Epilepsy Awareness Ltd

We would like to thank you all for your tremendous support and friendship over the years.
Sally is retiring after many years of hard work. This is so well earned.
She is so grateful and touched by the support on here and elsewhere but it’s time to retire.
Keep the purple shining bright. Our social media will close now but you are all always in our hearts 💜
Thank you all again.

23 faces. 23 voices. 23 young people diagnosed every day. 💜

This month, we shared the stories of 23 young people living with epilepsy. Each shared some of the scariest moments of their epilepsy journey.

To everyone who shared their experiences with us: a HUGE thank you. Your openness has helped more people understand the reality of epilepsy and why awareness matters.

With just 1 day to go until , this is your chance to support our Purple Day Appeal. 💜

Seizures can be frightening. They can leave children feeling confused, in pain and alone.
No child should live in fear of their own body.

Help stop the fear of seizures by donating TODAY - https://www.youngepilepsy.org.uk/purple-day-appeal

With the money raised, Young Epilepsy can fund vital research into childhood epilepsies and provide day-to-day support that truly transforms young lives.

Together, we can turn fear into hope.

You got us to the final, now we need your help to secure vital funding for our charity! 🗳️

As part of this year's Smiley Awards, all shortlisted organisations have the opportunity to win cash prizes . This means there is now a second round of voting open to all of you which could make us eligible as a People's Choice Winner. ⭐ If you voted previously you can now vote for us again!

It takes just two minutes to vote and could mean more funds to support our charity's mission of empowering and providing practical and emotional help to families living with Dravet Syndrome.

Please head to www.smileycharityfilmawards.com/films/what-is-love-when-living-with-dravet-syndrome to submit your vote and thank you to everyone who voted for us in the first round! 💜

There is less than a week until 💜

How are you helping spread epilepsy awareness?

Share our Purple Day Pointers or sign up to receive our free resources, including posters and ideas on how to go purple!

Learn more: https://sudep.org/events/purple-day/

Young Epilepsy Audience Insight - registration form Young Epilepsy is launching a new research project to better understand the experiences of children and young people living with epilepsy, and the parents, carers and professionals who support them. We’re partnering with Good Innovation, a specialist innovation consultancy, to listen carefully to ...

Purple Day is fast approaching!

Will you help us spread on 26th March? Mark your calendars and register with us today to see how you can help.

Register now: https://register.enthuse.com/ps/event/PurpleDay2026

Memory issues are common for many people with epilepsy.

Seizures can affect short-term memory, and people with frequent or uncontrolled seizures may also find it harder to remember events from the past. Sometimes it can feel like trying to piece together a jigsaw puzzle when some of the pieces are missing.

This is often because seizures affect parts of the brain involved in memory, such as the temporal lobe, where memories are formed.

Memory can also be affected before, during, and after a seizure, and some anti-seizure medications may impact concentration or cause tiredness.

Better seizure control can often help improve memory difficulties.

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We know grief can be exhausting. Our team can provide you with confidential and free support if you’ve experienced a death related to epilepsy.

If you wish to talk, call 01235 772852 or email us at [email protected]

You did it! You got us to the final of the Smiley Charity Film Awards! 📽️

Firstly, we would like to say a huge thank you to Lucie, Jo and Etta for letting us into their home and lives so that we could showcase what love with Dravet Syndrome really looks like. Our place as a finalist is a testament to the vulnerability they shared in order to raise crucial awareness around this devastating condition.

We're incredibly grateful to Nutmeg Productions for working with DSUK to produce the film and bring Etta and her family's story to life. 🙏

We're also thankful to all of you! Without your votes, we wouldn't be finalists among a whole list of wonderful charities and similarly powerful films.

In a few weeks, we'll be attending the Smiley Awards ceremony to see if we've won. Until then, all of our fingers are crossed!🤞