EDITS Study

Studying the early development of infants with tuberous sclerosis complex (TSC) and typically developing infants autism spectrum disorder), attention (e.g.

We are recruiting babies with TSC and typically developing babies from birth up to 10 months of age that we will see multiple times across development using a range of assessments that can be carried out in the home. TSC is associated with variable outcomes in later childhood, including problems in social communication (e.g. attention deficit hyperactivity disorder) and cognitive ability (e.g. int

17/05/2023

We're still recruiting for our fabulous EDiTS Study! Please share around - we're recruiting families with children between 3-5 either with or without a TSC diagnosis.

If you're interested please contact [email protected]

05/05/2023

Incredible!

The small TSA team is all feeling a bit teary-eyed in our virtual offices today. We simply don't have the words to describe how massively proud and thankful we are to everyone in at the London Marathon 2023. Instead, we'll let some of our amazing runners put it in their own words:

"What an incredible day. The blood, sweat and tears (literally!) were all worth it for that feeling of crossing the finishing line. I don’t think I can ever sum up to anyone just how that felt" - Hayley, first-time London Marathon runner.

"I finished yesterday in 03:58:25 and was greeted by the little girl who it was all in aid of. It was a brilliant day and I have memories that will last a lifetime." - Sam, uncle to Avery with TSC.

"I loved the whole experience and the support from the public is incredible. An amazing experience I will never forget!" - James, longstanding TSA supporter.

The jawdropping efforts of all of our runners, and the kindness of donors, has resulted in over £20,000 and rising to improve lives in the TSC community. This gives us real breathing space, and allows us to keep going. As long as we're here, we'll continue to fight for everyone affected by TSC - these donations help give us the means to continue the battle.

Thank you to all of our runners: Claire Felstein, Chris King, Daniel Marks, Duncan Warner, Emily White, Hayley Grainger, James Black, James Harper, Lewis Bastin, Sam Cooke. You're amazing!

02/02/2023

Check out our new video!
Thank you all for your participation in the EDITS Study preschool phase so far, we've loved catching up with you all and cant wait to see the rest of you over the course of the year.

Please share with anyone who might be interested in joining our study, we're looking for children between 3-5 yrs with or without a diagnosis of TSC!

Photos from Tuberous Sclerosis Association's post 12/01/2023
10/01/2023

Just popping on to say a belated happy new year to all our EDiTS families and friends! We're just about settled back into the swing of things here and we hope you've all enjoyed a well deserved break over the last few weeks.

Rowan and Zayna will be hitting the road again soon and we can't wait to see more of you lovely lot!

24/11/2022

Quick reminder that we're still recruiting families of 3-5 year old with and without a diagnosis of Tuberous Sclerosis! Read below to find out more

We're inviting families of 3-5 year old children to take part in our research study investigating behaviour and development! Participation involves our lovely team visiting your home at a time to suit you, to complete some fun toy- and tablet-based activities. Families receive a small gift and voucher for their time.

You can find out more here: www.edits-study.org/preschool-phase

Feel free to ask me any questions 😊

Study email: [email protected]
Study mobile: 07880 394296

14/09/2022

Tickets are now ✨FREE ✨ for the TSA Big Day in Manchester

Big Day 2022 is quickly approaching, with the TSC community joining together on Saturday 8 October at the Innside by Melia Manchester. Tickets for the event are now FREE - to get as many people as possible along to the day, and to also reflect the rise in cost of living.

Come along for a great day of talks, workshops and opportunities to connect with other people who are affected by TSC.

https://tuberous-sclerosis.org/get-involved/our-community-events/big-day/

14/09/2022

We're inviting families of 3-5 year old children to take part in our research study investigating behaviour and development! Participation involves our lovely team visiting your home at a time to suit you, to complete some fun toy- and tablet-based activities. Families receive a small gift and voucher for their time.

You can find out more here: www.edits-study.org/preschool-phase

Feel free to ask me any questions 😊

Study email: [email protected]
Study mobile: 07880 394296

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Videos (show all)

EDiTS Preschool Recruitment

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16 De Crespigny Park
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SE58AF
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