Evie Squeezie’s Journey

Evie Squeezie’s Journey

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Hi everyone im Evie (Squeezy) i was born on 08/04/25.

I have Trisomy 21, complete AVSD and Hirschsprungs disease and Mummy and daddy set up this page for my friends, family and everyone inbetween to follow my journey through life, and all its hurdles 🩷

16/06/2026

Evie loves a little nibble of her toes 🤣

13/06/2026

After a day out at the farm today for her cousins Birthday we are just on our way home from another visit to PAU for another insuflon change 😩 at least we wernt there for over 2 hours this time 🥴

09/06/2026

Wondering if we will ever get a full week without some kind of drama or hospital visit? Tonight Evie's insuflon blew and I had to take her to PAU to have it changed, simple right?? WRONG! what should have been a quick in and out visit turned into over 2 hours because the one they had to take out wouldn't stop bleeding 😭 now I'm paranoid she's going to bleed out while we are all asleep (highly unlikely, and slightly dramatised) BUT anything is possible when it comes to Evie as we all know 😩🤣 so they put a pressure dressing on aswel as a bandage to keep it on just to put my mind at rest 🤦🏼‍♀️ anyway tune in again next week for the next episode of "a day in the life of Squeezy"

Photos from Evie Squeezie’s Journey's post 06/06/2026

Imagine thinking this isn't a blessing? Imagine having a choice to be a part of this life and choosing not to? 🤯 if this is what you believe then this page isn't the place for you! That's all huns!

04/06/2026

Evie's bloods were all in range today 👏 and guess what we just found.....Evie's FIRST Peggy 🦷 yayyyy!!!

Photos from Evie Squeezie’s Journey's post 02/06/2026

Evie just loving life 🥰 back to Alder hey on Thursday for her bloods 🤞all good!

28/05/2026

Ahhhh I'm soo proud of her 🥰 watch until the end for a new milestone unlocking 👏 I have been trying for so long for her to do this and today she's been trying so much 🥹 managed to catch a small attempt on camera ❤️

Photos from Evie Squeezie’s Journey's post 27/05/2026

Today marks 1yr since Evie had her first Heart surgery to fit her PA band first pic 27/05/25 is her waiting to go down to theatre in heart failure and failing to thrive, 2nd pic is her today 27/05/26 🥰 our little Heart warrior ❤️

Photos from Evie Squeezie’s Journey's post 27/05/2026

A bit of Evie spam to brighten up your day 🥰🩷

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