’s Hospital and in Swindon continue to keep a close eye on me. I’m still rocking my DMOs and orthotics to help with my strength and stability. My tummy is giving me a bit of trouble at the moment, and my teeth seem to have completely missed the memo about when they’re supposed to fall out, so I’ve had some soreness there too.

But none of that is stopping me concentrating on the really important things in life…

Food.
Colouring.
Painting.
Sandpits.
Bubbles.
Park trips.
SWINGS.

So there you are.Year 7. Let’s see what you’ve got. 😁💜
Stay tuned as there are some changes coming to Sabrina’s World too, which Mum will tell you about very soon.

Sabrina x

15/08/2026

09/07/2026

It's too hot to sleep...
Cooling off in Mum's treatment room. 💫🤍😁

04/07/2026

Sports day at school & Warhorse Training 👊🏻

04/07/2026

Because of you... ❤️

Because of the fundraising and everyone who has donated to Sabrina's World - A New Chapter, I get to do exciting new things like this!

I've started training with Anton at Warhorse Training, and I had so much fun at my first session.

My body works much harder than most people's because I have a rare genetic condition. My muscles get tired quickly, my joints can be wobbly, and I need lots of help to get stronger.

Anton is helping me with: 💪 Gross motor skills 💪 Functional fitness 💪 Strength around my hypermobile joints 💪 Balance and coordination 💪 Building my confidence 💪 Learning how my body moves and so much more.

Every session is designed just for me, so I can strengthen my hips, joints, ligaments and muscles while having lots of fun.

And he has a therapy dog called Rocky who is funny.

I don't always find movement easy, but every little bit of strength I build helps me in everyday life – whether that's walking, climbing, balancing or keeping up with everyone else.

Thank you to every single person who has donated, fundraised, shared my story or cheered me on.

Because of you, I get opportunities like this, and I can't wait to see what I can achieve.

Love,
Sabrina x

https://just4children.org/sabrinas-world-a-new-chapter/

30/06/2026

Have a happy day 😁

27/06/2026

SHE DID IT!!! 🪂💙

So close, £200 off target 🎯

https://www.justgiving.com/page/barbara-lorusso-2?utm_medium=FR&utm_source=CL

Thank you, you're amazing!!! ❤️

27/06/2026

Today's the day! 🪂💜

My lovely family, Barbara and Giuseppe are jumping out of a plane today!

Barbara is jumping for me, and Giuseppe is jumping to help his friend Pete and Croydon Hydro Pool.

I think they are both so, so brave. I hope they have lots of fun and a big smile all the way down!

Please can you wish them good luck?
If you would like to help too, my mum will put their fundraising links in the comments.

Good luck, Barbara and Giuseppe!
I love you and thank you for helping lots of people. ❤️🪂💜

26/06/2026

pareidolia...what do you see?