30/09/2026
A personal one from me.
We are completing the the 100miles in october for epilepsy awareness.
https://100milesinoctober.youngepilepsy.org.uk/users/amy-hughes
So as some of you may or may not know George has complex uncontrolled epilepsy, he was diagnosed when he was 2 and unfortunately as hes got older the complexity of it has escalated as has the meds resistance.
To start with it was just absences then he started clustering now it presents more as several different seizure types.
Unfortunately a few years ago while on holiday in Florida he had his first tonic clonic seizure. Since then he has had several tonic seizures along side daily absences and focal clusters, but this summer has been particularly bad with a couple of hospital stays needed because of the severity of his seizures.
Unfortunately the medical professionals in our a&e presented us with blank faces and a lack of understanding on George's condition. A place where we are supposed to be able to go to be cared for..... not really the response you want.
This brings me on to what and why we are doing this october. This october we will be completing 100 miles each, walking, running, cycling, swimming, raising money for young epilepsy and also hoping to raise awareness of different seizure types and knowledge of epilepsy in general.
George, Stu and myself will all be doing it. So we will be doing a combined 300miles. We are still going through a rough patch with George's epilepsy so we will be doing any miles that hes unable to because of physically not being well enough to.
The link is here
https://100milesinoctober.youngepilepsy.org.uk/users/amy-hughes
Hopfully over the next month we will all be able to share some knowledge and our experiences of epilepsy while completing this challenge.
