Sabrina's World

Sabrina's World

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I am living my happy life and raising awareness of my disease Alg1-CDG. Follow me 4 fun and wonder.❤️ Sabrina is 7 years old and was born in 2014.

Her mantra is READY STEADY GO......! We believe that Sabrina feels like a caged bird who just wants to spread her wings and fly, explore and experience everything life has to offer. And why shouldn’t she. Heartbreakingly this is not always possible. Her diagnosis of ALG1 CDG – a very rare metabolic disease – causes many health issues but mainly affects her brain. She has Epilepsy, Microcephaly, Hy

16/06/2026

Hi everyone 👋🏻

You probably know that I have a very rare condition called ALG1-CDG.
It's something I was born with, and it won't ever go away.

As I get bigger, everything I need gets bigger too, from equipment and specialist items to opportunities that help me live my best life.

That's why Barbs is doing something so amazing. On 27th June, she's jumping out of a plane to raise money for Sabrina's World. 🪂

She's already raised an incredible amount, and I'd love to see her reach her target before the big day.

If you'd like to support me & Barbara , you can donate below and please share this post so more people can see it.

Every penny raised helps support me on my journey and makes a real difference.

Thank you for cheering Barbara on and for being part of my story.

Love,
Sabrina 💙

https://www.justgiving.com/page/barbara-lorusso-2?utm_medium=FR&utm_source=CL

14/06/2026

Fun times 😁

Photos from Sabrina's World's post 10/06/2026

🩷I've been incredibly lucky to have so many wonderful people support my charity over the years.

One of those people is Harvey from HS Sports.

Harvey first came into our lives when he was my brother Luca's PE teacher in Primary school, and ever since then HS Sports has continued to support Sabrina's World through fundraising, raffles and the amazing families who attend their clubs and camps.

That support hasn't just been about money. It has helped me access ongoing physiotherapy, speech and language therapy and occupational therapy, giving me opportunities to learn, communicate and develop into the girl I am today.

This week Harvey and his daughter Martha came to visit, and we spent a lovely afternoon in the sunshine playing on the swings together. 💛

As Sabrina's World begins a new chapter with Just4Children, I wanted to say a heartfelt thank you to Harvey, HS Sports and everyone who has supported me over the years.

Your kindness has made a real difference to my life and to my family, and we'll always be grateful. 🙏🏻

Love,

Sabrina 💙

04/06/2026

'Taking you out of the ordinary'

30/05/2026

🩵💦💦

30/05/2026

It was a hot one!

Photos from Sabrina's World's post 11/05/2026

My favourite pics from the weekend....

10/05/2026

Hello stupid goats 🤣

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