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Solihull: Mum of autistic children taken to court over holiday Leanne Bray is fined for taking her children on holiday to Lanzarote during term time.

https://www.bbc.co.uk/news/av/uk-england-humber-60071772?fbclid=IwAR1eGekh9Cgs2x7bihPDzKRnYmzkTOaGbFXfkc18erv74vJ27Z0F9_cJUpk

'I like to show the reality of autism' A Grimsby mum whose son was diagnosed with autism runs a blog to raise awareness of the condition.

Does the introduction of the term ‘profound autism’ help?

https://www.statnews.com/2021/12/07/labels-can-harm-but-they-also-can-help-see-profound-autism/?fbclid=IwAR1zi6cg_tuuCG-Z3ElQpsIkK4wkAeQw-efW5x5fyLtl43QE09snLovJyQ0

Labels can harm, but they also can help: See 'profound autism' - STAT The term profound autism is needed to describe people with severe autism-related disabilities likely to require lifelong 24-hour support.

A change is needed!

https://www.theguardian.com/commentisfree/2021/nov/27/people-with-autism-are-being-locked-away-in-institutions-a-radical-change-is-needed?CMP=Share_iOSApp_Other&fbclid=IwAR03jKGB-XKbIvxPCxpvuqbSuFzT3Jb52Ilb1c_DYpKmWWQrffk16T420ZE

Autistic people are being locked away in institutions. A radical change is needed | Sheila Hollins My panel oversees reviews into detention cases of autistic people. I see how the system fails those it should help, says Sheila Hollins, emeritus professor of psychiatry of learning disability

The process for securing appropriate education for children with specials needs is ‘so stressful’ and really is ‘adversarial’. This is the case for too many families. This is ignoring the financial implications How can this be right?

It is surprising a SEND spokesperson stated “95% of tribunal decisions are in favour of families”. This doesn’t align with our experience and is very questionable!

SEND family spends £20k fighting for school place Some families are taking on massive debt to secure the help their children are legally entitled to.

https://www.findingcoopersvoice.com/2020/09/09/to-any-special-needs-parent-whos-having-one-of-those-days/?fbclid=IwAR1IF7E_Ntu-ogvEelWuSx4DBeaTz5z3tmrsWaxknu1E2jvXuPDFVAdIRrU

To Any Special Needs Parent Who's Having One Of Those Days - Finding Cooper's Voice My personal advice is to take those little successes as they come and cherish each and everyday you are blessed enough to have with your loved ones.

Chewy Tubes are back in stock...including the super strong blue T tube https://treezy.co.uk/product-category/chews-biting/

Chews / Biting Archives | Treezy

As the parent of a disabled child, I have had to fight for every level of support for my son - from diagnosis to appropriate education. At 15, that fight is unlikely to be anywhere near over as he enters adulthood. All of the early fighting was often done on a maximum of four hours sleep and through periods of panic, guilt, despair and even mourning. I have had to learn what his rights are, realising that those in positions of authority have not always been truthful. I’ve sat in courtrooms arguing his right to be appropriately educated. All of this, whilst educating myself to teach him skills that I had previously taken for granted, that many others acquire so easily. This continues despite his age and will continue for the rest of my life. I can’t write well enough to describe the level of ‘wrong’ that this kind of article is. But I will simply remind those that see our special needs children as something other than children, our special needs people as something less than people, you need to sit and question why this is. I imagine it is as a result of ignorance and is not meant to cause the harm that it results in. This life can be bloody hard, exhausting and lonely. So please do not, by your ignorance, add another layer of distress to us parents, families, caregivers, educators and communities trying to do the best for all of our children.

**Edited - if you would like to complain about this disgusting article you can on the link below

http://www.formstack.com/forms/?1820902-xHOMNaVSET

It’s hard to start a response to this article without telling The Times and The Sunday Times to go f**k themselves, so I won’t bother trying not to.

Are children with special needs not pupils too? Are my boys not worthy of an education just like any other child?

Isn’t the reality that this shambles of a government have consistently underfunded all schools, just like they have so many other services in this country?That the councils are wasting the money they do have and putting the blame elsewhere?

They are trying to deflect any of the blame from themselves to children just like mine. Making out we are a financial burden to the rest of the country.

It’s not as if they’re even providing the funding to meet the needs of special needs children anyway.

Last week at our parents meet up, the main topic of conversation was schooling. The fight that families have to go through to get an Educational Health Care Plan (clearly because they don’t want to spend the money) Then the fight once that EHCP is in place to actually get the schools to follow it.

If you want your child to attend a special needs school often there’s not enough places, especially if you’re trying to make the switch from mainstream to special needs.

Many families are being forced to take their children out of school and being left without a place, having to home school instead.

So the wait for diagnosis and EHCP’s is too long, there’s not enough schools, there’s not enough places in schools, and the solution is to place the blame at society’s door. Blame our children.

To try and turn the rest of the country against families like mine, just like they’ve done asylum seekers, and anyone on benefits.

Disgraceful

Teen green activist says Asperger's diagnosis is her 'superpower' Swedish climate change activist Greta Thunberg says she has never tried to hide behind her diagnosis.

https://www.itv.com/news/channel/2019-08-19/behavioural-study-significantly-improves-lives-of-participants/

Behavioural study 'significantly improves' lives of autism participants A Jersey Behaviour Advisor has carried out a four-year study on islanders who have autism and/or a learning disability. The study is the largest of its kind to ever be conducted and "significantly" improved the behaviour of most participants. Dr Darren Bowring says his findings could impact how the....