Evie Squeezie’s Journey

Evie Squeezie’s Journey

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Hi everyone im Evie (Squeezy) i was born on 08/04/25.

I have Trisomy 21, complete AVSD and Hirschsprungs disease and Mummy and daddy set up this page for my friends, family and everyone inbetween to follow my journey through life, and all its hurdles 🩷

21/08/2026

We are back home now from our little getaway, I'm glad to say we needed NO hospital visits so tomorow we will be off to PAU for an insuflon change BUT we are on the last stretch of this medication now with under 3 weeks left 👏 we can finally say goodbye to 2 x daily injections and those pesky insuflons I CAN NOT WAIT!!!

Photos from Evie Squeezie’s Journey's post 20/08/2026

Another day, another place visited 🤗

Photos from Evie Squeezie’s Journey's post 19/08/2026

Another First for Evie today. First time at the beach 🏖️ 🥰

Photos from Evie Squeezie’s Journey's post 18/08/2026

Evie went on her First boat trip today to see the seals 🦭 as you can see the sea air has wiped her out 🤣

17/08/2026

Evie had her first ride on a big wheel today 🥰

Photos from Evie Squeezie’s Journey's post 16/08/2026

Just my Happy girl smiling and napping the day away 🩷

Photos from Evie Squeezie’s Journey's post 16/08/2026

Our First night in Devon

14/08/2026

The eve of Evie's First Holiday 🤗

14/08/2026

We are taking Evie on her first little holiday, 9 of us will be road tripping it down to Devon for 6 nights! The STRESS is real, googling the nearest hospitals making sure I have ALL the medical stuff we need and all of her feeding stuff 😫 it will be worth it right?? I hope so because I NEED a change of scenery BAD!! 🤣 anyway Que the holiday spam...it's going to be........interesting 🫣 wish us luck 🍀

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